Can't stop crying

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Jenn C
Regular Member


Date Joined May 2009
Total Posts : 31
   Posted 5/27/2009 4:15 PM (GMT -6)   
My emotions are wrecked, GI Doc thinks IBS, I have been diagnosed with IBS since high school and NO symptoms like this. My colonoscopy is June 5 so only 1 week until I know for sure, I am scared and mad at the same time. Maybe I am just being a baby but I need to vent. I have felt bad for so long and though for sure I'd feel better after this Dr visit with the specialist, and I get nothing but a bill for $200.

Also just found out that my husband's new job will not be enough that I can quit working, so that upsets me too as I wanted to start graduate school in Fall 2010 and save for a house. I am just frustrated and feeling down right now, forgive me.

Also not thrilled about the golytely, it scares me. Is there anything I can mix it with to make it not take like what it will be producing in the toilet?

Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 5/27/2009 4:32 PM (GMT -6)   
Vent away, Sorry things are not going your way. Can you do graduate school and work too? Seems lots of people do, but it all depends on many things, I know.
Houses are not always such great investment these days, so can you just rent a nice house you like? Try not to feel bad about that now.

Sounds like it's time to spend the $200 and know what is going on. I'm not familiar with the g prep, but if it's a mix, here's my advice: be sure you use two things because you'll get tired of just one flavor (I like Propel, and Vitamin water lemonade), and make sure it is really cold. (This doesn't make sense if it's not a mix).

That said, cowgirl up, darlin'
You haven't felt bad for that long, believe me. All will be OK, there is much that can be done to make you feel better.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering. Asacol maintenance for 20+ years; used prednisone & Rowasa for flares.  Probiotics (Ultimate Flora, 50 billion), salmon oil (omega-3) when I can remember. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; eliminated wheat/gluten from my diet.
Bad flare in March, used prednisone. Humira denied, started Remicade 4/12 and doing great~ learning what normal is~ wow


Jenn C
Regular Member


Date Joined May 2009
Total Posts : 31
   Posted 5/27/2009 4:38 PM (GMT -6)   
I guess in the long scheme of things 14 months is not that long, but it seems like forever. Oh I spent the $200 that is just the visit today, no clue what the colonoscopy will cost me.
The golytely is a powder they said add water, but the Dr, nurse, and pharmacist told me it was nasty.

suebear
Veteran Member


Date Joined Feb 2006
Total Posts : 5698
   Posted 5/27/2009 4:56 PM (GMT -6)   
Now is a great time to invest in real estate so if you have your heart set on purchasing a home pursue that dream!

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 5/27/2009 4:58 PM (GMT -6)   
I did golytely and honestly didn't think it was that bad. I mixed in first thing in the morning and stuck it in the fridge so it would be ice cold. I tried some plain, it it basically just tasted like salty water. To make it more palatable, I added Country Time lemonade mix (a big spoonful) to each glass. I didn't use the flavor packets that came with it because they had artificial sweetners and those irritate my stomach.
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Eased for ~3 weeks in December, possibly b/c of probiotic use?
Returned in January 2009 (with a vengeance), diagnosed with pancolitis on January 30.
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa nightly, Culturelle probiotic, and Zoloft (25 mg).


sickofitall
Regular Member


Date Joined May 2009
Total Posts : 251
   Posted 5/27/2009 5:28 PM (GMT -6)   
You could say I feel the same way... been crying for days now but I really think its the prednisone bc I never cried before.  Normally I am very much a suck it up and deal with it person.  
 
I was on vacation in December 2008 and as soon as I came home I've been sick ever since.  I have colitis but they dont know why even after 2 colonoscopies, 2 CT scans, 2 ER visits and 2 gastroenterologists.  I had horrible side affects from every drug they gave me including prednisone, which had severe side affects: cant walk, severe joint pain, stomach pain and to top it off I'm crazy now.  They gave me prednisone bc they don't know what else to do.   So several thousand dollars later and I feel worse with no diagnosis. 
 
Anyway just wanted to vent with you.  I feel your pain.
 
about the drink... I found it best to refrigerate, i didnt add all the water, bc you will have to drink it all, fill it up almost to the line, and chug it as fast as you can.  I never added anything else just used the flavoring they had. 
 
