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Trebbo
New Member


Date Joined May 2009
Total Posts : 18
   Posted 5/30/2009 7:24 AM (GMT -6)   
Hi all :)
 
I'm a 23 year old male from the UK and have been just-about-diagnosed with ulcerative colitis. I believe that I have been suffering for about a year, but have only experienced two particularly bad flare-ups, one in feb/march this year, one right now.
 
I've had very little support so far but I'm under the impression that it will come after my first colonoscopy. I have been prescribed some rectal foam enemas but if anything they seem to make things worse.
 
Whilst I don't have MUCH in the way of cramps, I have absolutley horrific bowel movements 4-5 times a day which are inconvenient, embarrassing and painful. I am losing a lot of blood through these which obviously makes me feel rather lethargic.
 
Changes in diet occasionally result in positive effects but these are too minor to be considered significant.
 
I'm lucky to have a very supportive girlfriend and a reasonably understanding boss but to be honest I'm pretty miserable about the idea of suffering from a chronic illness. I suppose I'll get used to the idea.
 
Not sure why I'm writing all this but as I'm so embarressed about the whole affair it's nice to be able to be open about it.
 
I have my first colonoscopy booked for the 20th. I will be conscious but sedated. How is it? Obviously I'm somewhat terrified but I'm sure I'll be reprimanded for this :P
 
Would be great to hear back from some of you.
 
Rob.

Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6448
   Posted 5/30/2009 9:15 AM (GMT -6)   
Hey Trebbo, and welcome to Healingwell! You can definitely be open and honest with your feelings here -- we've all been through the same experiences. This is a tremendously supportive group of people! I too have very understanding friends and family but I'm not sure folks can truly understand until they actually deal with the disease. The colonoscopy isn't so bad it's usually the prep before it and I'm sure most will agree! You are right; you'll get some questions answered after the colonoscopy which will help decide which meds are best for you. Is foam presently the only med you are on? Take care and again, welcome!
Carol

Remicade - will have my 29th infusion on July 8
Vitamin B-12/Biotin, Probiotics, Vitamin D-3 (2000 IU)
 
Co-Moderator for the UC Forum
 
 


Trebbo
New Member


Date Joined May 2009
Total Posts : 18
   Posted 5/30/2009 10:07 AM (GMT -6)   
yeah that's it... That's all i've been offered. I take fish oil and iron supplements but to be honest it's hard to tell whether that really helps or not. I'm more scared about the actual procedure than the prep as i'm used to having diarrhea all the time... Is it that much worse?

JoMarie
Regular Member


Date Joined Dec 2008
Total Posts : 55
   Posted 5/30/2009 10:44 AM (GMT -6)   

If it makes you feel any better, my (then 13 year old) son after having his colonoscopy with conscious sedation patted me and said, "Mom, you don't have to be worried when you get your colonoscopy.  It was really easy."  He didn't like to be on clear liquids the day before his test, but managed just fine.  Good luck with everything and hope you get clear cut answers soon...

Jo


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 5/30/2009 10:51 AM (GMT -6)   
Hi and welcome! I didn't think the colonoscopy prep was all that big of a deal. I mean, at the time, I was having URGENT diarrhea 15+ times a day, so the prep wasn't really any worse. The c-scope itself was a breeze, because I was really sedated.

I'd start taking a probiotic while you're waiting for your c-scope. Most of us on here are on them.
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Eased for ~3 weeks in December, possibly b/c of probiotic use?
Returned in January 2009 (with a vengeance), diagnosed with pancolitis on January 30.
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa every other night, Culturelle probiotic, and Zoloft (25 mg).


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 5/30/2009 8:04 PM (GMT -6)   
The prep is awful not because of the D (it's kind of nice to get cleaned out) but because the stuff tastes awful, all kinds of preps taste awful, but you have to drink, and drink...yuk.

