Imuran Preg going great!

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tooth fairy
Regular Member


Date Joined Jan 2008
Total Posts : 98
   Posted 5/29/2009 5:39 AM (GMT -6)   
I had my 20 week ultrasound yesterday for this pregnancy, my first while on UC drugs including imuran. Just thought I'd share that our little girl (we have two boys already, so this was a surprise!) looked absolutely perfect. She had no growth abnormalities, her heart and brain and spinal cord and palate all looked perfect. And my UC? what UC-I'm feeling fantastic.

At any rate, so far, so good. Just wanted to put a happy (so far!) story on the board for those women contemplating pregnancy with these icky UC meds. I'm being followed by my regular OB, with a high-risk doc available on a consult basis. (we haven't needed her yet.)

Just thought I'd put our happy story out there for those of you thinking of pregnancy while "on drugs!" -Erica
Erica, 32
Pancolitis, diagnosed July 2006, at age 29
(Colonoscopy January 2008 showed active disease just in sigmoid and below!)
Imuran & colazol daily; Rowasa and/or canasa rectal meds as needed for maintenence
Currently pregnant-due October 2009


AMK77
Veteran Member


Date Joined Mar 2008
Total Posts : 678
   Posted 5/29/2009 7:25 AM (GMT -6)   
That's wonderful!! Congrats!! Always good to hear happy stories. :-)
32 yr old female
Mild Pancolitis
I've had UC since 2000 but was in remission for most of those 8 years med free
Cannot tolerate mesalamine - starting 6mp soon?


Lynn27
Regular Member


Date Joined May 2005
Total Posts : 351
   Posted 5/29/2009 8:00 AM (GMT -6)   
Glad to hear things are going well with you erica....Other than my slight flare the baby is doing absolutly great. I had my 23 week US yesturday and he is growing nice and strong and everything looked good....his brain, heart, everything.
Ulcerative colitis (whole colon)
since 2002
 Feeling well....as normal as we can I guess!
 
 
  • 6MP 50mg daily
  • Rowasa enemas when needed 
  • Flinstone vitamins
  • Asacol 3 pills 3 times a day


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 5/29/2009 10:13 AM (GMT -6)   
Yay! :)
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Eased for ~3 weeks in December, possibly b/c of probiotic use?
Returned in January 2009 (with a vengeance), diagnosed with pancolitis on January 30.
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa every other night, Culturelle probiotic, and Zoloft (25 mg).


Mommy pooh
Regular Member


Date Joined Apr 2008
Total Posts : 131
   Posted 5/29/2009 1:15 PM (GMT -6)   
Great for me to hear. I am having my period now and not starting back on my birth control. I'm very excited and hopeful for a great second pregnancy soon. I love hearing from the healthy mommies and mommies-to-be because it gives me so much encouragement that I am not alone.
  • 26 years old, married, Stay-at-home Mommy to 2 year old daughter 
  • Ulcerative Colitis since Sept. 2004
    • 1st flare Sept-Nov 2004
    • 2nd flare Aug. 2007-July 08 
  • Currently taking:75mg 6MP, 4 Lialda, Loestrin 24, Allergy meds., Digestive Advantage Sustenex, Maxalt when I get a migraine, Zanaflex to prevent migraines, and allergy shots once a month 
  • 10/6/08 Found a 1cm kidney stone in right kidney.  Had the stone blasted and passed the fragments.

 


Supa
Veteran Member


Date Joined Jul 2008
Total Posts : 748
   Posted 5/29/2009 1:42 PM (GMT -6)   
I am so happy for you, and thank you for posting a happy story of pregnancy and UC! I wasn't diagnosed until after my youngest, so I haven't gone down this path yet, and I am so nervous to do so, even though I hope to be able to. (I am hesitant mostly because I will get kicked out of my Humira trial, and it is working so well that change seems like something I should only do if we just can't fathom the idea of not having another baby right now) I hope that when we try for number 3 (assuming that we do-fingers crossed), I will have a success story as well!

CONGRATS on the baby girl!!!! That is wonderful, and I am sure you will love having a girl!! (I adore mine) I'll be looking for some blue dust from you if/when we try for number 3 here! :)
Laura
 
33 years old, stay at home mom of 2 girls, ages 3.5 and 2.5
 
Diagnosed in 2007
Currently on:
Asacol 6pills/day
Biweekly injections for Humira clinical trial-going well so far!!
Canasa suppositories-1000mg nightly for recent flare


herbalgerbals
Regular Member


Date Joined Feb 2009
Total Posts : 85
   Posted 5/29/2009 4:08 PM (GMT -6)   
Thats good.. but I think thats an unfair risk for the child... these are heavy medications, was it not possible to wait till off such heavy medications?

fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 5/29/2009 5:32 PM (GMT -6)   
herbalgerbals, that's a pretty negative thing to post. This forum is intended to support each other, not to judge each other. There's good information suggesting that Imuran is relatively safe in pregnancy and that it's better for the mom to be on that than to be in a flare while pregnant. Also, from what I've read, the problems that occurred from immunosupprent drugs during pregnancy were in transplant patients, and they take much higher doses than UC patients.
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Eased for ~3 weeks in December, possibly b/c of probiotic use?
Returned in January 2009 (with a vengeance), diagnosed with pancolitis on January 30.
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa every other night, Culturelle probiotic, and Zoloft (25 mg).


herbalgerbals
Regular Member


Date Joined Feb 2009
Total Posts : 85
   Posted 5/29/2009 5:53 PM (GMT -6)   
take it as you wish.

