Thought I better get on here and clarify how I got to this point with my GI.
I was diagnosed with UP via a colonoscopy last May. Pretty good flaring through to December and so I got in for a few appointments with the GI to consult on different meds because the Pentasa wasn't working. As time went on, with varying degrees of some success, then set backs (like you've all experienced), I would phone and chat with the nurse on what was happening with me. She was always very accommodating and said if she could take these calls, it frees the doc up to visit with patients. If she wasn't available when I called, I'd leave a message and I'd get a call back within a day or two. We'd chat about the GI Stuff but often about other "stuff" as well. (just to set things straight, I wasn't calling everyday or anything like that) Thought we had a great rel'ship. I even dropped off some flowers and a card one day just to thank her for being so great to me.
I had an endoscopy performed about a month ago and she was instrumental in getting it done in a big hurry. Endoscopy according to the GI was clear except for a small hiatal hernia. I think at that point, he had enough of me because he was likely aware of my calls and the fact that she got me in quick. He was very abrupt after the procedure. I believe he thinks I'm wasting both his and his nurse's time because as far as he's concerned, I have nothing other than a moderate case of UP.
In the last 3 weeks or so I've had different things showing up in my bloodwork with my GP. I have low ferritin, slightly above "high normal" Lipase levels, occult blood in 2 of 3 stool samples, as well Helicobacter Pylori diagnosed from bloodwork. I've been telling my GI for months about my stomach pains, back pain, continuing bowel issues and he has always written it off to IBS.
Now in the last 3 weeks, I've likely left 8-10 messages asking if the nurse could call me to see if she has any words of wisdom...should I be getting another C-scope, seeing the GI, etc. I've also left a bit of info with regards to what my blood results have been so maybe that has scared them off.
Anyways just wanted to say that I just would have expected a phone call from her to explain the situation to me. I know she works for him, and if this is what he says, she has to follow his orders, and I totally understand this. But if she called me after my first phone call to her about my blood results and says make an appointment with the GI, no need for a c-scope or just tells me to get lost, I would have quit calling on the spot. I may be persistent, but I'm not an ass.
My wife called me about the letter last night (I was out of town) and she decided to open the envelope. Kind of wish she would have called to ask me if I wanted her to open it...but that's another story. But after reading it tonight, the orders to not return any calls has come directly from him. I certainly would never hold a grudge against her because she is a wonderful lady and is only doing what her boss tells her to do.
Sorry about the long post...just wanted to put it all out there.