Hello All from a very old friend - now hanging on the Ostomy board

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schrek-chewbacca hunk
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Date Joined Jun 2005
Total Posts : 2666
   Posted 5/25/2009 3:37 AM (GMT -6)   
HAd the surgery five weeks ago and the ostomy is behaving on the most part.  The rectum removal is still very painful and am wearing a wound vac - but hopefully we have only 4 more weeks of that.
For those, who like me were at the end of the road medicine wise - it really is not as bad as I had thought.  Yes it is a big change and adjustment - and yes - I have to "go to the bathroom" by emptying my bag every 4 hours or so.  But it is not a mad dash and it is controlled.  The products they have today are amazing and so far - there has not been an issue.
I am not advocating surgery, rather one has to arrive at that decision in their own time and place in their lives.  But the life goes on - and the people that love me are still hanging around...so I just wanted to share.
I hope everyone here achieves the remission they so deserve - and know the love that is out there in the world - it gets us all through life.
With love to all

Veteran Member

Date Joined Feb 2005
Total Posts : 6448
   Posted 5/25/2009 10:52 AM (GMT -6)   
Hey Bob, it's so good to hear from you. I'm glad to hear you are doing well and getting along with your life; nothing short of what I would have expected from such a positive person such as you. Hope your wife is doing well, and I wish you all the best life has to offer. Peace to you my friend and so good to hear from you!

Remicade - will have my 29th infusion on July 8
Vitamin B-12/Biotin, Probiotics, Vitamin D-3 (2000 IU)
Co-Moderator for the UC Forum

potty girl
Veteran Member

Date Joined Dec 2006
Total Posts : 835
   Posted 5/25/2009 11:03 AM (GMT -6)   
Hey Bob, like lonielane said it is good to hear from you, Im glad you are doing better, My Mom used one of those wound vacs and it really helped speed up her recovery time. She used one when she had her gallbladder out, she had alot of trouble with the surgery and it ended up busting open and then she had to leave it open to heal from the inside out, but with the vac they was all surprised how quick it closed up on its own so hope you have the same luck with yours. good luck Bob.

synthroid .088 mg, lowpressor 50 mg x 2, cozaar 25mg x2, imdur 30 mg
nitroquick, proventol, plavix 75 mg, protonix 40 mg x 2, asacal 400mg x 9
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Elite Member

Date Joined May 2003
Total Posts : 30976
   Posted 5/25/2009 3:20 PM (GMT -6)   
Hello Bob! It's awesome to hear your adjustment phase is going well. I've never heard of a wound vac..must do the research on that...I hope it helps the healing and that your pain lessens daily.

Are you on any pain meds at all?

It's been an amazingly long and painful journey for you with so many other health issues that have required so much of you. Your inspirational strength is truly one to take to heart. It does help to have a loving support system available, one that we need to seek if all seems hopeless.

Take good care, Bob...
Heather xx
*Heather* Status: mild flare enemas tapered to every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 x2 daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

Regular Member

Date Joined May 2007
Total Posts : 458
   Posted 5/25/2009 5:47 PM (GMT -6)   
So nice to hear from you again, Bob.  I hope your recovery is a quick one.  Please give my best to your wife.
Dx:  UC Proctitis 2006 
Meds:  None so far. Garlic works to ease flares. My GI laughed when I told him and said it was just coincidence. 
Started Meds:  Apr 9 08 500mg 5ASA (salofalk) to ease flare, tapering, stopped. 
Diet:  Regular fresh garlic, Biobest yogurt daily, Omega 3 supplements, very limited junk food, carbs and processed food, low fat diet.  Lots of fresh fruit and veggies (limited potatoes). 
 Added: tumeric and probiotics.

Elite Member

Date Joined Apr 2004
Total Posts : 23551
   Posted 5/26/2009 6:01 AM (GMT -6)   
I've been thinking about how your were doing. You must've read my mind! :) I'm glad you are doing better and I will pray that your days do nothing but improve from now on.
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-second series starts 2/17, OA in my fingers -Celebrex, Tylonel Arthritis and Voltaren Gel
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Old Hat
Veteran Member

Date Joined Feb 2007
Total Posts : 5190
   Posted 5/26/2009 9:20 AM (GMT -6)   
Last week I asked about you here & Eva Lou replied that you were posting on the Ostomy Forum-- so I "went over" & read about your issues. The part about your MIL was absolutely horrific! I hope that's all behind you now & may you feel stronger & more in control of your life every day.  Definitely keep us posted as your time/energy permits. / Old Hat (30 yrs with left-sided UC ... [etc.])
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