Hi everyone, as many of you know, my husband and I both have UC. However, my husband, who was diagnosed approx. 2 years ago, isn't responding to medication anymore and now we're heading to the Mayo Clinic for a 2nd opinion before surgery. I was wondering if any of you could give any insight to any of this as we are both a little scared and nervous. My husband and I are both 26 years old, and he's about
to have his colon removed. Our gastro has recommended surgery as my husband's colon is severly diseased throughout, but gave us a referral to the Mayo Clinic so we could have access to some of the best physicians around. My husband did Remicade for about
2 months, but became immune to it. Then after that they tried him on Humira, but come to find out I'm severly allergic to it, (use your imaginiation) plus it wasn't relieving any of his symptoms, so now here we are. He's been on everything out there, well atleast what we know about
here in Great Falls, MT. We both have referrals to the Mayo, him for his colon, and mine for urticarial vasculitis which was caused by the Humira, so I'm just a little nervous. I'm nervous that my husband is young and is about
to have major surgery. We have two children, a 3 year old and a 1 year old, so I'm praying if and when he does have surgery everything will work out for the best and he'll be fine. So any assistance or support/info would be greatly appreciative. If he has his colon removed will he have a bag forever?, I know there are a lot of new procedures available, but I'm not educated on many of them. Is the J-pouch for people who have their whole colon removed? How long are you out of commission for? Does life return to normal? Is the bag hard to deal with? Can you still have a sex life? Is it easy to return to work and adjust? Just curious about
all of these things. I love my husband with all my heart, I just need to know he'll be fine after he has this surgery. No more pain I hope and pray! Any stories would help. Thank you all!!!!
Alaina - age 26
Ulcerative Colitis-- Diagnosed when I was 16. (It has it's ups and downs)
Urticarial Vasculitis (my newest endeavor)
Xyzal (5 mg every 12 hours), Atarax (every 6 hours), Pepcid (every 12 hours), Doxepin (50mg at bed time), Levothyroxine (.50 mg), and Ativan if needed, but I haven't really used it. I also have been loving Aveeno Oatmeal bath, and their calimine lotion when all else fails!