Supa
Veteran Member


Date Joined Jul 2008
Total Posts : 748
   Posted 5/29/2009 7:47 PM (GMT -6)   
I agree with fruitgirl, herbalgerbals. And for some of us, waiting until being off of these heavy meds just isn't an option, as that day may never come. Really, for some of us, it comes down to not having more children (or any at all, for those who haven't started a family yet), or taking the risks involved. Of course it isn't ideal, but then living with UC isn't either.

I am certain that Erica is well informed about the risks involved in taking Imuran during pregnancy, and has carefully weighed all of this in conjunction with her doctors.
Laura
 
34 years old, stay at home mom of 2 girls, ages almost 4 and 2.5
 
Diagnosed in 2007
Currently on:
Asacol 6pills/day
Biweekly injections for Humira clinical trial-going well so far!!
Off of canasa because of severe joint pain (side effect)


tooth fairy
Regular Member


Date Joined Jan 2008
Total Posts : 98
   Posted 5/30/2009 6:31 AM (GMT -6)   
Herbalgerbal, thanks for your post. That's a fair question that we wrestled with for about 2 &1/2 years as we contemplated this pregnancy. I've been advised that I'm on my current cocktail of drugs as a permanent solution, or until modern medicine makes something better available, or until I have surgery.

My first flare came during the 3rd trimester of my second pregnancy (I didn't know I had UC), so unfortunately I am aware of the reality of what can happen if I go off my meds while pregnant. It wasn't pretty then, and I'm incredibly lucky to still have delivered a premature, but ultimately very healthy, little boy. I entered the pregnancy weighing about 125 lbs, and weighed 128 the day I delivered due to the nasty nature of my flare. I spent a good portion of the last week sitting in the bathtub. I couldn't keep anything in my body, it all came out a mix of water and blood within about 10 minutes of eating or drinking anything.

My husband and I discussed our situation at length with a number of different doctors: high risk OB's, GI's, and pediatricians, and also my own internist and a number of people in research fields. Full disclosure: my husband is an internist, so we did a lot of emailing friends from med school and residency, and using them as contacts to talk to doctors all over the country.

Ultimately, I discovered that the biggest risk to any pregnancy for me was a UC flare, not any of the medications I was taking. Flares while pregnant are notoriously difficult to control, and I was at risk to either get myself wickedly sick or lose the baby. All of the medicines I take do pose a slight risk to the fetus. I think I read everything on medline, and discovered that the scariest drug, imuran, poses mostly risks of an early miscarriage. Women who got babies to term on imuran had the same # of healthy babies as non-imuran moms.

For what it's worth, I did have a miscarriage in fall '08 when I was around 7 weeks pregnant. I don't know if the imuran was the cause, or if, like many early pregnancies, it just "wasn't meant to be."

We have entered this pregnancy with a lot of anxiety, but as each week and test roll by with good news, I feel more and more confident that we made the right decision. This was not something we entered lightly, and I know a lot of other people are out there that are still in the "asking questions" phase. I didn't think enough positive stories were out there, hence this thread.

(and Lynn, congrats on your little mister! We have two boys and I adore them. You're in for a treat!)

-Erica
Erica, 32
Pancolitis, diagnosed July 2006, at age 29
(Colonoscopy January 2008 showed active disease just in sigmoid and below!)
Imuran & colazol daily; Rowasa and/or canasa rectal meds as needed for maintenence
Currently pregnant-due October 2009


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6448
   Posted 5/30/2009 10:32 AM (GMT -6)   
Awesome news, Erica! So happy for you...always glad to hear the updates..and a happy one! :-)
Carol

Remicade - will have my 29th infusion on July 8
Vitamin B-12/Biotin, Probiotics, Vitamin D-3 (2000 IU)
 
Co-Moderator for the UC Forum
 
 


kazygirl
Veteran Member


Date Joined Sep 2007
Total Posts : 955
   Posted 6/1/2009 1:49 AM (GMT -6)   
thats good to hear! i just today got back from dr's and finally said 'yes' to immuran.
ive been saying no cuz we are trying to have babies, but i have just been hit with the most severe case of UC ever.
im puking at least 80% of the times i go to the toilet, which is 20+ times a day and every single time there is tons of blood.
im in so much pain its horrible, i cant eat, i feel awful and it just sucks so bad i could cry right now.

