Electronic cigs?

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Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2105
   Posted 5/26/2009 3:11 PM (GMT -6)   
Just ran across them. Anyone used them and had success in helping the UC. I don't think I could go smoking to try and help the UC, but this is not a bad option if it would help.
Proctitis DX 1999, Pancolitis DX 2008
Golimumab study (100mg every 4 weeks)
L-Glutamine 5000 mg + 600 mg pyridoxal alpha-ketoglutarate
Probiotis/VitD3 5000IU+Ca/1000mg DHA


quincy
Elite Member


Date Joined May 2003
Total Posts : 30976
   Posted 5/26/2009 3:28 PM (GMT -6)   
Interesting question...seems would be healthier than normal cigs. Do they have nicotine in them? or is it just going through the motions?

q
*Heather* Status: mild flare enemas tapered to every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 x2 daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2105
   Posted 5/26/2009 3:34 PM (GMT -6)   
I just happen to run across them and in a few click run into what seems a huge amount of people using them, lol. Had no idea they even existed. Looks like nicotine contents vary from 16mg-0mg, depending on what strength you get. I don't know how many mg we need to get a response, or if its even just the nicotine that helps. Seems there is another component that helped in smoking but I don't remember.

I started here: blucigs.com
Went here for some reviews and to read more: http://www.electroniccigarettereview.com
Then huge forum here: http://www.e-cigarette-forum.com
Proctitis DX 1999, Pancolitis DX 2008
Golimumab study (100mg every 4 weeks)
L-Glutamine 5000 mg + 600 mg pyridoxal alpha-ketoglutarate
Probiotis/VitD3 5000IU+Ca/1000mg DHA


quincy
Elite Member


Date Joined May 2003
Total Posts : 30976
   Posted 5/26/2009 3:35 PM (GMT -6)   
They're advertised on TV....I best pay attention just out of curiosity.

Do you smoke anyway?

q
*Heather* Status: mild flare enemas tapered to every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 x2 daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2105
   Posted 5/26/2009 3:37 PM (GMT -6)   
No, but if it helped, something like this would be a great alternative to the steroids and research oriented drugs I take, lol.
Proctitis DX 1999, Pancolitis DX 2008
Golimumab study (100mg every 4 weeks)
L-Glutamine 5000 mg + 600 mg pyridoxal alpha-ketoglutarate
Probiotis/VitD3 5000IU+Ca/1000mg DHA


quincy
Elite Member


Date Joined May 2003
Total Posts : 30976
   Posted 5/26/2009 3:41 PM (GMT -6)   
maybe better than the real deal....

To me, pred can set up a patient for 5ASA med failure, and it saddens me that it's still a first-line med for many docs. But, I have to remember, it's cheap and a miracle med in its own right. But grossly abused as well.

Maybe pb4 (smoker researcher for IBD) will give feedback on this possible method.

quincy
*Heather* Status: mild flare enemas tapered to every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 x2 daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


Meesh
Veteran Member


Date Joined May 2006
Total Posts : 619
   Posted 5/26/2009 4:14 PM (GMT -6)   
If you feel nicotine would help, why not just use a nicotine patch or gum? Seems a lot less expensive and much more discreet.
47 yr old female, dx'd UC April 27, 2006; mild arthritis in lower back, dx'd May 2008; Osteopenia dx'd 6/08 Finally achieved remission mid October 2008!!

15 Remicade infusions, current scheduled every 6 weeks: 1st: 7/21/07; most recent: 4/25/09; Current meds & supplements: Lialda, 4 tabs in the morning; Xanax as needed (rarely); Rowesa and/or Canasa; multivitamin w/folate; Culturelle; Fish oil capsules, calcium chews and/or Tums; Vitamin D;

Past meds: Prednisone 4/06-4/08; Entocourt EC; Asacol; Colazal; Venofer (iron) injections Dec '07; Imuran (extremely bad reaction 2/07); Protonix; Lexipro


seconder
Veteran Member


Date Joined Jun 2008
Total Posts : 610
   Posted 5/26/2009 10:40 PM (GMT -6)   

Didn't the FDA reclassify cigarettes as "nicotine delivery systems"?  This seems to take that idea to its logical extreme.  I really don't know that I'd entice a nonsmoker/ non-tobacco user to nicotine; it is a very addictive substance.  (No doubt people easily, happily kick pred.) 

That said, when it's all added up, I don't know that a few cigarettes a day are the end of the world.  For various reasons, that's where I'll probably end up.  Three to five cigarettes keep my uc under control.  (That, and something else the censors won't let us discuss.) 

My doc gets one last shot the first week of June.  I'd opt for surgery but I just don't have the time.  I quit smoking two and a half years ago and I've been in some sort of flare since then.  Too long, too many doctors, too many meds.  When I think back to my smoking days, I was a lot healthier than I am now.  I even ran marathons then. 

