Thanks, everyone. I think I am going to refuse going down the antibiotic route. Even if it works, it seems to me likely to result in some "blowback" later on as a consequence of killing off healthy bacteria. I am experimenting with a bit of fecal infusion and some more helminthic therapy (parasitic worms and worm eggs) while holding on with low dose steroids and Humira for now and if I can't get completely off prednisone in the next few months (or at least seem to be headed there) then will just get surgery once and for all. I have said that a year ago too but I think this time I mean it.
CollegeGrad85- I am doing fecal infusions (Human Priobiotic Infusions or HPI) at home by myself without any medical supervision, using my girlfriend's "donations" for a total expenditure so far of about
$30 in equipment. In theory HPI is a big topic and I don't want to hijack my own thread, but there was a big thread discussing it last winter in this forum started by the user named "MAD." If you can't find it let me know. I'm new to experimenting with HPI and don't want to steer someone in the wrong direction. Personally, I am more excited about
helminth therapy than I am for HPI but the HPI is certainly worth a short before resorting to surgery. So far I have not done back to back infusions, as it is logistically a bit messy to set up and me and my girlfriend (my donor) have had hectic schedules of late.
Pancolitis >20 years, allergic to all 5ASAs
(To pharma: enough already with the umpteen variants of Asacol!)
Tried everything under the sun (natural and alternative)
Some partial success with TSO but was too expensive to keep up
Remicade Humira, lots of probiotics, entocort, tapering increasing pred again,
this year soon