Venting about my GI

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Shadam
Regular Member


Date Joined Jan 2009
Total Posts : 307
   Posted 6/5/2009 9:45 AM (GMT -6)   
I started 6mp about a month ago and my 1 month dosage was scheduled to end on Wednesday.  I called my GI's office on Wednesday (its now Friday) to get a re-fill on the drug assuming it would be a piece of cake to call the script in t o the pharmacy...thing again.  I still havent heard back from GI or his secratarys and I'm out of my 6mp pills!!! The bad part about it is I had to fly up to NY yesterday.  Luckily both my parents are in the medical field and know a good amount of pharmacists so I was able to get a few pills to hold me over. 
 
I just think it's soooo un-responsive of my GI not to get back to me at all.  Especially because I just started this new med.  I got blood work done for the 6mp a few weeks ago and still havent heard from him about that. 

Am I just over reacting or do I have a point here?
Age: 25 / Male / Florida
Diagnosed: 11/08 / Pancolitis
Asacol - 2 x 3 day (waiting for results)
6MP - 50mg - started 5/04/09
Prednisone / ended 1/09 (started at 30mgs and tapered down)
Mens Multi Vitamin - 1 a day
Calcium & Vitamin D3 - 1200mc of Calcium and 800iu of Vitamin D3  
Jaro - Dophilus Probiotic (3.4 Billion) - 1 a day
Diagnosed with PSC: 3/9 --now taking Urso
Sunflower Seed & Spinach Diet - Started 4/26/09


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 6/5/2009 10:13 AM (GMT -6)   
Well, you *should* have called earlier than the day you were going to run out of pills for your refill, but your GI also should have responded to your phone call by now. Call again.
Status: Remission since late May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Eased for ~3 weeks in December, possibly b/c of probiotic use?
Returned in January 2009 (with a vengeance), diagnosed with pancolitis on January 30.
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa twice weekly, Culturelle probiotic, and Zoloft (25 mg).


quincy
Elite Member


Date Joined May 2003
Total Posts : 30382
   Posted 6/5/2009 11:39 AM (GMT -6)   
I agree about calling in earlier....but doesn't the pharmacy usually call for refills if you request it?

Awesome about your parents' pull to get you some meds...

Any other meds you need refills on? maybe the doc can call in multiple refills especially since it's coming on the time of year many doctors go on holiday...

q
*Heather* Status: mild flare enemas tapered to every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 x2 daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


Probiotic
Veteran Member


Date Joined Mar 2007
Total Posts : 2832
   Posted 6/5/2009 11:45 AM (GMT -6)   
Try going to a pharmacy (ideally one in a chain that has your past prescriptions in their computer) and asking for an emergency refill without an rx, with proof of identity matching the old bottle... they may give you enough for a couple of days. Also, the dr's office should have an emergency doc on call who could then fax or phone in an emergency rx to tide you over.
Pancolitis >20 years, allergic to all 5ASAs
(To pharma: enough already with the umpteen variants of Asacol!)
Tried everything under the sun (natural and alternative)
Some partial success with TSO but was too expensive to keep up 
Remicade Humira, lots of probiotics, entocort, tapering pred again, maybe surgery this year
 
 


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 6/5/2009 1:37 PM (GMT -6)   
My doctor says right on her answering machine that if you are out of drug, call the pharmacy.
Then the pharmacy contacts the doctor's office, gets the refill approved, and fills it.

That's the way it is done now. It's easy, try it.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering. Asacol maintenance for 20+ years; used prednisone & Rowasa for flares.  Probiotics (Ultimate Flora, 50 billion), salmon oil (omega-3) when I can remember. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; eliminated wheat/gluten from my diet.
Bad flare in March, used prednisone. Humira denied, started Remicade 4/12 and doing great~ learning what normal is~ wow


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5957
   Posted 6/5/2009 7:52 PM (GMT -6)   
     We get our prescriptions at Walgreen's and they have an automatic refill system.  Ask about it.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Meds as of June 09: Colazal (6 per day), 6MP (50 mgm), Probiotic (upped to 3 per day), Fish oil capsule, calcium, multivitamin, Cort enema nightly, Canasa in morning.  Also taking Benicar and Toprol to control high blood pressure.  Getting old is a b****.


Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2105
   Posted 6/5/2009 9:37 PM (GMT -6)   
The pharmacist will most likely give you enough to get you into next week. They have always done that for me, whenever I forgot to call the GI to get the refill on a weekend.
Proctitis DX 1999, Pancolitis DX 2008
Golimumab study (100mg every 4 weeks)
L-Glutamine 5000 mg + 600 mg pyridoxal alpha-ketoglutarate
Probiotis/VitD3 5000IU+Ca/1000mg DHA

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