Hi Darla....what a scary situation your doc and the insurance company has put you in. I agree that you should consider to see another GI if you can.
Do you have a primary care physician (GP) you can see asap who can guide you through this?
Inflammation markers...hmmmm....there are some patients who have them, others don't regarding flares. My doctor never has used them to say I'm not in a flare or I am....don't get that way of thinking since one's butt with bleeding and having 25 bms daily can pretty much sum up a situation more than that.
I'd be scope-shy considering what you've already been through and alternate methods to get inflammation down should at least be tried.
As well...has the doctor done any stool samples to make sure you don't have an infection? I would think that would/should be first on the list.
Have you not been on any 5-ASA medications such as ASacol or any rectal meds since you were diagnosed?
I'm from Canada and don't totally understand how an insurance company can force one to have a c-scope.
Keep us posted as to what's going on.
In the meantime...how are you eating? Sometimes adjusting your diet can help with discomfort and bms. Fibre supplements can help to bulk the stool and lessen the amount of times going somewhat.
Probiotics can also help....
*Heather* Status: mild flare enemas tapered to every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 x2 daily); Salofalk enemas nightly for flares & taper to maintenance
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux); Effexor XR 75mg(depression); Pulmicort/Airomir (asthma)
~vitamins/minerals/supplements; Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!