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Hellokitty
Veteran Member


Date Joined Mar 2009
Total Posts : 765
   Posted 5/29/2009 3:32 PM (GMT -6)   

If you take less meds and keep your self in remission though diet, would you get less damages to your other organs. I know this seems like an obvious question but I am taking ½ of my pentasa tablet a day and my asacol every other day. But I am still on pentasa so I guess over several years I still can get side effects, even with a small dose.


Female 32 years old
 
Diganosed ulcerative colitis November 2007
Present medication- 1/2 X 500mg pentasa in the morrning= 250g pentasa (I reduced this to see how my diet will effect me) and 1 X250g Asacol every other evening
Diet- Tried raw food diet with 80% raw foods, found some pro's and cons. Started to add more products to keep up weight as mine did not balance. Still eating raw spinage and still am combination eating. No dairy No gluten.  
 
Other medical problems- Born with asthma- no medication taken for this.


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 5/29/2009 7:12 PM (GMT -6)   
Ive never heard of someone being on both asacol and Pentasa. My pentasa are capsules so I wouldn't be able to half them.
27 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night.  I take xanax prn for situational anxiety (aka no easy bathroom access). 


Hellokitty
Veteran Member


Date Joined Mar 2009
Total Posts : 765
   Posted 5/31/2009 1:20 PM (GMT -6)   
Yes I agree, I wondered why the doctor told me to take both. They are the same ingredient mesalazine.
Female 32 years old
 
Diganosed ulcerative colitis November 2007
Present medication- 1/2 X 500mg pentasa in the morrning= 250g pentasa (I reduced this to see how my diet will effect me) and 1 X250g Asacol every other evening
Diet- Tried raw food diet with 80% raw foods, found some pro's and cons. Started to add more products to keep up weight as mine did not balance. Still eating raw spinage and still am combination eating. No dairy No gluten.  
 
Other medical problems- Born with asthma- no medication taken for this.


quincy
Elite Member


Date Joined May 2003
Total Posts : 31004
   Posted 5/31/2009 3:29 PM (GMT -6)   
You're not on enough 5ASA meds...period. I'm not getting the process of what the doc is doing for you.

I've never heard of a 250mg asacol...is that a half of one asacol?

Would you mind clarifying my confusion....have you asked your doctor why you're not on enough meds?

q
*Heather* Status: mild flare enemas tapered to every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 x2 daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


Hellokitty
Veteran Member


Date Joined Mar 2009
Total Posts : 765
   Posted 5/31/2009 3:49 PM (GMT -6)   
Yea I take 1 asacol which is 250 mg The pentasa tablet I have only been taking 1/2. The doctor did not really give me great advice on how I should take these meds.
Female 32 years old
 
Diganosed ulcerative colitis November 2007
Present medication- 1/2 X 500mg pentasa in the morrning= 250g pentasa (I reduced this to see how my diet will effect me) and 1 X250g Asacol every other evening
Diet- Tried raw food diet with 80% raw foods, found some pro's and cons. Started to add more products to keep up weight as mine did not balance. Still eating raw spinage and still am combination eating. No dairy No gluten.  
 
Other medical problems- Born with asthma- no medication taken for this.


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 5/31/2009 4:14 PM (GMT -6)   
What do your prescription bottles say?
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Eased for ~3 weeks in December, possibly b/c of probiotic use?
Returned in January 2009 (with a vengeance), diagnosed with pancolitis on January 30.
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa every other night, Culturelle probiotic, and Zoloft (25 mg).


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 5/31/2009 4:18 PM (GMT -6)   
I just had another thought...my asacol bottle says that it it NOT to be crushed, cut, split, etc. That's because the coating on it is specially designed to not dissolve until it reaches the ileum. I'd be surprised if pentasa doesn't have a similar coating. You might be making the medecine pretty ineffective by cutting it in half, as the medicine will all be released in your stomach.
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Eased for ~3 weeks in December, possibly b/c of probiotic use?
Returned in January 2009 (with a vengeance), diagnosed with pancolitis on January 30.
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa every other night, Culturelle probiotic, and Zoloft (25 mg).


burnabygirl
Regular Member


Date Joined Jun 2008
Total Posts : 205
   Posted 6/1/2009 12:12 AM (GMT -6)   
Hellokitty said...
Yea I take 1 asacol which is 250 mg The pentasa tablet I have only been taking 1/2. The doctor did not really give me great advice on how I should take these meds.


