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Regular Member

Date Joined Mar 2009
Total Posts : 21
   Posted 5/26/2009 9:39 AM (GMT -6)   
I saw my GP today and talked about alternate paths to take. Unfortunately he didn't have much advice to give. He's leaving up to my GI for the

medication part of UC. I'm just wondering for all of you that are taking natural supplements and vitamins and such, who suggested these things

to you. I've talked to both GP and GI and none of them are even opening that door. My concern is if I do see someone other than these 2 are

they going to be familiar enough with compatibility with remicade and prednisone. Any advice will help.
Diagnosed with moderate UC left side 2005
Salofalk 3pills x 3 times daily - No effect
2006 moderate to severe UC
Prednisone 25mg daily cycled down 5mg per week
Asacol 3pills x 2 times daily
Remission achieved
2009 severe pancolitis
60mg prednisone cycled down 5mg per week
2grams fish oil, multivitamin
Currently at 10mg prednisone, starting to flareup again.

Elite Member

Date Joined Apr 2004
Total Posts : 23551
   Posted 5/26/2009 10:12 AM (GMT -6)   
My docs are the same way. What I've learned about supplements I've learned from here. It's all about trial and error. So whatever suggestions you get here you need to remember what works for one may not work for another. The most important supplements I can think of at the moment is to take probiotics and a multivitamin. It took a couple tries for me to find the right probiotic and I take a vitamin designed for IBD'ers called Forvia. I also take Biotin because I was getting deep horizontal ridges in my nails due to D. Biotin is mostly created in your large intestine so if one is having D multiple times a day it can deplete this.
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-second series starts 2/17, OA in my fingers -Celebrex, Tylonel Arthritis and Voltaren Gel
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Serenity Now
Veteran Member

Date Joined Jan 2009
Total Posts : 2156
   Posted 5/26/2009 10:13 AM (GMT -6)   
I read about supplements and such primarily right on this board and through other internet research... neither my doctor nor my GI mentioned anything.
ack, 42, Vancouver BC
DX: UC (Pancolitis) as of Jan2009.  Symptoms first began June 2008.
Current Meds: Ferrous Sulfate, plus various supplements
Previous Meds: Jan-Mar 2009: Asacol 800 mg (1 pill x 4 daily), stopped Mar14/09. 

Regular Member

Date Joined Dec 2008
Total Posts : 224
   Posted 5/26/2009 10:30 AM (GMT -6)   
I also picked up on supplements and alternative approaches from my own initiative and research - it did not come from either my GI or my primary care physician.

However, I think you are wise to check with your doctor about the various supplements you are considering. I told my GI exactly what supplements I wanted to try. As it turned out, she was familiar with them and gave me the green light - which gave me more confidence.
Diagnosed with UC in 1990.

Current Meds: Sulfasalizine (2 g), Rowasa (now and then), Folic Acid (1 mg)

Supplements: fish oil, flax oil, glucosamine, CoQ10, fiber, aloe vera juice, probiotics.

Other: Raw Milk for breakfast. Currently exploring a raw milk fast one day/week.

Elite Member

Date Joined May 2003
Total Posts : 31006
   Posted 5/26/2009 2:55 PM (GMT -6)   
You might want to ask about rectal meds to help heal the rectum...if everything else is healed and the rectum isn't, you'll still have symptoms.
The rectal med suggestion is to use in conjunction ... not alone....and don't listen to the part where a doctor or anyone will say your UC goes higher and it won't reach, because that's not what they're for.

You could also try fibre supplements to bulk up and soften the stool.

*Heather* Status: mild flare enemas tapered to every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 x2 daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

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