so, dr finally talked me into it. he said its better to have a baby on immuran than have a baby in my condition without it.
and it was this post i read before i left today that helped me say yes.

so, i guess we'll see how i go.
and toothfairy, please keep us (me) posted on your progress etc.. it would most appreciated from a nervous freaked out maybe soon to be mummy >_<
steph - 32 - female - gold coast australia - UC since 2000
was in remission until i quit smoking 3 weeks ago  >_<
mesalazine granules 3g x1 a day (much nicer than a million tablets a day)
just finished 3 months of prednisolone
quercertin tablets
tumeric capsules
pre-conception vitamins and minerals (cuz we trying to make a baby)
i still eat what i want, when i want, if i feel like eating at all :(
 
 
 


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 6/1/2009 10:21 AM (GMT -6)   
Good luck kazygirl! I hope that you are able to get pregnant quickly and that you have a wonderfuly, healthy pregnancy!

If you're interested at all in charting (tracking your temp and other "girl stuff" to determine when you're ovulating), let me know and I can recommend a good book and website to help you out with that. I did it when DH and I were trying to conceive and it worked really well. I'm a science dork, so I found it really interesting!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Eased for ~3 weeks in December, possibly b/c of probiotic use?
Returned in January 2009 (with a vengeance), diagnosed with pancolitis on January 30.
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa every other night, Culturelle probiotic, and Zoloft (25 mg).


AmyWaffle
Regular Member


Date Joined Jun 2009
Total Posts : 173
   Posted 6/4/2009 4:43 PM (GMT -6)   
I have been lucky enough to have two healthy baby girls while taking 175 mg imuran. Like tooth fairy here, we did a lot of research in medical journals and discussions with my OB and GI and concluded that there was not a real risk to the baby.

I did learn, rather abruptly after delivery of my first, that you CANNOT breastfeed on imuran--it passes into the breastmilk and suppresses the baby's immune system. But that's what formula's for I guess!

Thanks for sharing your good news! It cheered me up after what's been a bad UC day. (it's the little stuff, you know?)
UC since 1996 (age 20)
Mommy of 2 sweet little girls.
My life is one big flare.


PSUDOC
Regular Member


Date Joined Jun 2007
Total Posts : 360
   Posted 6/8/2009 2:46 PM (GMT -6)   
It's unfortunate that some people have to look at the negatives. I know that most of us on these meds are well aware of how potent they are, and when we had our second, we consulted with GIs as well as high risk OBs, who all assured us that it would be OK to get pregnant as long as I was not flaring. Going off meds would cause a flare, and the risk of meds is less than risk of pregnancy with flaring. We had an extremely healthy baby and a great pregnancy -- well monitored, but no problems.

Glad to hear it's going so well for you. Good luck!

Mommy pooh
Regular Member


Date Joined Apr 2008
Total Posts : 131
   Posted 6/8/2009 3:24 PM (GMT -6)   
I have been doing online research into the breastfeeding thing. I am finding that there is a lot of research saying that the amount that passes through the breastmilk is VERY small. We are currently trying to get pregnant and hope for a healthy pregnancy for me and baby. I thought since breastfeeding didn't work out with #1 that I would have no feeling to try again, but I find myself kinda wanting to try again. Anyone on here breastfed with Imuran or 6MP? I think there is one person that has. I read a lot of posts but never remember who said what....sorry.
  • 26 years old, married, Stay-at-home Mommy to 2 1/2 year old daughter and currently off of BC pills
  • Ulcerative Colitis since Sept. 2004
    • 1st flare Sept-Nov 2004
    • 2nd flare Aug. 2007-July 08 
  • Currently taking:75mg 6MP, 4 Lialda, Loestrin 24, Allergy meds., Digestive Advantage Sustenex, Maxalt when I get a migraine, Zanaflex to prevent migraines, and allergy shots once a month 
  • 10/6/08 Found a 1cm kidney stone in right kidney.  Had the stone blasted and passed the fragments.

 


livinlife
New Member


Date Joined Jan 2009
Total Posts : 10
   Posted 6/8/2009 3:50 PM (GMT -6)   
I got pregnant right after I started getting a flare. I ended up hospitalized on IV steroids and have been on prednisone since Feb I think. I only have 2 more weeks left!! Whoo hoo!! I'm now 23 weeks pregnant and everything has come back good in regards to baby. Both my GI and OB are great and make sure everything I'm on is safe. (I'm also on Asacol 2.4gm twice a day). I'm finally in 'remission' and doing great. If you are looking to get pregnant, idealy, get healthy first. Or, if you are in denial like I was, just make sure your docs are aware of everything. Do your own research too. Just make sure the websites (if you choose the internet) are reputable. I was scared at the beginning, but after talking with my docs and researching the meds I am on, I felt much better. Even though we're stuck with this crappy disease, it doesn't mean we have to stop living.

Diagnosed with UC in 2006
Medications:
Asacol 2.5gms twice daily
Prednisone 40mg x 1 week, and tapering by 5mgs per week
 
 

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