Remission... never knew what it felt like, till now....

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Pooie1981
Regular Member


Date Joined Mar 2008
Total Posts : 274
   Posted 5/30/2009 9:27 PM (GMT -6)   
Hey all... not meaning to brag but I had to post. I FINALLY know what remission actually feels like!! Diagnosed in 2004 and had 3 major flares... Last year around March was my last major flare and it took me a few months before I felt better. I thought I was in remission then... then this year around March I kinda flared again but not nearly as bad as last year. I started to REALLY watch what I was eating because I really didn't want a repeat of last Spring. I got threw it ok and realized what one of my major food triggers were. Cinnamon Rasin Bagels! I was eating them every other day for breakfast and sometimes as a snack. I switched to Cheerios and now since Easter I have have NO PAINS what so ever and have been gaining back my energy and ambition. I only have to nap probably 2 days out of 7 now as compared to my every day naps!!!

I know people have posted here before wondering what remission felt like. To me, remission was just being able to "cope" with the abdominal pains and discomfort.. make it to work.. crawl home and have a nap. Now.. I think I finally know what it REALLY is... I NEVER realized how much discomfort I was in before... now with no pains I am a different person.. the person I was before 2004. Also, taking my meds properly is probably helping alot as well.. I tried to take them as scheduled before but now I am 100% covered on my husband's medical I am on a more strict "take my pills" routine.

In all.. I just want to stress to you all to take your meds AS PRESCRIBED if possible and really REALLY pay attention to what you are eating. I kept a food journal for the whole year last year and even then I did not realize it was the bagels that were killing me. Probably because sometimes I wouldn't have them every single day but I still had pains from the day I had eaten them.. so I figured they were not the cause because I didn't have one that particular day I had pains.

In any case... I wish remission on you all, it's wonderful. :O)
Jenn 27/female/married
Ulcerative PANCOLITIS diagnosed 2004
Asacol 800mgs 3times/day, Buscopan as needed
Daily Vitamin for Women and Folic Acid, Metamucil one tsp per day so far
Flare March-June 2008.. pretty much in remission again July


AMK77
Veteran Member


Date Joined Mar 2008
Total Posts : 678
   Posted 5/30/2009 9:31 PM (GMT -6)   
So glad you are feeling well!! It's so nice to hear stories of remission! :-)
32 yr old female
Mild Pancolitis
I've had UC since 2000 but was in remission for most of those 8 years med free
Cannot tolerate mesalamine - starting 6mp soon?


AngelaPaige
Regular Member


Date Joined May 2009
Total Posts : 28
   Posted 5/31/2009 12:03 AM (GMT -6)   
thats so great to hear! and it keeps me hopeful of a day like that to come for me and all of us. im very happy for you!

quincy
Elite Member


Date Joined May 2003
Total Posts : 30998
   Posted 5/31/2009 3:24 AM (GMT -6)   
There's a lot to be said for using meds properly and faithfully....it's great you're feeling well. Enjoy!

I'd have discomfort from raisin anything....dried fruits are notorious for causing gas for possibly anyone...I wouldn't call it a trigger food for UC, however....for gas, yes.

Be well,
quincy
*Heather* Status: mild flare enemas tapered to every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 x2 daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


Hellokitty
Veteran Member


Date Joined Mar 2009
Total Posts : 765
   Posted 5/31/2009 5:28 AM (GMT -6)   
Great glad to hear your feeling better. I have problems with anything with wheat/gluten
Female 32 years old
 
Diganosed ulcerative colitis November 2007
Present medication- 1/2 X 500mg pentasa in the morrning= 250g pentasa (I reduced this to see how my diet will effect me) and 1 X250g Asacol every other evening
Diet- Tried raw food diet with 80% raw foods, found some pro's and cons. Started to add more products to keep up weight as mine did not balance. Still eating raw spinage and still am combination eating. No dairy No gluten.  
 
Other medical problems- Born with asthma- no medication taken for this.


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 5/31/2009 6:50 AM (GMT -6)   
Yay for you! I'm glad you are feeling better :)
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate ALL mesalamines**~Allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-had 2 series of 3, OA-Celebrex, Tylonel Arthritis and Voltaren Gel
To help Healingwell - click here: DONATE
 
 
 
 

 
 


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 5/31/2009 3:37 PM (GMT -6)   

As Dr. MacDermott, Albany Medical (I am going to have a consultation with him June 18) stays in his report about IBS and IBD...

Symptoms can occur within 15 minutes or can

be delayed for 6 to 48 hours

Check out his report....he has 30 years experience and I am looking forward to meeting with him...

 

http://vid.imedex.com/pdf/5477/macdermott.pdf


 
Senior - New diagnosed with proctosigmoiditis - 6/2008   Tried, Colozal, steroid enemas, etc. - started working but severe side effects occurred. No mesalamines!!
Started on prednisone Feb.7, 2009 - tapering to 20 mg. - upped prenisone to 25mg. on my own (bleeding returned) - 6MP - 50 mg. 2/28/2009 - staying on 10 mg. prednisone also until visit with specialist.
 
