Where to research surgeons?

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Date Joined Nov 2008
Total Posts : 63
   Posted 5/23/2009 1:32 AM (GMT -6)   
I've heard those surgeon rating websites you have to pay for are somewhat bogus, is this true?

I'm thinking about flying to the Mayo and having my surgery done since they've been ranked #1 by US New for the last 18 years for digestive disorders and have a good reputation as usually the first or second best hospital in many fields. Plus my family lives in Minnesota and I can stay at their house while I recover. Anyone have experiences with surgery there?

I can also have it done at UCSF in San Francisco which is the area I live now, but the old condition of the building like many in SF is kind of concerning, even though it likely doesn't reflect the quality of care there. It's ranked at about #11 for Gastro disorders, according to US News rankings anyways.

Does 4 months total out of work sound pretty accurate for a younger mid twenties person? How have you people gone about being out of work for so long? Mine should be good about it and there is a leave sharing program but not sure how well that will work. A surgeon here I talked to said there are some programs that can help with financial assistance though?

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Date Joined Feb 2006
Total Posts : 5698
   Posted 5/23/2009 8:06 AM (GMT -6)   

The best place to  research surgeons at www.j-pouch.org  Many have had their surgeries in NorCal and I know when Dr. Aguirre was at UCSF he was considered tops in that part of the state but he has since moved on to City of Hope in SoCal.  You can't go wrong with the Mayo but you don't really need to travel that far.  There are excellent surgeons closer to home.  Mine was done by Dr. Robert Beart at USC.  He's done over 2000 jpouches and is considered the best surgeon on the west coast. 


dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free

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