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Hellokitty
Veteran Member


Date Joined Mar 2009
Total Posts : 765
   Posted 6/4/2009 11:44 AM (GMT -6)   

I finally had my monthly cycle, but it was really painful. Ive never had  a lot of  pain before. I wonder if it is just because I just came off the pill. This monthly has been so weird. I felt sick, got really tired, had uc problems. What the hell. I wonder if it will be like this every month, or is my body adjusting. If it is I may go back to the pill


Female 32 years old
 
Diganosed ulcerative colitis November 2007
Present medication- 1X 500mg pentasa in the morrning= 250g pentasa and 1 X250g Asacol every other evening
Diet- Tried raw food diet with 80% raw foods, found some pro's and cons. Started to add more products to keep up weight as mine did not balance. Still eating raw spinage and still am combination eating. No dairy No gluten.  
 
Other medical problems- Born with asthma- no medication taken for this.
dyslexia- found out that many people with learning difficulties also have food sensitivity


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 6/4/2009 11:49 AM (GMT -6)   
I'd say it's definitely because you're off the pill. When I quit the pill (so that Dh and I could have a baby) I had really bad cramps. Now that I'm back on it, I don't have cramps any more. For most women, the pill makes cramps go away or at least lessens them. Also, when I wasn't on the pill, (before I got pregnant, and before my UC was diagnosed), I usually had a day or two of loose stools (not diarreha) and increased frequency just prior to starting/at the very start of my period. It was also like that before I ever started the pill at age 18.
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Eased for ~3 weeks in December, possibly b/c of probiotic use?
Returned in January 2009 (with a vengeance), diagnosed with pancolitis on January 30.
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa every other night, Culturelle probiotic, and Zoloft (25 mg).


Hellokitty
Veteran Member


Date Joined Mar 2009
Total Posts : 765
   Posted 6/4/2009 12:00 PM (GMT -6)   
Strange I had that increased urgency feeling. Although I have been balancing it with raw baby leaf spinach.
Female 32 years old
 
Diganosed ulcerative colitis November 2007
Present medication- 1X 500mg pentasa in the morrning= 250g pentasa and 1 X250g Asacol every other evening
Diet- Tried raw food diet with 80% raw foods, found some pro's and cons. Started to add more products to keep up weight as mine did not balance. Still eating raw spinage and still am combination eating. No dairy No gluten.  
 
Other medical problems- Born with asthma- no medication taken for this.
dyslexia- found out that many people with learning difficulties also have food sensitivity


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 6/4/2009 12:32 PM (GMT -6)   
Increased UC symptoms around that time of the month have been noted and discussed many times on this forum. Even women who don't have IBD can have cramping and diarrhea before and/or during their periods.
Diagnosed with ulcerative colitis spring 1999. Have been in remission for years with only a few minor blips.
 
Maintenance dose sulfasalazine. Probiotics, vitamin D, fiber supplement and fish oil caps. George's aloe vera juice and l-glutamine for gut healing. Mostly grain-free and dairy-free low carb diet.
 
 


Hellokitty
Veteran Member


Date Joined Mar 2009
Total Posts : 765
   Posted 6/4/2009 1:40 PM (GMT -6)   
I never had any pain with that time of the month. i would feel tired and moody. I never had diarrhea either. Now i feel like i need a poo all the time. I was flaring as well a bit.
Female 32 years old
 
Diganosed ulcerative colitis November 2007
Present medication- 1X 500mg pentasa in the morrning= 250g pentasa and 1 X250g Asacol every other evening
Diet- Tried raw food diet with 80% raw foods, found some pro's and cons. Started to add more products to keep up weight as mine did not balance. Still eating raw spinage and still am combination eating. No dairy No gluten.  
 
Other medical problems- Born with asthma- no medication taken for this.
dyslexia- found out that many people with learning difficulties also have food sensitivity


RH_Texas_Gal
Regular Member


Date Joined May 2009
Total Posts : 367
   Posted 6/4/2009 2:08 PM (GMT -6)   
I was in a similar boat as you kitty and after 3 months after being off the pill, the bad cramping started to subside ... I hope this is the case for you. I had to stop my bc pill because I wasn't sure if it was the cause of my hair loss or not. I have to go back to the doc and get a different prescription. Yaz has always been a good one with no side effects ...

Hellokitty
Veteran Member


Date Joined Mar 2009
Total Posts : 765
   Posted 6/4/2009 2:23 PM (GMT -6)   
Thanks for your support. I really feel bad.
Female 32 years old
 
Diganosed ulcerative colitis November 2007
Present medication- 1X 500mg pentasa in the morrning= 250g pentasa and 1 X250g Asacol every other evening
Diet- Tried raw food diet with 80% raw foods, found some pro's and cons. Started to add more products to keep up weight as mine did not balance. Still eating raw spinage and still am combination eating. No dairy No gluten.  
 
Other medical problems- Born with asthma- no medication taken for this.
dyslexia- found out that many people with learning difficulties also have food sensitivity


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 6/4/2009 3:03 PM (GMT -6)   
Have you tried using a heating pad? When I'm achy and just feel like ick in general, it really seems to help me.
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Eased for ~3 weeks in December, possibly b/c of probiotic use?
Returned in January 2009 (with a vengeance), diagnosed with pancolitis on January 30.
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa every other night, Culturelle probiotic, and Zoloft (25 mg).


UC Momma
Regular Member


Date Joined May 2009
Total Posts : 113
   Posted 6/5/2009 10:19 AM (GMT -6)   
I'm sorry things are so painful for you. I too had REALLY bad cramps when I got off the pill and it always made my stomach a little uneasy as well around that time of the month. I agree with the heating pad-it does help with bad cramps. I hope you feel better soon!

Hellokitty
Veteran Member


Date Joined Mar 2009
Total Posts : 765
   Posted 6/5/2009 12:07 PM (GMT -6)   
Thanks again you guys for your support. i keep jumping into hot showers. it seems to ease the pain and take it away. I also feel really relaxed if i have a bath or shower. I went to work to day but only managed 3 hours. I think the company is going to start hating me as my store is Financially doing badly. its not may fault though. Ive done everything, from increasing hours to events, Im now even trying to whole sale to other companies. I now have to cut back on staffing. Oh well ive tried


Female 32 years old
 
Diganosed ulcerative colitis November 2007
Present medication- 1X 500mg pentasa in the morrning= 250g pentasa and 1 X250g Asacol every other evening
Diet- Tried raw food diet with 80% raw foods, found some pro's and cons. Started to add more products to keep up weight as mine did not balance. Still eating raw spinage and still am combination eating. No dairy No gluten.  
 
Other medical problems- Born with asthma- no medication taken for this.
dyslexia- found out that many people with learning difficulties also have food sensitivity

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