Am i still flaring! Help!!

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saposs
Regular Member


Date Joined Nov 2008
Total Posts : 339
   Posted 5/26/2009 9:54 PM (GMT -6)   
Hi,
my GI asked me to double my Canasa 15 days back, she asked me to continue with canasa my symptoms improve or else start oral Lialda 3Xday after 2 weeks with double canasa. My question is i m not able to figure out if my condition is improving??

1. Earlier when ever i used rest room - i used to get blood and mucus each time. Now from the day i started canasa during day, i try to walk less to retain it and and empty it out at around 5:00 pm.. but after that the medicine keeps coming out after every half an hour + little blood till 9:00 pm when i apply my second canasa. I dnt know if there is mucus also as it is all dark brown/purple color of medicine + decreased blood than before. How does your canasa come out - in one go OR 3-4 rounds to rest room?

2. I used to have constipation in morning and there is still no change in that.

I will not be able to explain this to my GI, we understand it better than our doctors! I want to stick to mild medicines as long as possible (am 5 months old into this). Should i start Lialda or stick with canasa for some more time??
Please help!
Right now -FLARING (after my Rubella vaccination)
Diagnosed in Jan'2009: Canasa suppositories 1000 nightly - worked for 2 months then re-flare
13 may: canasa 1000 X2 daily for 2 weeks - to start Lialda after 2 weeks if canasa double dose does not work
Symptoms: Mucus, blood, constipated (not always), Lots Gas
Also gifted with Hypothyroid & have calicum deficiency family history!
Also started Probiotic from 23 Mar & fresh Turmeric root from 25 March'09- stopped both on 10th May


quincy
Elite Member


Date Joined May 2003
Total Posts : 30587
   Posted 5/27/2009 1:26 AM (GMT -6)   
Hi...I personally don't think the suppositories are enough med to treat UC symptoms. I see it as more of a maintenance med....
But you do seem to be improving some, which is a good thing.

I would strongly suggest you ask your doc for the next step up which are the retention enemas. You would only need to use them at night.

You should also be on an oral med....I'd suggest a low dosage of Lialda...2 daily should be a good start.

Treating both ends is really the way to go. Your doctor should not stop rectal meds in favour of oral....you should be using both. If she's worried about the amount of 5ASA...then she can start you on the 2gram dosage of Rowasa...but I say start on the 4 since this has been going on for a while already.

Yes, the colours you're having during bms is partly because of the suppositories mixing with the blood/stool/mucus.

quincy
*Heather* Status: mild flare enemas tapered to every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 x2 daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 5/27/2009 9:22 AM (GMT -6)   
I agree totally with quincy. You should be on both an oral and a rectal ASA med. I think that an enema might be more effective than the suppository because they reach higher. Also, Lialda isn't a harsh drug at all. It's in the class of drugs that have the least potential long-term side effects, so don't worry about that!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Eased for ~3 weeks in December, possibly b/c of probiotic use?
Returned in January 2009 (with a vengeance), diagnosed with pancolitis on January 30.
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa nightly, Culturelle probiotic, and Zoloft (25 mg).


saposs
Regular Member


Date Joined Nov 2008
Total Posts : 339
   Posted 5/28/2009 4:36 PM (GMT -6)   
thanks for reply! I will start with oral med. as well then.
Right now -FLARING (after my Rubella vaccination)
Diagnosed in Jan'2009: Canasa suppositories 1000 nightly - worked for 2 months then re-flare
13 may: canasa 1000 X2 daily for 2 weeks - to start Lialda after 2 weeks if canasa double dose does not work
Symptoms: Mucus, blood, constipated (not always), Lots Gas
Also gifted with Hypothyroid & have calicum deficiency family history!
Also started Probiotic from 23 Mar & fresh Turmeric root from 25 March'09- stopped both on 10th May


quincy
Elite Member


Date Joined May 2003
Total Posts : 30587
   Posted 5/28/2009 5:40 PM (GMT -6)   
Let us kow how you're doing....flaring sucks!
q
*Heather* Status: mild flare enemas tapered to every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 x2 daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 

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