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Regular Member

Date Joined Feb 2009
Total Posts : 85
   Posted 6/4/2009 11:05 PM (GMT -6)   
after living with this disease for so many years...

I laugh somtimes at how educated Ive become on our bodies and the digestive system...

I mean, were like half way to becoming gastroenteroligists! now, I just need to learn how to spell it, and take the exam! ahaha


Forum Moderator

Date Joined Apr 2004
Total Posts : 23551
   Posted 6/5/2009 5:30 AM (GMT -6)   
I agree :) Actually I didn't know all about the digestive system until I got a computer about 10 years ago. Before then I was in the dark and just knew the very basics.
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate ALL mesalamines**~Allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-had 2 series of 3, OA-Celebrex, Tylonel Arthritis and Voltaren Gel
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Veteran Member

Date Joined Jun 2008
Total Posts : 2865
   Posted 6/5/2009 7:15 AM (GMT -6)   

I learned that you CAN teach old dogs new tricks!  I have learned so much here on online.  My NP commented that she and the doctor were happy when patients are proactive - makes it easier to explain what is going on and why certain medications may or may not work.  We need to understand better what is going on to help us heal!


Senior - New diagnosed with proctosigmoiditis - 6/2008   Tried, Colozal, steroid enemas, etc. - started working but severe side effects occurred. No mesalamines!!
Started on prednisone Feb.7, 2009 - tapering to 20 mg. - upped prenisone to 25mg. on my own (bleeding returned) - 6MP - 50 mg. 2/28/2009 - staying on 10 mg. prednisone also until visit with specialist.
Probiotic Align, Prilosec for GERD, Gas-X, vitamins, Calcium/D
Tylenol for knees and arthritis.

Forum Moderator

Date Joined Feb 2006
Total Posts : 5698
   Posted 6/5/2009 7:31 AM (GMT -6)   
And just think what other knowledge your GI has. Not only do they deal with IBD and IBS but they have to have knowledge of about 30 different types of GI cancer, they are the experts on liver disease, pancreatic cancer, ulcers, and problems with GERD. This is not a specialty for the weak, it's one of the most difficult advanced degrees.

dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free

Veteran Member

Date Joined Aug 2007
Total Posts : 2202
   Posted 6/5/2009 8:24 AM (GMT -6)   
I've accumulated a library of digestive health books. My GP said I know more about IBD than he does now. I'm also known as the "digestive queen" on the weight training forums I frequent where topics of bloating and food reactions come up alot.
Diagnosed with ulcerative colitis spring 1999. Have been in remission for years with only a few minor blips.
Maintenance dose sulfasalazine. Probiotics, vitamin D, fiber supplement and fish oil caps. George's aloe vera juice and l-glutamine for gut healing. Mostly grain-free and dairy-free low carb diet.

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