I have not the slightest doubt of Elaine Gotschall's sincerity. There was not a shred of seedy commercialism to her, not one shred. She never "sold" the diet or anything to do with the diet other than her very modestly priced paperback (mostly) book. I don't doubt that Patel-Thompsen was an IBD sufferer, or at least was diagnosed as having IBD (the medical profession doesn't really know what IBD is , after all, other than a way to categorize certain symptoms). And while I suppose we can give Rubin the benefit of the doubt on also having been an IBD sufferer, some of his other actions do not inspire a belief in his sincerity- see http://www.quackwatch.org/11Ind/rubin.html
- the guy's credentials are mostly phony. He mentions a couple dozen major healing modalities, from TCM to the SCD to macrobiotic diets to this and that, that he tried intensely before finding the magical elexir of SBOs that he put into Primal Defense- and yet if you divide the time from being disease ravaged to cured by SBOs, by the number of modalities he supposedly tried intensely, you come up with a couple weeks or so for each modality. And these are all techniques which certainly require months, and sometimes even years, for people to notice a big difference. Now, I know my sig line says I have tried "everything under the sun"- it's an expression, but at least I can relate it to many many years of trying things. But all that said, I have used Primal Defense and stll occasionally use it. I have tried going on it and off it for months and I can attest it seems a reasonably potent probiotic and also doesn't seem to irritate my gut. So even if I think the guy is a slick used car salesman type (and Rubin, with a line of products that is getting decidedly out to lunch, with things like supposedly magical water for example), I'll still consider a vendor's products if they look interesting- though I will be a much tougher sell than if the salesman was very humble. But as far as healing goes, you are spot on, Princessa, that we need to have an
open mind and try many things and never, ever give up. In this regard, if Patel-Thompsen collates "everything under the sun", I guess she does perform a service even if her specific products are a bit crass, commercial, and contain some heavily marked up junk ingredients.
I've had personal contact with Gotschall and Patel-Thompson. Both have been personally touched by IBD - Jini is a Crohn's sufferer, Gotschall's daughter a UC sufferer. Both have had success with their methods and are sincere in their desire to help others. I can't speak for Rubin, but he appears to be genuine and sincere, too. I don't think any of these people set out to make tons of money in scams that dupe IBD sufferers. If they set up a free Web site and sent out free ebooks, would they get their message out effectively? Spreading the word is about marketing and promotion which costs money. Printed materials cost money for design and production. I think, in some cases, the marketing and promotion gets out of hand as the operation grows and other people are hired that have their own agenda.
You'll never see double-blind, placebo, years-long testing on diet and natural supplements because 1) there's no way to enforce dietary restrictions 24/7 for a period of years and 2) there's no funding because no one stands to gain financially on non-patentable therapies. Also, in my experience, there's not a single magic bullet that works for one person, much less all IBD sufferers. It takes a combination of therapies, tailored to your specific situation to bring about long-term remission.
Pancolitis >20 years, allergic to all 5ASAs
(To pharma: enough already with the umpteen variants of Asacol!)
Tried everything under the sun (natural and alternative)
Some partial success with TSO but was too expensive to keep up
Remicade Humira, lots of probiotics, entocort, tapering increasing pred again,
this year soon
Post Edited (Probiotic) : 6/5/2009 4:16:08 PM (GMT-6)