proctitis and constipation

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Iamhealing
New Member


Date Joined Sep 2007
Total Posts : 8
   Posted 6/5/2009 4:24 PM (GMT -6)   
hi all, I was diagnosed with proctitis in 2004. Pretty well managed with
salofalk (aka rowasa) suppositories...however, recently I have flared
up again and am consitpated. I don't eat gluten so am unable to have
metamucil, bran, wheat germ and the fibre bars etc, but I do eat lots of fibre (ground
flax, leafy greens, lots of water too)...anything else that tends to
help? I find when I am not constipated things are able to heal and
when things aren't moving well it seems to cut the tissue or
injure it when the stool passes. Hence the vicious cycle.

Thanks

Estelle

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16286
   Posted 6/5/2009 5:11 PM (GMT -6)   
I have the injuries but not the constipation. I go too much if anything.
Diagnosed with mild proctitis in March 2007: Treated with Canasa (as needed)
December 08: Began treating with Asacol 400mg (9/day) + Canasa 2x/day - Anemic
May 09: Off Canasa, taking Asacol (9/day)
Back on Canasa every other night + Asacol (9/day) + Probiotics + Iron
Reducing to 6 Asacol/day + Canasa + Probiotics + Iron - So far so good!!! -SPOKE TOO SOON! Back to 9/day...


AnnaG
Regular Member


Date Joined Apr 2008
Total Posts : 191
   Posted 6/6/2009 1:39 AM (GMT -6)   
I think its a vicious circle really,inflamation stops the stool passing down,causing constipation,and constipation,agrivates the uc,I have found that movical works well,its an osmotic laxitive adds water to the colon and stools making them softer,but you have to build them up by trial and error really I start with one sachet a day and build up to three untill I feel cleared I think you can take as many as eight a day if you need them,anyway then I go back to one a day,now I'm on one every other day,I'm having no discomfort,my GI says its ok to take them as and when for how ever long I need them
41yrs old,mum of 3,servere left-sided UC since 2006,
Tried most things alternative,scd diet,low residue,etc
Had,ascol,pentasa,rectalmeds,prednisolne,IVsteriods,Cyclosporin
currently taking Imuran 100mgs daily,movicol 1 satchet daily


quincy
Elite Member


Date Joined May 2003
Total Posts : 30601
   Posted 6/6/2009 1:58 AM (GMT -6)   
Hi Estelle..welcome to the forum!

How often are you using the Salofalk suppositories....what dosage?
It may be that you're not on enough medication.....your doc can consider to increase for you to use them twice a day or to consider a prescription for the enemas.

You could consider to add a stool softener to your intake of supplements...the one my doc suggested was Docusate. It worked well.

How often in the day do you eat? Are you eating meat?
How about potatoes, etc?

quincy


*Heather* Status: mild flare enemas tapered to every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 x2 daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


Iamhealing
New Member


Date Joined Sep 2007
Total Posts : 8
   Posted 6/6/2009 6:11 AM (GMT -6)   
thanks for the feedback. I was taking half a suppository every second day when
everything was going well, now I am taking one 500 mg suppository per night and
when it has been bad I was taking two 500mg per day. I don't eat meat really, maybe
two times per month and I might eat potatoes once a month, not even. I eat a
big breakfast of fruit and a couple pieces of rice bread. Then for lunch usually
tofu with a bunch of steamed vegetables and the same for dinner. Lots of nuts
and seeds. Lots of fibre, or at least I think so. Sometimes maybe I don't
eat enough, but I am not underweight.

I have already taken your advice and started taking an inulin fibre supplement.
I am sure it will work. I hope so anyways, I am still going to the bathroom, just
not very much. I think a stool softener is my next move, is Docusate prescription?

I appreciate all your suggestion so much. Sometimes I think we can all feel
alone...how many of you have just proctitis?

estelle :-)

Iamhealing
New Member


Date Joined Sep 2007
Total Posts : 8
   Posted 6/6/2009 6:14 AM (GMT -6)   
oh annag, what about movical, I will look it up, but is it prescription?

thanks


estelle

AnnaG
Regular Member


Date Joined Apr 2008
Total Posts : 191
   Posted 6/6/2009 9:08 AM (GMT -6)   
I'm in the uk and get it on perscription,but you can just buy it over the counter too,I found other laxatives too harsh they tended too hurry things along to much and caused me painful spasms,whereas movicol just adds water too the stool making it softer and bulks up the size of stool,like you I only pass small ammounts when flaring.
41yrs old,mum of 3,servere left-sided UC since 2006,
Tried most things alternative,scd diet,low residue,etc
Had,ascol,pentasa,rectalmeds,prednisolne,IVsteriods,Cyclosporin
currently taking Imuran 100mgs daily,movicol 1 satchet daily

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