I've always found the colonoscopies fascinating. My current doc knocks me out completely, sometimes I wake up a little but for the most part I'm out. My old doc kept me awake but really sedated. When I could focus, the pictures on the screen were so interesting! My current doc gives me a copy of the pictures. So, anyway, look at is as an adventure into your body!
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering. Asacol maintenance for 20+ years; used prednisone & Rowasa for flares.  Probiotics (Ultimate Flora, 50 billion), salmon oil (omega-3) when I can remember. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; eliminated wheat/gluten from my diet.
Bad flare in March, used prednisone. Humira denied, started Remicade 4/12 and doing great~ learning what normal is~ wow


mumbles
Regular Member


Date Joined Dec 2008
Total Posts : 199
   Posted 5/30/2009 9:28 PM (GMT -6)   
The prep isn't so bad. For my second colonoscopy i took ducolax and mirolax mixed with gatorade, and it was just like drinking a lot of gatorade. There are tons of people here that can help with everything from stress to alternative meds, and it seems that there are a lot of new members in the last couple weeks that are going through the same thing. Remember we are all fighting this disease together. It may not be easy but we are all here to help out. Welcome to healingwell.
Asacol-12 a day
1 Culturelle
1 Canasa
5g Fish oil supplements
1 Vitamin
1 Haldi Drink
Gluten-free and lactose-free diet


jeanneac
Veteran Member


Date Joined Feb 2009
Total Posts : 1914
   Posted 5/31/2009 4:52 AM (GMT -6)   
After all the sickness and pain that I felt, I too was terrified of the prep for the colonoscopy but it went fine for me. I was so surprised! The procedure went fine too with no problems/pain/bleeding afterwards. I hope it will be as easy for you.
I had only been married for 1 year when I had my first episode of colitis and ended up in the hospital. I was worried my husband would get sick of me being sick but he has adjusted well and has been very patient. I am slowly but surely learning how to cope and mostly what I can and cannot eat. That seems to be a big key for me. Good luck to you.
diagnosed 1/09 with colitis & diverticulitis
 54 yo, colazal, fish oil, synthroid, cymbalta
good results w/ acupuncture


mbx5
Regular Member


Date Joined Sep 2007
Total Posts : 365
   Posted 5/31/2009 5:25 AM (GMT -6)   
I just had a colonoscopy about a week and a half ago. It is probably my 15th colonoscopy...I lost count. The prep is the hardest part for me. It isnt painful or anything, just inconvenient. Not being able to eat all day, then flushing out your innards = just a bummer of a day.... The actual procedure isnt so bad and it is relatively fast. The meds they inject you with make me feel like a junkie getting ready for my fix - the stuff is great...my last colonoscopy was a conscious sedation...it was not painful but it was a bit uncomfortable...the meds made it so that I really didnt care much however... You might have a few days afterward where you bleed a bit more and have some more watery stools due to the biopsies, but it clears up...mine has gone back to my normal flare routine.... I just focus on the excellent medication I will be getting in my IV, and it makes the anxiety leading up to it, and the time during it, seem irrelevant...

I imagine after your colonoscopy results you will be put on the proper meds to deal with your condition... When I was first diagnosed years ago I used to be very embarassed to the point I developed a social anxiety issue... Easier said than done but try to keep calm about it, try not to feel singled out and just try not to worry about it - nobody else actually thinks about it the way we do....we have the disease so it is on our minds 24/7, whereas most other people dont even give it a second thought... I joke about it with myself now, and the people around me, which really helps.... It is great to have supportive family / girlfriend / etc...really helps a lot...

One thing I have learned about diet changes -the effects are usually not immediate. You may experience some small results at first, but it seems to take quite some time before you see what the real effects are going to be. I have found that with stress as well - it seems that high stress can trigger a flare, and even though you remove the stress, it can take quite some time for the results.... I feel that food is the same way - if something is bothering you, and you remove it, it can take time for the results - and it differs with each person - so you have to get pretty scientific about it, and have patience...
Stats:35 yr old male. UC for 15 years.
location:North Western PA
DX: Left sided UC, most recent scope 5/20/09 UPMC Pittsburgh Presbeterian
Medications:20mg pred (as of 4/27/09), 12x pills Asacol per day, 100mg Imuran per day, 1mg Atavan per day (anxiety) when needed, 20mg paxil per day, Super-omega fish oil pills - 1x per day, Flax oil pills - 1x am, 1x pm, Culturelle probiotics - 2x am, 1x pm, Vitamin B-12 injections weekly.
Surgeries: Recent Endonasal brain surgery to remove non-cancerous hormone producing tumor on pituitary gland (and I am still more afraid of my UC!!)

"I poop in the woods because I can"

Post Edited (mbx5) : 5/31/2009 5:28:05 AM (GMT-6)


Trebbo
New Member


Date Joined May 2009
Total Posts : 18
   Posted 5/31/2009 6:30 AM (GMT -6)   
wow, what a lovely bunch of people. Thanks for all your responses :)
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