Thank you for bringing this up!
As the mother of a child with UC (we hope its UC anyways) there is nothing more demoralizing than people trying to sell me 'cures'. I honestly feel that everyone is different as evidenced by the many people on this board. When I'm googling my little heart out trying to find some answers to help my son, half of what I turn up is 'buy this and you'll be fine FOREVER!'. I personally just want to see how people are coping, what's worked for them and what I can try with my son to improve his quality of life. Though I wish there was just one answer to fix everything for him I don't honestly think there is any one thing that will work for everyone
The other problem with salesmen is that you end up with a lot of bad advice that some people actually take to heart and can be seriously damaged by. Initially when my son was first diagnosed I ran into a lot of materials that said he should fast and that it would 'cure' him. A fast for someone with UC can be potentially lethal, yet there is no disclaimer about the dangers, just a standard consult with your doctor blurb.
It's just really pathetic and so completely not beneficial to my son's own circumstances. I've had people tell me repeatedly about how their relatives have cured their UC. But my son doesn't have those options. He's been in a flare for almost two years now and only diagnosed for the past year. He had a STROKE(!) because of his UC. He's had repeated blood transfusions, repeated hospitalizations, intensive rehab therapy, has been on steroids for over a year, constantly battles with low blood counts, dehydration, joint pain, iritis, aggressive and constant bloody diarrhea, malnourishment, exhaustion and is already taking 20 pills a day to no avail and someone wants to make $$ of his suffering........? GRRR!
Sorry. I try not to rant so much. It's just difficult trying to the best I can for my baby while trying to wade through all of the BS out there. Googling is starting to give me a headache.
At least this forum has really been a big help (and you don't even know it, so TY)!
Number One Son -
Sigmoidoscopy followed by full bowel study 3/2008
DX with ulcerative colitis 3/2008
Blood transfusion 3/2008
Hospitalization for two weeks
Stroke caused by colitis 3/2008
ICU for two weeks
Second blood transfusion
Rehab in-hospital for two months
Not in remission