I don't think you are taking enough medication. I'm in Canada. I take 1000mg of Salofalk (Asacol) tablets 3 times a day. It's my maintenance dosage and I'm somewhat in remission, no diarrhea, no cramping but occasional blood and urgency.

Wish you can get some advice from your doc soon.
Ulcerative proctitis diagnosed in July 2006. Medications: Salofalk enema nightly.
Remission from Nov 2006 to Oct 2007. Then a bad cold and a bad flare for 1 year till Nov 2008.
Pancolitis diagnosed in April 2008. Current medications: Salofalk enema, Salofalk suppositories, Salofalk tablets 1000mg x 3/day, Entocort enema (tapering).
Supplements: Calcium with Vitamin D, Vitamin B Complex, Vitamin C and psyllium capsules (Metamucil).


blueclassring
Regular Member


Date Joined Feb 2007
Total Posts : 385
   Posted 6/1/2009 12:15 AM (GMT -6)   
You technically cannot half Pentasa because of the special coating around it. It releases the medication when exposed to a specific GI environment. Crushing it/halving it would not deliver the medication to its proper location
Pharmacy Student, Class of 2009.  Diagnosed 8/99.  Suffered for almost 10 years.  I am currently on the Specific Carbohydrate Diet and am nearing remission.  I feel fantastic!    I have lost so many years to this disease.  I decided to become a pharmacist to understand these drugs, and to help fellow sufferers of IBD.  My goal is to open up a pharmacy and take care of my patients(particularly explaining what the drugs do to you), compound special medications, and have a great practice. HAVE YOU CONSIDERED THE SCD DIET? IT HAS PUT ME IN REMISSION AND I PLAN ON GETTING OFF THE ASACOL SOON TOO!  (In remission since 2/15/08)
Meds 3200 mg Asacol, 2.5 mg Prednisone.  Doc wanted to put me on 6-mp or Remicade, but I refused to take the medications!  For me, diet works...


Hellokitty
Veteran Member


Date Joined Mar 2009
Total Posts : 765
   Posted 6/1/2009 3:49 AM (GMT -6)   
The pentasa I have doesent have a coating. It is just a tablet. 1/2 should not make a difference as it is not a pill it is a tablet. The box says take 2 a day Maximum. So can I take a minimum is what I don't understand. The asacol says to use until the does runs out.

If this is not doing me any good then I don't know? I am doning 1 BM a day no blood no mucus. Im in no pain either. The only problem I am having is I do formed stools but the water around the poo is always brown and not clear. Which I think means my bowl has not abosorbed all the water from the poo.
Female 32 years old
 
Diganosed ulcerative colitis November 2007
Present medication- 1/2 X 500mg pentasa in the morrning= 250g pentasa (I reduced this to see how my diet will effect me) and 1 X250g Asacol every other evening
Diet- Tried raw food diet with 80% raw foods, found some pro's and cons. Started to add more products to keep up weight as mine did not balance. Still eating raw spinage and still am combination eating. No dairy No gluten.  
 
Other medical problems- Born with asthma- no medication taken for this.


quincy
Elite Member


Date Joined May 2003
Total Posts : 31004
   Posted 6/1/2009 11:01 AM (GMT -6)   
Hi...."the box says"...or do you mean the prescription label says?
 
 
Here's a link.  Apparently, one can cut them...as long as they're not chewed...these are for the tablets.
 
Kitty...you are NOT on enough medication, and you should also be on rectal meds.
 
Slowly increasing is a good process..however...you have a lot of room for increasing in small increments,
 
This is a link for Pentasa tablets and the prescribed dosages up to 4000 mg. ... that would equal 8 pills daily.
 
 
 
When do you see the doc next?  Did you express to him that you didn't want to be on lots of meds and were afraid of too high a dosage, etc?
 
