Your right about not knowing how to take them for maintenance. I was literally just given them with no explanation, I don’t know if I should take the asacol with the pentasa or do I just take the pentasa. They are made of the same ingredient. I don’t know what does to take and for how long so I made it up on my own. I think my diet has done more for me than the meds.
I hope I don’t get cancer, Ive gotten more info from this web site than I have from my NHS doctor,
And because I am one of their most stable patients they have stuck me with a consultant who knows nothing about ibd. She really knows nothing. Last time I spoke to her about my raw foods diet she said. That’s interesting, I really know nothing about IBD
I wish I could afford private, but I can't
Female 32 years old
Diganosed ulcerative colitis November 2007
Present medication- 1/2 X 500mg pentasa in the morrning= 250g pentasa (I reduced this to see how my diet will effect me) and 1 X250g Asacol every other evening
Diet- Tried raw food diet with 80% raw foods, found some pro's and cons. Started to add more products to keep up weight as mine did not balance. Still eating raw spinage and still am combination eating. No dairy No gluten.
Other medical problems- Born with asthma- no medication taken for this.