Post surgery people

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Date Joined Nov 2008
Total Posts : 63
   Posted 5/28/2009 9:27 PM (GMT -6)   
Who have had the ileoanal reservior operation, the j pouch to restore the natural way of using the restroom. Did you have yours done all in one operation? My surgeon said it can be done for some people if they are in good health or something like that.

My main concern is the number of times using the bathroom post op. She said a lot of people can end up using the restroom 8-9 times a day, while others go 4-5 times a day. I could live with 4-5 but 8-9+ seems like a lot... I'm probably going 3-5 times a day right now while on Humira and it's not that bad and doesn't interfere, and the consistency right now sounds like what it may be post op from the descriptions I've heard.

Does anyone know how difficult this surgery is in comparison to others? I'm wondering if it's worth going to a highly ranked hospital like the Mayo or going to one ranked 7th best for digestive disorders. If the operation isn't that difficult maybe a 7th best hospital would be just fine, granted the surgeons are each individuals and I don't really know how to go about researching them.

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Date Joined Feb 2006
Total Posts : 5698
   Posted 5/29/2009 7:39 AM (GMT -6)   
I had jpouch surgery in 2-steps. I opted for 2 steps as I was pretty ill at the time. I also was on prednisone which can be problemmatic for healing which is another reason to have it done in stages. I think frequency is an issue that is very misunderstood for prospective jpouch patients and for good reason. How often per day do you urinate? Do you know? I don't know how often I urinate but most times I urinate my pouch empties. Emptying a pouch is as quick and easy as urinating. There are not long periods painful times sitting on the toilet like there is with a colon/rectum. Frequency never gets in my way and I do 100-200 mile hikes. In fact when I am on long distance hikes I notice that people with colons stop to use the bushes more than I do!! With a jpouch there is no urgency either so you can comfortably hold it for several hours after you have recovered enough from surgery. There are a lot of great jpouch surgeons out there; you might not need to travel to the Mayo. Go to and as for surgeon recommendations in your area. I live in a small town and traveled to a metropolitian city 2 hours away for my surgery. I never would have had it in my town so travel was necessary and worth it. You definitely want a surgeon who has a lot of jpouch experience. The Mayo is a great choice but there could be others closer to home. Do you research!

dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free

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