 
 
 

Just finished prednisone taper of 40mg in 6 weeks.  We'll see if it works.


quincy
Elite Member


Date Joined May 2003
Total Posts : 31006
   Posted 5/27/2009 7:13 PM (GMT -6)   
Jenn C...Regarding the Gotlyely....You have to mix it the night before the clean-out and put it in the refrigerator.
Personally, it's better without a flavour....but I do use a straw, so I don't taste anything or burp up any taste at all. I did use flavour in a few of the glasses the first time...ugh..never again.

You can eat a light breakfast and lunch the day of the clean-out (which is one reason I like using it. Start it at 5:00 at the latest in the evening.

I've done 6 purges with the gallon prep....one with fleet, and I'll take the gallon prep over anything else.

Pour your first glass 15 minutes before you drink it, use a straw and put it at the back of your mouth and drink it all. Pour the next glass, set the timer for 15 minutes...until you're at the end of the gallon.

To be bad...I always pour out the last glass...

Anyway, that's how it works for me...

It's very understandable that you're having an overload of emotions considering your life situation. It's scary especially when your health is involved. It's uncertain when the answers don't match what you're going through.

I'm curious what symptoms you're having at this time...can you expand?A week isn't too long to wait for answers.
As well, the scope itself isn't as bad as it seems. The purge is the worst part to me.

Keep us posted
quincy
*Heather* Status: mild flare enemas tapered to every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 x2 daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


ithurtsmom
Regular Member


Date Joined Nov 2006
Total Posts : 289
   Posted 5/27/2009 11:36 PM (GMT -6)   
Ask your doctor about using OTC Mirilax for your prep. 

Joan
 
Daughter 7, UC
Asacol 2X2 plus 1x daily
Omega 3
Folic Acid 1000mcg.
Fiber
Probiotics
calcium
 


Pitz
Regular Member


Date Joined Jul 2007
Total Posts : 84
   Posted 5/28/2009 12:36 AM (GMT -6)   
I just used the Miralax w/Gatorade last week. This was the best one I've tried. Previously I've used the Fleet phospho and Golytely - hated them both!

Ulcerative Pancolitis (dx'd 6/2002)
Pentasa (4gm/day); Prednisone 5mg am, 5mg pm; Aranesp injection every week for anemia;
Lialda 4 tabs 1x/day; Rowasa 2x/day; started iron infusions 7/18/08; started Remicade 11/12/08; blood transfusions when hemoglobin drops to 8.0;
6-MP (discontinued as it lowers my white count)
Immodium-AD (occasionally)
various meds for other conditions


IndianaUC
Regular Member


Date Joined Feb 2007
Total Posts : 212
   Posted 5/28/2009 10:28 AM (GMT -6)   
My mouth is watering(like it does before I vomit)just thinking about the Fleets and that stuff. Blech!

If want a cheer up then go to youtube and search for Billy Connolly talking about his colonoscopy. I posted the link in another thread, but I don't want to spam it all over the boards. That will cheer you up quite a bit. I know the prep can be stressful, but there really is no need to get worked up over it. We've all done it at least once here on the boards and we're all still alive and kicking. It will be over soon enough. Just keep close to the bathroom. The week following your colonoscopy will be the best week ever. Why? Well as anyone else can attest to, you'll feel lighter and more refreshed. Just wait and see. Look ahead to that time....knowing how good you'll feel after. Focus on that.

$200 is the normal out of pocket fee for the first time visit to a GI. I had to pay that once and now each visit is $80. The colonoscopy is going to be more expensive, but you can make arrangements with the hospital to pay it over time. Just talk to the financial department afterwards.
- DXed with "left sided" UC in 1998. DXed with "proctitis" Oct. 2007
- Sulfasalazine 3 500mg tabs twice daily
- 500mg Vitamin C, 1 Multivitamin, L-Glutamine
- Max Acidophillis EC Capsules 350Mg(7 types of bacteria with over 42 billion viable cells) with 50 Mg colostrum & 50 Mg FOS(fructo-oligosaccharides)
- Experimenting with this or that on occasion. Always open to new ideas.
- Colonoscopies - 2 (Due for my next one ASAP)
- Canasa 1000mg @night. Started Oct. 23, 2008
- Niferex-150 Forte 1 capsule 2x Daily

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