Probiotic Align, Prilosec for GERD, Gas-X, vitamins, Calcium/D
Tylenol for knees and arthritis.
 
 
 


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 5/31/2009 4:24 PM (GMT -6)   
Great! :)
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Eased for ~3 weeks in December, possibly b/c of probiotic use?
Returned in January 2009 (with a vengeance), diagnosed with pancolitis on January 30.
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa every other night, Culturelle probiotic, and Zoloft (25 mg).


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 5/31/2009 6:47 PM (GMT -6)   
     That's great news!  Remission is wonderful, isn't it?  I enjoyed seven full months of remission, but I was on vacation for the past three weeks and realize I have eaten things that I shouldn't have, even though my GI doctor says diet has nothing to do with IBD.  I ate pizza (even just one slice) and some spicy foods.  I think the coffee I was drinking every morning was a tad too strong too.  Well, I am now paying the price once again.  Proctitis is my major problem.  I see the mucus and feel the pressure.  I'll try to stay off the prednisone and hopefully the Cort enemas and Canasa will turn the tide.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.


subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 5/31/2009 8:09 PM (GMT -6)   
Congrats!

It does feel great to be in remission. Today we went to the annual fair. I wasn't able to go to the bathroom before leaving the house. By the time we got to the fair, I had to go. However, there were no private bathrooms. Every bathroom had a line to it. I was able to hold it in the whole day :)
Joy - 47 yrs and counting
Colitis Dec 06 (also have IBS)
Currently in remission
Don't expect your doctor to cure your health problems. Your health is your responsibility.

Lexapro (for stress), Probiotics and Vitamins (a whole bunch of them)
Avoid HFCS, foods high in fructose, artificial sweeteners
When flaring: eat anti-inflammatory foods, avoid pro-inflammatory foods
Previous treatments: Fecal transplantation (worked), Prednisone (stopped working), Colazal (stopped working), Asacol (stopped working)


Pooie1981
Regular Member


Date Joined Mar 2008
Total Posts : 274
   Posted 6/1/2009 5:40 AM (GMT -6)   
Thank you everyone. The continuous support and good advice here always helps. Heck, it's pretty much the only place ya can go and safely talk about poop. LOL.
Jenn 27/female/married
Ulcerative PANCOLITIS diagnosed 2004
Asacol 800mgs 3times/day, Buscopan as needed
Daily Vitamin for Women and Folic Acid, Metamucil one tsp per day so far
Flare March-June 2008.. pretty much in remission again July


saposs
Regular Member


Date Joined Nov 2008
Total Posts : 339
   Posted 6/1/2009 4:22 PM (GMT -6)   
congrats!! great..... enjoy your remission :-)
Right now -FLARING (after my Rubella vaccination)
Diagnosed in Jan'2009: Canasa suppositories 1000 nightly - worked for 2 months then re-flare
13 may: canasa 1000 X2 daily for 2 weeks - to start Lialda after 2 weeks if canasa double dose does not work
Symptoms: Mucus, blood, constipated (not always), Lots Gas
Also gifted with Hypothyroid & have calicum deficiency family history!
Also started Probiotic from 23 Mar & fresh Turmeric root from 25 March'09- stopped both on 10th May


blueclassring
Regular Member


Date Joined Feb 2007
Total Posts : 385
   Posted 6/1/2009 11:21 PM (GMT -6)   
Enjoy every day of it , and hope the UC never returns.
Pharmacy]<B><FONT color=blue>Diagnosed 8/99. Suffered for almost 10 years. I am currently on the Specific Carbohydrate Diet and am nearing remission. I feel fantastic! I have lost so many years to this disease. <FONT color=red>HAVE YOU CONSIDERED THE SCD DIET? IT HAS PUT ME IN REMISSION AND I PLAN ON GETTING OFF THE ASACOL SOON TOO!
<FONT color=green>MED-FREE!!!
Doc wanted to put me on 6-mp or Remicade, but I refused to take the medications! For me, diet works...


AmyWaffle
Regular Member


Date Joined Jun 2009
Total Posts : 173
   Posted 6/4/2009 9:46 PM (GMT -6)   
You go girl! Brag away! It is inspiring to hear.
UC since 1996 (age 20)
Mommy of 2 sweet little girls.
My life is one big flare.


Petaunwell
Regular Member


Date Joined Jun 2009
Total Posts : 25
   Posted 6/15/2009 6:43 AM (GMT -6)   
kops2da said...

As Dr. MacDermott, Albany Medical (I am going to have a consultation with him June 18) stays in his report about IBS and IBD...

Symptoms can occur within 15 minutes or can

be delayed for 6 to 48 hours

Check out his report....he has 30 years experience and I am looking forward to meeting with him...

 

http://vid.imedex.com/pdf/5477/macdermott.pdf

I just wanted to thank you for this link.
I have been recently diagnosed with ulcerative colitis and at first did not realise there would be a need to change my diet.
I am on my second flare up two months later and am seeking every bit of advice possible.
I found this helpfull, so again thank you!!
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