Hi, Im new here and a bit confused. Im not getting any help and I could use ANY advice. Ive just barely come out of a scary bout of what is belived to be UC. Im still scred though Im tempoarely better.
about two and a half years ago I started having back pain, joint pain, Iritis, and other wierd problems. Im a young strong guy and I feel like Im falling apart. Then they also diagnosed my with fibromyalgia, but Its seems different. The thing I hate the most, seems to be UC. In the long run, its all weird, and its all getting worse with time. And Ive had almost no help, I cant find answers.
No complete diagnosis from my rhuem. I was offered methatextate or whatever. But I never started it yet as my grandma who has rhumitoid arthritis died from cancer after taking it for ten years, I fear liver damage after seeing what people with it have been through, and Im sensitive to some meds. So I dont know if this is what I should be doing. What if I take it and droping my immune does more damage than good.
about the possible UC. I once and a while would have weird, bad, scary urges to go about 5 or so years ago. Bad, scary, scary urges. Ive barely ever been constipated. Not the other, until recent. This was at first just Once in a while, mainly only when I was staying at my parents place. NOW, in this years its progresed to no longer going solid, and craps more frequently. At times very freaky, who wants to go to the ER for that? And Im on the public aid card. 29 and what kind of job can I have.
Anyways, I have bad craping, bad erge's to go. Lately I never go solid. Ive had like, puss, and clear fluid with the troubles. Ive told my GI nurses and practitioner. They just so, ok. They gave me two pro biotic samples. The vsl#3 one a day helped, the other wasnt. The When I was of the Vsl3 and on this lesser one. It got bad, like before, or worse. Im thin, I eat quite a bit to barely keep up my weight.
For these last very frightening, too real two weeks, I could barely eat, cramps lasted much of the day. And I was very sic fealing, even nausious. I was thinking, possible cancer too, and death in months. It felt nuked in my guts. I cut back on wheat and milk, and eat some. I was given more vsl#3 and some fiber. I droped ten very vital pounds. I have an ultra fast metabolism, and extrme low blood suger, as some part of it. When in goo shape, I eat like a pig to keep up with my 160 average. And Im still to thin. Im like 6'1. Thos year Im losing the battle. I cant eat like I did. Those two weeks, some days I didnt eat, other days I barely.
Ive gotten much better, for now. Thank god. If this keeps up, I will die, most horribly. It was bad. Im sure it will be worse.
I dont know how to afford the VSL3, but I cant go without again. Its a serios medicine. I even went solid,1 day the other day. I took two the day before. My fist docs, thought I had ankylosing sponndilits, UC is a symptom. And other things I have. But I at times feel like I have something wrong all over. Like some collegen type, conective tissue disease. Like Im falling apart all over.
The UC or whatever has been the scariest. That last bough had me thinking it was going to never stop, and I was soon to bite the dust. I wish I new more about methatextate. Is it worth it, does it help UC, I was offered it for the iritis.
I also had some stomach issues.
I was stressed bad in school and had ulcer type problems. Pain. Ive had in the past, weird intolerance to alcohol, and Ive thrown up when I havent waited and hour after eating before bead. These days my upper stomach is good, unless I quit taking my 300mg zantac, drink dark soda, or decide to drink alcohol. Banans also use to cause pain. I recently had my firts upper GI scope. Scared to all hell. They saw nothing. And I was given a crude attitude. Dont worry so much. And the doc was crude, short, and expected me to understand and rmeber him while still, very, very daised.
I was angry, I said Im still having problems, that are down right scary at times. Bad cramps and such. They werent worried. I told them Ive even had blood, and black stool at times. One negative stool test, and that made up their minds, nothing there. Its to bad my name isnt tom cruise, donald trump, or obama. People just dont care if your not important. Its cold. Im never like that.
They scheduled a later apointment. And they gave me some samples. I too. I go back to see the other doc, a lady one on the 15 of june. I fear the colinoscope, but I wish I had some proof. These docs arent taking me serious, about any of it.
So friends, please any help could save me, and help me spend more days with my kids, who dont have a real mother. And are going to be growing up in a rough world. Im the only wise and world smart person in the family who could get them to suceed of do well at something.
Im sorry about my gramer, I havent used computers much and I have a little glitch, like dislexia or such. I realy strugle hard with that. I have to look at one word six times to see it right. Im still pretty freaked. And not meuch else cares me. I realy apreceate anything, and info or advice. Thanks. Sincerely, Lee