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imagine
Regular Member


Date Joined May 2009
Total Posts : 30
   Posted 5/29/2009 8:57 PM (GMT -6)   
I'm eighteen, had this disease since the middle of sixth grade, and the longest I've ever been in remission is probably a year (and that was on Remicade). Recently, it seems nothing has been helping me at all. I've been on every combo of meds possible--Asacol, prednisone, sulfasalazine, Remicade, Humira, Canasa, 6mp, probiotics--falling back on prednisone whenever I have a really bad flare.
 
I just got back home from college, and unfortunately, I'm having a really bad flare.
 
My doc says that we've pretty much exhausted all medical possibilities except for methotrexate, and after that, it'd prob be a good time to discuss surgery.
 
I suppose that would be just in time for my soph year of college (Whoopee!!)
 
But on a serious note...does anyone know of any alternative meds? I've been looking at boswellia, but i'm cash strapped; just looking for some ideas on combos before I go under the knife...
 
Thanks.

Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2105
   Posted 5/29/2009 9:01 PM (GMT -6)   
do sheldons diet and go on the vitamin E enemas to see if you can gain any control. One suggestion.
Proctitis DX 1999, Pancolitis DX 2008
Golimumab study (100mg every 4 weeks)
L-Glutamine 5000 mg + 600 mg pyridoxal alpha-ketoglutarate
Probiotis/VitD3 5000IU+Ca/1000mg DHA


imagine
Regular Member


Date Joined May 2009
Total Posts : 30
   Posted 5/29/2009 9:03 PM (GMT -6)   
sheldon's diet?
Diagnosed 2002(?)
Currently on: alternating doses of 6mp, 8 Asacol, weekly Humira, & 1000mg Canasa nightly


Katmom
Veteran Member


Date Joined Mar 2008
Total Posts : 1202
   Posted 5/29/2009 9:28 PM (GMT -6)   
Don't know Seldon's diet. Some have luck with the Elemental diet( basically predigested stuff). There is fecal transplantaion, Herbs like Tumeric and Haldi, antibiotics, or a few other alternative things you will find mentioned on this site. Keep reading.
In case surgery feels logical to you, there are many who have happier lives because of it. Hang in there.
Daughter,15 diagnosed 1-08 w/ UC .
Previous drug sampling: Asacol, Prevacid, Flagyl, Prednisone- 50mg to 0, 4 major flares '08.Hospital four x. Low residue diet,
6MP, Colazal , Cortifoam enemas,
Trying probiotics, Niferex, fish oil, Magnesium, Acupuncture.
Remicade 10mg per kilo@ 8wks, since 10-08. Still on 6mp and Colazal


julee70
Regular Member


Date Joined Oct 2007
Total Posts : 486
   Posted 5/29/2009 11:43 PM (GMT -6)   
I really feel for you. Sounds like you have been through an awful lot. To be able to stay in school with this disease is really an accomplishment. I hope you can take pride in that. :)

I've posted before about these, but here are my top "not-too-expensive" alternatives to taking lots of drugs:

1) hypnotherapy. (This website is about IBS (not IBD) and hypnotherapy but I had great success with taking classes with a doctor who trained with this researcher from UNC Chapell Hill: http://www.ibshypnosis.com/)

2) acupuncture. This costs a little more and it's tough to find a great practitioner. I had a near-miracle experience with acupuncutre but unfortunately, I didn't realize that I had to go every week to keep up the remission and after a year I missed nearly a month and then was back in a flare.

3) tylenol w/codeine. People will probably yell at me but my doctor says this is a perfectly reasonable way to control diarrhea. The codeine has constipation as a side effect. I take a half every night or every other night. But some people apparently get addicted, so you have to be really aware of what you personally can handle.

4) Sleep, exercise, and no processed foods. The food part is difficult, but if I at least cut down on processed foods, I feel like that's good enough.

Last, but this falls into the expensive category -- a complete vacation with zero stress and completely different food, air, everything. I swear that a trip to a beach resort put me back into remission once. I would definitely want to try that one before having surgery. :)
-------
UC for the last ten years
Current Meds: 6MP since 2006, Lialda, Asacol foam, Lomotil
Past Meds: You name it; I've tried it. (Asacol, Colazol, Pentasa, DiPentum, Rowasa, Canasa, Cortenema, sulfasalazine, Cortifoam)
Alternative treatments I have had success with: Acupuncture, Hypnotherapy


Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2105
   Posted 5/30/2009 2:02 PM (GMT -6)   
AM said...
sheldon's diet?


Use search buttom. Or can google Vitamin E enema and look at issue 64 threads
Proctitis DX 1999, Pancolitis DX 2008
Golimumab study (100mg every 4 weeks)
L-Glutamine 5000 mg + 600 mg pyridoxal alpha-ketoglutarate
Probiotis/VitD3 5000IU+Ca/1000mg DHA

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