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Hello All from a very old friend - now hanging on the Ostomy board

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Ulcerative Colitis
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Posted 5/25/2009 12:37 AM (GMT -8)
HAd the surgery five weeks ago and the ostomy is behaving on the most part.  The rectum removal is still very painful and am wearing a wound vac - but hopefully we have only 4 more weeks of that.

For those, who like me were at the end of the road medicine wise - it really is not as bad as I had thought.  Yes it is a big change and adjustment - and yes - I have to "go to the bathroom" by emptying my bag every 4 hours or so.  But it is not a mad dash and it is controlled.  The products they have today are amazing and so far - there has not been an issue.

I am not advocating surgery, rather one has to arrive at that decision in their own time and place in their lives.  But the life goes on - and the people that love me are still hanging around...so I just wanted to share.

I hope everyone here achieves the remission they so deserve - and know the love that is out there in the world - it gets us all through life.

With love to all

bob

Posted 5/25/2009 7:52 AM (GMT -8)
Hey Bob, it's so good to hear from you. I'm glad to hear you are doing well and getting along with your life; nothing short of what I would have expected from such a positive person such as you. Hope your wife is doing well, and I wish you all the best life has to offer. Peace to you my friend and so good to hear from you!
Posted 5/25/2009 8:03 AM (GMT -8)
Hey Bob, like lonielane said it is good to hear from you, Im glad you are doing better, My Mom used one of those wound vacs and it really helped speed up her recovery time. She used one when she had her gallbladder out, she had alot of trouble with the surgery and it ended up busting open and then she had to leave it open to heal from the inside out, but with the vac they was all surprised how quick it closed up on its own so hope you have the same luck with yours. good luck Bob.
Posted 5/25/2009 12:20 PM (GMT -8)
Hello Bob! It's awesome to hear your adjustment phase is going well. I've never heard of a wound vac..must do the research on that...I hope it helps the healing and that your pain lessens daily.

Are you on any pain meds at all?

It's been an amazingly long and painful journey for you with so many other health issues that have required so much of you. Your inspirational strength is truly one to take to heart. It does help to have a loving support system available, one that we need to seek if all seems hopeless.

Take good care, Bob...
Heather xx
Posted 5/25/2009 2:47 PM (GMT -8)
So nice to hear from you again, Bob.  I hope your recovery is a quick one.  Please give my best to your wife.
Posted 5/26/2009 3:01 AM (GMT -8)
I've been thinking about how your were doing. You must've read my mind! :) I'm glad you are doing better and I will pray that your days do nothing but improve from now on.
Posted 5/26/2009 6:20 AM (GMT -8)
Last week I asked about you here & Eva Lou replied that you were posting on the Ostomy Forum-- so I "went over" & read about your issues. The part about your MIL was absolutely horrific! I hope that's all behind you now & may you feel stronger & more in control of your life every day.  Definitely keep us posted as your time/energy permits. / Old Hat (30 yrs with left-sided UC ... [etc.])
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