I started Remicade in Nov. '08. It worked for me about
3 days later. However, it's not working so good for me now. I started flaring in Feb. with the big D since then, but not a lot of blood. I had a colonoscopy last week which showed severe UC, so my Remi was upped to 10mg (just had it yesterday). I don't know if it was the Remi or other issues I have (anemia, low hemoglobin), but last night and this morning I had three pretty bloody movements. I slept most of the day as I felt light-headed when up. I've been drinking lots of water, though, too, in case I've gotten dehydrated. I see my hematologist tomorrow. My GI also consulted with a couple other docs and is sending me to another specialist that has a study going for some new drug. Don't know what it is, but I don't know that it will work out, anyway, as I'm so sick and really can't risk getting the placebo. We haven't discussed how long we'll try the Remi before heading for surgery, but I'm hoping it does kick in. I'm so sick of this disease!
Ulcerative Pancolitis (dx'd 6/2002)
Pentasa (4gm/day); Prednisone 5mg am, 5mg pm; Aranesp injection every week for anemia;
Lialda 4 tabs 1x/day; Rowasa 2x/day; started iron infusions 7/18/08; started Remicade 11/12/08; blood transfusions when hemoglobin drops to 8.0;
6-MP (discontinued as it lowers my white count)
various meds for other conditions