I hope Apriso works, too! I'm having a lot of trouble remembering my noon dose of Asacol and if we are eating out, have trouble remembering my evening dose, since the Rx bottle isn't sitting on the table in front of me. My doc said that in his opinion, non-compliance (whether b/c the person doesn't want to take the med and deliberately quits, or just forgets all of the time) on taking meds is the most common reason for flares.
sicklygirl, I'm going to hold steady on the high dose of the Asacol/Apriso for now. I asked my GI about it, and he said that since I was so sick and so hard to get into remission, that he'd rather I stay on the high dose for a year, and if I haven't had a flare during that time, then we could talk about reducing it. He said he's found that patients who stay on the higher doses (especially those who have severe cases) do better if they stay on higher doses. So, because I really want to stay in remission, I'll keep taking the high dose.
Status: Remission since late May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Eased for ~3 weeks in December, possibly b/c of probiotic use?
Returned in January 2009 (with a vengeance), diagnosed with pancolitis on January 30.
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa twice weekly, Culturelle probiotic, and Zoloft (25 mg).