Newly diagnosed

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Tweety Bird
New Member


Date Joined May 2009
Total Posts : 1
   Posted 5/31/2009 8:44 AM (GMT -6)   
After being very sick and losing 50lbs in 2 weeks my husband was finally admitted to hospital with severe dehydration and a suspicion of colitis.  He was diagnosed with Ulcerative Colitis which is along all 5 feet of the colon.  The diagnosis came on May 15th and he was released from hospital on the 19th.  He is much better but still spends most of his day in bed with no appetite.  He is taking 8 Prednisone per day, he takes these in the morning when he first wakes up.  His mornings are his worst with very bad cramping and frequent trips to the bathroom.  He says there is very little blood now, but he doesn't really seem to be much better.  The doctor has him off work for at least another month.  I am concerned and don't know what is to be expected with regards to the length of the bouts.  He is frustrated and I am scared.  Is this normal with this condition?

stylinvw
New Member


Date Joined May 2009
Total Posts : 6
   Posted 5/31/2009 10:55 AM (GMT -6)   
These symptoms are all very normal! I was diagnosed in December of 2007 and am still having difficulty, especially for a couple of hours in the morning. The Prednisone will make him puffy and feel agitated. It's all about experimentation with his diet and getting on the proper meds and supplements.

PrednisoneJunkie
Regular Member


Date Joined May 2009
Total Posts : 33
   Posted 5/31/2009 11:38 AM (GMT -6)   
Those symptoms sound very similar to my first flare. Prednisone is a mood/personality altering drug, especially if he is taking 80mg/day, so be prepared for that. I usually start out on 60mg/day, and from what I've read on here a lot of people start out on 40. I guess it could depend on your weight--I'm 150-160 lbs. For me it greatly increases my appetite. His appetite should come back with a vengeance on that much pred now that he has stopped bleeding.
27 / Male
UC Diagnosis May 2003
Survived 9 flares
Used prednisone, asacol 6/day
Alternatives: have successfully tamed 1 flare and counting without prednisone with massive doses of probiotic (along with asacol)
Diet: paleolithic (but I often cheat), non-smoker, non-drinker
Other problems: Childhood asthma

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