I had jpouch surgery in 2-steps. I opted for 2 steps as I was pretty ill at the time. I also was on prednisone which can be problemmatic for healing which is another reason to have it done in stages. I think frequency is an issue that is very misunderstood for prospective jpouch patients and for good reason. How often per day do you urinate? Do you know? I don't know how often I urinate but most times I urinate my pouch empties. Emptying a pouch is as quick and easy as urinating. There are not long periods painful times sitting on the toilet like there is with a colon/rectum. Frequency never gets in my way and I do 100-200 mile hikes. In fact when I am on long distance hikes I notice that people with colons stop to use the bushes more than I do!! With a jpouch there is no urgency either so you can comfortably hold it for several hours after you have recovered enough from surgery. There are a lot of great jpouch surgeons out there; you might not need to travel to the Mayo. Go to www.j-pouch.org and as for surgeon recommendations in your area. I live in a small town and traveled to a metropolitian city 2 hours away for my surgery. I never would have had it in my town so travel was necessary and worth it. You definitely want a surgeon who has a lot of jpouch experience. The Mayo is a great choice but there could be others closer to home. Do you research!
dx proctitis in 1987
dx UC in 1991, was stable until 1998
1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics
2000 lost all my B-12 stores and became anemic
2001 opted for j-pouch surgery- now living life med-free