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Liza D
Regular Member

Date Joined Apr 2009
Total Posts : 166
   Posted 5/28/2009 7:28 AM (GMT -6)   
So, I just had the J pouch on Friday and life is good. I submitted an essay to CCFA for a contest and am a semi-finalist!! Things are really looking better. The hardest part is not the bag but sitting up and walking around without feeling like everything is going to fall out!

I spent a lot of time deciding on whether or not to do the surgery and I am so happy I did it. I have three months with this bag and then I'll be more normal than I was with my colon. I hope everyone is able to find the strength to get through their flares. It is so hard but we are the strong ones and we can do it.

Good luck everyone!!
UC (Pancolitis... 90%!) December 2001
Arthritis (2003)
Upper GI Ulcer (2006)
Osteopenia (2008)
Depression/Anxiety (2002)

Meds:Bump up every couple years... You name it, I've used it! Sulfasalizine, Asacol, Rowasas, Pentasa,
Remicade, 6mps... And now it looks like the once daily Lialda taken twice a day isn't enough...
Here comes Humera.

Forum Moderator

Date Joined Dec 2008
Total Posts : 15909
   Posted 5/28/2009 11:30 AM (GMT -6)   
Congratulations. it sounds like you're healing wonderfully. I hope you win the contest. Goodluck!
Diagnosed with mild proctitis in March 2007: Treated with Canasa (as needed)
December 08: Began treating with Asacol 400mg (9/day) + Canasa 2x/day - Anemic
May 09: Off Canasa, taking Asacol (9/day)
Back on Canasa every other night + Asacol (9/day) + Probiotics + Iron
Reducing to 6 Asacol/day + Canasa at night + Probiotics + Iron - So far so good!!!

Veteran Member

Date Joined Mar 2008
Total Posts : 678
   Posted 5/28/2009 11:33 AM (GMT -6)   
Glad you are doing so well!
32 yr old female
Mild Pancolitis
I've had UC since 2000 but was in remission for most of those 8 years med free
Cannot tolerate mesalamine - starting 6mp soon?

Forum Moderator

Date Joined Apr 2004
Total Posts : 23551
   Posted 5/28/2009 11:59 AM (GMT -6)   
I'm glad things went well and I hope you win also! :)
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-second series starts 2/17, OA in my fingers -Celebrex, Tylonel Arthritis and Voltaren Gel
To help Healingwell - click here: DONATE


Veteran Member

Date Joined Feb 2009
Total Posts : 7150
   Posted 5/28/2009 12:24 PM (GMT -6)   
Good luck! I hope you have a good three months with the bag then heal quickly after your final surgery!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Eased for ~3 weeks in December, possibly b/c of probiotic use?
Returned in January 2009 (with a vengeance), diagnosed with pancolitis on January 30.
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa nightly, Culturelle probiotic, and Zoloft (25 mg).

Scrap Girl
Veteran Member

Date Joined Jan 2007
Total Posts : 653
   Posted 5/28/2009 12:30 PM (GMT -6)   
Good luck and keep us posted on your recovery.
Diagnosed with UC in Feb. 2005
Colazal (9 a day)
Folic Acid

New Member

Date Joined May 2009
Total Posts : 13
   Posted 5/28/2009 12:52 PM (GMT -6)   
Good luck on the essay.  I've been curious about what the pros and cons of surgery are.  Will you have to wear a pouch forever?  Will you be able to play sports?  Is there anything you'd like to share that isn't commonly known?
Sorry I'm so nosy, but my GI said that if I don't respond well to Remicade, surgery might be the way to go for me.  I seem to be doing better after my first treatment, but it's still something that worries me.  Anything you can share would be appreciated.
Again, good luck!! :-)
Diagnosed 2004
Prilosec (wicked heartburn)
Remicade - 1st treatment 5/18/09

Veteran Member

Date Joined May 2006
Total Posts : 619
   Posted 5/28/2009 3:37 PM (GMT -6)   
I'm glad to hear you're happy with your decision. I am currently in remission on Remicade, but it doesn't last all the way to the next infusion, I'm on a six week schedule. So, I am saving my money so that I can take the time off for recover (I'm self-employed -- no work, no income) without stressing about the expenses. I am just sick of being sick and being on all these meds, so hearing good news about the surgery really makes me feel so hopeful.

47 yr old female, dx'd UC April 27, 2006; mild arthritis in lower back, dx'd May 2008; Osteopenia dx'd 6/08 Finally achieved remission mid October 2008!!

15 Remicade infusions, current scheduled every 6 weeks: 1st: 7/21/07; most recent: 4/25/09; Current meds & supplements: Lialda, 4 tabs in the morning; Xanax as needed (rarely); Rowesa and/or Canasa; multivitamin w/folate; Culturelle; Fish oil capsules, calcium chews and/or Tums; Vitamin D;

Past meds: Prednisone 4/06-4/08; Entocourt EC; Asacol; Colazal; Venofer (iron) injections Dec '07; Imuran (extremely bad reaction 2/07); Protonix; Lexipro

Elite Member

Date Joined May 2003
Total Posts : 30212
   Posted 5/28/2009 3:43 PM (GMT -6)   
Wow Lisa....congratulations on your success of being a semi-finalist in the essay contest. I do hope you WIN!!!

It's awesome to hear your perspective of life is good after your surgery. Wishing you a speedy recovery during step one.

You'll now have to chage your siggie!

Be well,
*Heather* Status: mild flare enemas tapered to every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 x2 daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

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