HAd the surgery five weeks ago and the ostomy is behaving on the most part. The rectum removal is still very painful and am wearing a wound vac - but hopefully we have only 4 more weeks of that.
For those, who like me were at the end of the road medicine wise - it really is not as bad as I had thought. Yes it is a big change and adjustment - and yes - I have to "go to the bathroom" by emptying my bag every 4 hours or so. But it is not a mad dash and it is controlled. The products they have today are amazing and so far - there has not been an issue.
I am not advocating surgery, rather one has to arrive at that decision in their own time and place in their lives. But the life goes on - and the people that love me are still hanging around...so I just wanted to share.
I hope everyone here achieves the remission they so deserve - and know the love that is out there in the world - it gets us all through life.
With love to all