low blood count and other questions

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susie45
Regular Member


Date Joined Nov 2008
Total Posts : 20
   Posted 5/25/2009 10:18 PM (GMT -6)   
hi
i recently got out of the hospital because i needed a blood transfusion because i have been active for over a year  my blood count went down to 7 when it should have been 14. The doctor i was seeing didnt even send me for a blood test my the doctor i see for a cold did. Thank god lol the gastro doctor were pushing the injection you get every two weeks which side effects could be tb or lymphomia so i refused it said there must be an alternative i tried pred. but the side effect were horrible now i went back to my old doc and he is putting me on endecort it worked once i hope it does again when i told him how the other doc was pushing the injection needle which i forgot the name he told me that was a last resort before an operation. he told me that the doc was making a profit on it  isnt that horrible.  i also read a post from ucsurviver and wanted to know what pentasa was i talk lialda and i was wondering if that was in the family as asacol and lialda because i think the lialda is helping a little

quincy
Elite Member


Date Joined May 2003
Total Posts : 30984
   Posted 5/26/2009 3:52 AM (GMT -6)   
Hi...It's a good think one of your doctors is on the ball! Hope your blood count stays up.

is your UC throughout your colon or limited?

I'm assuming the injection you're talking about is Humira.

Pentasa is a 5ASA medication..same as Asacol and Lialda. It comes in oral as well as rectal in suppositories and liquid enemas.

I would suggest that if the Lialda is helping, that you should add rectal meds to the mix.

Keep us posted as to how you're doing.

quincy
*Heather* Status: mild flare enemas tapered to every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 x2 daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


susie45
Regular Member


Date Joined Nov 2008
Total Posts : 20
   Posted 5/26/2009 7:17 AM (GMT -6)   

thanks quincy

the uc is only in the lower part of my colon it gets really depressing to take all of this meds.


ucsurviver
New Member


Date Joined May 2009
Total Posts : 4
   Posted 5/26/2009 8:53 AM (GMT -6)   
Hi.  Pentasa is another 5 asa drug like Colazal or Lialda -- I just  heard from my doctor that it "delivers" differently -- I'm not sure what this means.  I'm not sure how much it is helping me.  I take 9-12 pills a day, but I still have minor bleeding and my stool are not normal when I do not incorporate diet.  I am doing the IBD Remission diet now, by Jini Patel, which is a liquid diet designed to give you a bowel rest.  I hope this one works!

quincy
Elite Member


Date Joined May 2003
Total Posts : 30984
   Posted 5/26/2009 2:51 PM (GMT -6)   
both of you should be using rectal 5ASA as well....
*Heather* Status: mild flare enemas tapered to every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 x2 daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 

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