I've tried non-tobacco cigarettes.  They don't do the trick.  All the CO and none of the nicotine.  They also taste awful and smell like burning garbage too.  If the CO is at play, it's definitely in combination with nicotine.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 5/27/2009 12:27 AM (GMT -6)   
A new study in the December 19 issue of The Journal of Experimental Medicine might help explain this apparent resistance. Scott Plevy and his colleagues at the University of Pittsburgh now show that carbon monoxide (CO), a component of cigarette smoke, helps shut down the intestinal inflammation that causes ulcerative colitis.

CO is best known as a toxic air pollutant, but small amounts of this gas are also produced in the human body as a normal by-product of metabolism, suggesting that the effects of CO must not be all bad. High dose CO gas is lethal, because it robs the body of life-sustaining oxygen. It is this asphyxiant property of CO that has earned it a bad reputation. But recent scientific studies have shown that CO -- at least at low concentrations -- has a redeeming quality: it acts as an anti-inflammatory agent.

It is this quality, according to Plevy and colleagues, that allowed CO to ease the symptoms of IBD in mice. The group traced the action of inhaled CO to a protein that is produced by immune cells called interleukin (IL)-12. IL-12 is normally produced during infection and helps activate the immune cells that fight off the invading pathogens. But chronic production of IL-12 in the gut also drives the inflammation that causes ulcerative colitis. Inhaled CO inhibited the production of IL-12, short-circuiting the disease-causing inflammation.

The researchers are now trying to unravel the specific cellular components that are required for CO to inhibit IL-12. In the meantime, Plevy thinks that inhaled CO might provide some relief for patients with ulcerative colitis. But non-smokers with IBD shouldn't necessarily break out the Marlboros, as cigarette smoking is a risk factor not only for heart disease and cancer but also for Crohn's disease, another form of IBD.


:)
My bum is broken....there's a big crack down the middle of it! LOL :)


seconder
Veteran Member


Date Joined Jun 2008
Total Posts : 610
   Posted 5/27/2009 7:11 AM (GMT -6)   

It seems that CO turns off a bit of the immune-system response, much like nicotine is thought to do.  It looks like the bulk of current reasearch is focused on nicoine, though.  A quick search of pubmed, for instance, shows a number of current publications looking at the connection between nicotine and uc and none for carbon monoxide.

If one were open to the possibility of managing a nicotine addiction with an e-cig, one would probably have a lot of control over doage.  There are also nicotine inhalers, no?  Tinture of nicotine?


Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2105
   Posted 5/27/2009 7:51 AM (GMT -6)   
I guess it's just a matter of trying it.
Proctitis DX 1999, Pancolitis DX 2008
Golimumab study (100mg every 4 weeks)
L-Glutamine 5000 mg + 600 mg pyridoxal alpha-ketoglutarate
Probiotis/VitD3 5000IU+Ca/1000mg DHA


Mitzo
Veteran Member


Date Joined Dec 2007
Total Posts : 536
   Posted 5/27/2009 9:40 AM (GMT -6)   
I have an e-cig and it is nifty, it delivers nicotine, but it is no more useful in alleviating UC problems that the nic patch or the gum. Only the real cigarattes, with the combination of nicotine and CO squelch my UC.

23 years of UC which started after quitting smoking. In and out of flares which are usually triggered by antibiotics. Latest issue is endless diarrhea without blood or mucous.

 


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6448
   Posted 5/27/2009 3:54 PM (GMT -6)   
lol, seconder...really, the "censors?" shakehead
Carol

Remicade - will have my 29th infusion on July 8
Vitamin B-12/Biotin, Probiotics, Vitamin D-3 (2000 IU)
 
Co-Moderator for the UC Forum
 
 


Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2105
   Posted 5/27/2009 4:01 PM (GMT -6)   
Lonielane said...
lol, seconder...really, the "censors?" [img]/community/emoticons/shakehead.gif[/img]


lol, Censors aka: "po po" of the poo poo forums.
Proctitis DX 1999, Pancolitis DX 2008
Golimumab study (100mg every 4 weeks)
L-Glutamine 5000 mg + 600 mg pyridoxal alpha-ketoglutarate
Probiotis/VitD3 5000IU+Ca/1000mg DHA


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6448
   Posted 5/27/2009 4:03 PM (GMT -6)   
Tee hee, giggle. :-)

Carol

Remicade - will have my 29th infusion on July 8
Vitamin B-12/Biotin, Probiotics, Vitamin D-3 (2000 IU)
 
Co-Moderator for the UC Forum
 
 


seconder
Veteran Member


Date Joined Jun 2008
Total Posts : 610
   Posted 5/27/2009 6:31 PM (GMT -6)   
Sorry, Lonielane, I don't mean much by it, but euphemism is dangerous.  First definition of censor:  "A person authorized to examine books, films, or other material and to remove or suppress what is considered morally, politically, or otherwise objectionable."
 
Just calling a duck a duck.

Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6448
   Posted 5/27/2009 7:38 PM (GMT -6)   
Hee hee, I was only kidding....jus' doin' my job! :-) Smile. All of you are awesome folks.
Carol

Remicade - will have my 29th infusion on July 8
Vitamin B-12/Biotin, Probiotics, Vitamin D-3 (2000 IU)
 
Co-Moderator for the UC Forum
 
 

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