death from IBD

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Hellokitty
Veteran Member


Date Joined Mar 2009
Total Posts : 765
   Posted 5/28/2009 3:35 PM (GMT -6)   

I was wondering if you can die from colitis? My dads boss did die of chrones, so I presume you can die of colitis as well. Has anyone heard of this? Let me know as I am a bit worried about what future I will have. I’m feeling better now that I am on a new diet but I wonder how long it last.


Female 32 years old
 
Diganosed ulcerative colitis November 2007
Present medication- 1/2 X 500mg pentasa in the morrning= 250g pentasa (I reduced this to see how my diet will effect me) and 1 X250g Asacol every other evening
Diet- Tried raw food diet with 80% raw foods, found some pro's and cons. Started to add more products to keep up weight as mine did not balance. Still eating raw spinage and still am combination eating. No dairy No gluten.  
 
Other medical problems- Born with asthma- no medication taken for this.


Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2105
   Posted 5/28/2009 3:41 PM (GMT -6)   
A person who is obese is at a greater chance for death than I am with just having UC (unless I was obese with uc, lol). You can die from just about anything, so why worry? A small rusty nail can kill you in the right conditions.
Proctitis DX 1999, Pancolitis DX 2008
Golimumab study (100mg every 4 weeks)
L-Glutamine 5000 mg + 600 mg pyridoxal alpha-ketoglutarate
Probiotis/VitD3 5000IU+Ca/1000mg DHA


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 5/28/2009 3:41 PM (GMT -6)   
No need to fear. The chances of that happening are almost impossible. The only way I can see if someone died of Uc is from the complications that arose. But they would have to be pretty severe and for a long time such as chronic D (dehydration) or anemia.

The chances of someone dying from Crohns is slim too and the same things can apply. Of course CD is more serious because of the possibility of bowel preforation but something like that would have to have been manifesting for a long time. My mother died from the complications of Crohns and obesity. She just had a moronic doctor and she went undiagnosed until the time of her death which ultimately was due to sepsis (due to bowel preforation) leading to a heart attack.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-second series starts 2/17, OA in my fingers -Celebrex, Tylonel Arthritis and Voltaren Gel
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kretinist
Regular Member


Date Joined May 2009
Total Posts : 33
   Posted 5/28/2009 3:47 PM (GMT -6)   
Not trying to be an alarmist but UC can cause hypercoagulopathy, where your blood clots more easily. 
 
My son had a stroke six days after his UC dx at the age of seven.  This was caused by a clot that burst and bled.   
 
So I guess UC is feasibly fatal. 
Mom to:
 
Number One Son -
Sigmoidoscopy followed by full bowel study 3/2008
DX with ulcerative colitis 3/2008
Blood transfusion 3/2008
Hospitalization for two weeks
Stroke caused by colitis 3/2008
ICU for two weeks
Second blood transfusion
Rehab in-hospital for two months
Colonoscopy 6/2008
Not in remission
 
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30601
   Posted 5/28/2009 3:48 PM (GMT -6)   
It would be from "complications of" more than the disease itself.

There's a lot to say for having things controlled.

CD is a disease that goes deeper and can affect the entire depth of the intestinal walls...and it can show up anywhere from mouth to anus...to controling it and dealing with possible fistulas, infections, blockages, etc would be necessary.

With UC, as possibly with CD, there are extraintestinal disease linked....but as with everything, the key is to have things dealt with at early stages.

Medications can cause side effects that can affect organs....so, that wouldn't be directly from the disease itself.

I wouldn't worry....focus more on feeling good and recognising symptoms at early stages and deal with them quickly.

quincy
*Heather* Status: mild flare enemas tapered to every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 x2 daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


Hellokitty
Veteran Member


Date Joined Mar 2009
Total Posts : 765
   Posted 5/28/2009 3:51 PM (GMT -6)   
Thanks for your answers. That makes me feel more positive.
Female 32 years old
 
Diganosed ulcerative colitis November 2007
Present medication- 1/2 X 500mg pentasa in the morrning= 250g pentasa (I reduced this to see how my diet will effect me) and 1 X250g Asacol every other evening
Diet- Tried raw food diet with 80% raw foods, found some pro's and cons. Started to add more products to keep up weight as mine did not balance. Still eating raw spinage and still am combination eating. No dairy No gluten.  
 
Other medical problems- Born with asthma- no medication taken for this.


quincy
Elite Member


Date Joined May 2003
Total Posts : 30601
   Posted 5/28/2009 5:49 PM (GMT -6)   
Knowing the facts of the disease, how it affects you and learning symptoms of your flares as early as possible and dealing with them is really the key.

At least, that's what's worked for me in the past 20+ years.

I do have UC-related liver disease....connected, but separate. It's fatal, but not terminal...go figure. Early stages, and I hope it stays that way. I can die from something else before it gets me.

Autoimmune disease likes to come with company...

Info is scary, but really....know what you have, knowledge is power, which in turn is positive.

quincy
*Heather* Status: mild flare enemas tapered to every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 x2 daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 

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