It's great you're improving, however.
 
quincy
 
*Heather* Status: mild flare enemas tapered to every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 x2 daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


Hellokitty
Veteran Member


Date Joined Mar 2009
Total Posts : 765
   Posted 6/1/2009 11:08 AM (GMT -6)   
Thanks for your help. When i first went to see my GI doctor I was scared to be on meds that was true. The pricription lable says take 2 maximum. I m seeing my GP tomorrow and I am going to ask him to tell me what to take as I don't really know. I stopped taking a contraception pill after 7 yeas of taking it. I thought my body would be fine but now everything is going funny on me. I think It will effect my uc.
Female 32 years old
 
Diganosed ulcerative colitis November 2007
Present medication- 1/2 X 500mg pentasa in the morrning= 250g pentasa (I reduced this to see how my diet will effect me) and 1 X250g Asacol every other evening
Diet- Tried raw food diet with 80% raw foods, found some pro's and cons. Started to add more products to keep up weight as mine did not balance. Still eating raw spinage and still am combination eating. No dairy No gluten.  
 
Other medical problems- Born with asthma- no medication taken for this.


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 6/1/2009 11:19 AM (GMT -6)   
Take your prescriptions with you, so that your doctor knows exactly what you're on. It sounds like there are different forms of the meds, so it would be best to have them along with you.
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Eased for ~3 weeks in December, possibly b/c of probiotic use?
Returned in January 2009 (with a vengeance), diagnosed with pancolitis on January 30.
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa every other night, Culturelle probiotic, and Zoloft (25 mg).


quincy
Elite Member


Date Joined May 2003
Total Posts : 31004
   Posted 6/2/2009 3:34 AM (GMT -6)   
Hang tough...it takes a lot out of a body when there are hormonal changes such as going off the pill, periods or lack-there-of and UC with meds, etc.

I'm wondering if the pharmacist didn't read the prescription proplerly?
Didn't he/she ask you why you're on such a low dosage?

Keep us posted as to how the appointment goes.

I agree it's a good idea to take the meds with you so that he can see the label.

quincy
*Heather* Status: mild flare enemas tapered to every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 x2 daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


Hellokitty
Veteran Member


Date Joined Mar 2009
Total Posts : 765
   Posted 6/2/2009 8:28 AM (GMT -6)   
I just went to the doctor and told them what I was doing. I said I was taking ½ of the pentasa tablet. And an asacol every other day. The doctor said this was fine, and it leaves me room to move up if I need to. The tablets can be ½ that’s why mine have a line down the middle. Does pentasa look different in the states. I found a lot of durgs looked different in the states.
Female 32 years old
 
Diganosed ulcerative colitis November 2007
Present medication- 1/2 X 500mg pentasa in the morrning= 250g pentasa (I reduced this to see how my diet will effect me) and 1 X250g Asacol every other evening
Diet- Tried raw food diet with 80% raw foods, found some pro's and cons. Started to add more products to keep up weight as mine did not balance. Still eating raw spinage and still am combination eating. No dairy No gluten.  
 
Other medical problems- Born with asthma- no medication taken for this.


quincy
Elite Member


Date Joined May 2003
Total Posts : 31004
   Posted 6/2/2009 10:20 AM (GMT -6)   
but you're still not on enough meds....

did you ask the doctor about rectal meds? or was that your GP? Who prescribed them for you?

q
*Heather* Status: mild flare enemas tapered to every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 x2 daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


Hellokitty
Veteran Member


Date Joined Mar 2009
Total Posts : 765
   Posted 6/2/2009 11:12 AM (GMT -6)   
The gastro doctor per scribes them. The GP is just the a gernarel doctor. She said is the one who said everything was fine. She said it was fine to take the asacol which is a supository every other day. So the asacol is my only rectal med. I wont go back to see the Gastro doctor until the 22nd of July. My problem is they stuck me with this consultuant who does not know about IBD. They stuck me with her because I was stable. That was before my last flare. Now Im only stable because of the diet.
Female 32 years old
 
Diganosed ulcerative colitis November 2007
Present medication- 1/2 X 500mg pentasa in the morrning= 250g pentasa (I reduced this to see how my diet will effect me) and 1 X250g Asacol every other evening
Diet- Tried raw food diet with 80% raw foods, found some pro's and cons. Started to add more products to keep up weight as mine did not balance. Still eating raw spinage and still am combination eating. No dairy No gluten.  
 
Other medical problems- Born with asthma- no medication taken for this.

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