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Hellokitty
Veteran Member


Date Joined Mar 2009
Total Posts : 765
   Posted 5/31/2009 12:26 PM (GMT -6)   

I am wondering why these drugs stop working. Is it because our bodies become immune to it. Or because the disease over rides it. When I was first handed these drugs I had a strange feeling inside me that the more I was to take the less effective it will be in the future. The doctors never told me they would stop working but reading this web site I think that they will do that with everyone. My pentasa has already become less effective and I am now holding remission through diet more than the drug. Does anyone know why?


Female 32 years old
 
Diganosed ulcerative colitis November 2007
Present medication- 1/2 X 500mg pentasa in the morrning= 250g pentasa (I reduced this to see how my diet will effect me) and 1 X250g Asacol every other evening
Diet- Tried raw food diet with 80% raw foods, found some pro's and cons. Started to add more products to keep up weight as mine did not balance. Still eating raw spinage and still am combination eating. No dairy No gluten.  
 
Other medical problems- Born with asthma- no medication taken for this.


quincy
Elite Member


Date Joined May 2003
Total Posts : 30591
   Posted 5/31/2009 2:27 PM (GMT -6)   
WEll, it could be that you're not on enough medication to start out.

I don't think you totally understand the concept of using the medications, how to treat the inflammation and how to use them for maintenance.

I cannot be the only person who's used 5ASA meds for over 20 years with success.

quincy
*Heather* Status: mild flare enemas tapered to every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 x2 daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


Hellokitty
Veteran Member


Date Joined Mar 2009
Total Posts : 765
   Posted 5/31/2009 3:10 PM (GMT -6)   
Your right about not knowing how to take them for maintenance. I was literally just given them with no explanation, I don’t know if I should take the asacol with the pentasa or do I just take the pentasa. They are made of the same ingredient. I don’t know what does to take and for how long so I made it up on my own. I think my diet has done more for me than the meds.

I hope I don’t get cancer, Ive gotten more info from this web site than I have from my NHS doctor,


And because I am one of their most stable patients they have stuck me with a consultant who knows nothing about ibd. She really knows nothing. Last time I spoke to her about my raw foods diet she said. That’s interesting, I really know nothing about IBD

I wish I could afford private, but I can't
Female 32 years old
 
Diganosed ulcerative colitis November 2007
Present medication- 1/2 X 500mg pentasa in the morrning= 250g pentasa (I reduced this to see how my diet will effect me) and 1 X250g Asacol every other evening
Diet- Tried raw food diet with 80% raw foods, found some pro's and cons. Started to add more products to keep up weight as mine did not balance. Still eating raw spinage and still am combination eating. No dairy No gluten.  
 
Other medical problems- Born with asthma- no medication taken for this.


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 5/31/2009 3:21 PM (GMT -6)   
The ASA meds aren't known to cause cancer. They're actually believed to help prevent people with UC from developing colon cancer, as they keep the inflammation under control. The meds won't do anything for you at the doses you're using them.

Call your doctor's office and ask for advice. If you call often enough, they won't ignore you. It's your right as a patient to fully understand how to take your meds.
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Eased for ~3 weeks in December, possibly b/c of probiotic use?
Returned in January 2009 (with a vengeance), diagnosed with pancolitis on January 30.
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa every other night, Culturelle probiotic, and Zoloft (25 mg).

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