Confused about colonoscopy results

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Jenn C
Regular Member


Date Joined May 2009
Total Posts : 31
   Posted 6/6/2009 8:34 AM (GMT -6)   
I had my colonoscopy yesterday and don't remember much. My husband said that the Dr said there were some signs of inflammation and I had a very large polyp that he removed and he also did 6 biopsies. But he never mentioned IBD at all.

However, I am not to see the Dr until June 24 for followup and pathology results. Since he didn't mention UC or CD does this mean I don't have it, and if I don't have IBD what is causing the symptoms I am having? Been through food intolerance tests, blood tests, and fecal occult (positive) with my Primary Dr. who was sure it was UC. Now I am confused as the GI didn't even mention this (according to mu husband). My husband also said that he said everything looked fine, which is contradictory to finding a large polyp and inflammation. I wish I were conscious when the Dr spoke to my husband because I am so confused and my husband has not been "on board" with my health problems this whole time and thinks I am just being a baby and should deal with not feeling well and do everything anyway despite me feeling bad.

I have been diagnosed IBS for 17 years and never had any of these symptoms, so I am pretty sure that it is something more, especially since I am way less stressed now than I have been before in my life. I am also losing weight (10 pounds in the past month) and there is a lot of blood and mucous, cramps, urgency, and other symptoms I never had before with the IBS.

I guess I am just really confused as to what diagnosis and why I have to wait 3 weeks with no medication except an antispasmodic which as of now seems to do nothing for my symptoms. I just want to crawl into bed and cry. 14 months of feeling bad with 6 months of the IBD symptoms full blown with hardly any relief. I guess I was expecting a miracle diagnosis and everything would be semi-normal again once I got on meds.

Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2105
   Posted 6/6/2009 9:21 AM (GMT -6)   
If I were you I would be a little peeved. At most the results will be known within 24 hours. The biopsy will take longer to get results from, but that's a whole other thing. You request your records and the results of your tests. If he can't see you, go to someone who can with those results. The only reason you have to wait three weeks is because you are accepting that you have to wait three weeks.

Give your results to your primary doc. He can prescribe you some rectal meds at least.

Your hubby really doesn't understand what UC is or he would know that the GI telling him there was inflammation in the colon meant you have Colitis. It's just the laymans term for it. GI was trying to keep it simple for him. Hopefully you get the specifics sooner than later.
Proctitis DX 1999, Pancolitis DX 2008
Golimumab study (100mg every 4 weeks)
L-Glutamine 5000 mg + 600 mg pyridoxal alpha-ketoglutarate
Probiotis/VitD3 5000IU+Ca/1000mg DHA


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 6/6/2009 10:10 AM (GMT -6)   

Definitely ask for the test results in writing.  My gastro doc always gives me them in writing day of scope and talks to my husband and I after I am fully awake.  I wait there until then.  Good luck and surely sounds like UC to me to something more than IBS.  I also have had IBS about 30 years and UC is definitely more - like you say - blood, mucous, pain, urgency, etc. 

ElaineNY


 
Senior - New diagnosed with proctosigmoiditis - 6/2008   Tried, Colozal, steroid enemas, etc. - started working but severe side effects occurred. No mesalamines!!
Started on prednisone Feb.7, 2009 - tapering to 20 mg. - upped prenisone to 25mg. on my own (bleeding returned) - 6MP - 50 mg. 2/28/2009 - staying on 10 mg. prednisone also until visit with specialist.
 
Probiotic Align, Prilosec for GERD, Gas-X, vitamins, Calcium/D
Tylenol for knees and arthritis.
 
 
 


Jenn C
Regular Member


Date Joined May 2009
Total Posts : 31
   Posted 6/6/2009 11:29 AM (GMT -6)   
Thanks, I don't remember seeing the Dr at all after the scope, I do remember the nurse talking to me though, so I am almost sure the Dr did not talk to me at all. He went and talked to my husband before I was even in the room, I was still in post op recovery. I was taken to the room 30 minutes later.

Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5965
   Posted 6/6/2009 11:54 AM (GMT -6)   
     Jenn, I would definitely be PO'd at that GI doctor too.  My GI doctor ALWAYS waits till I am fully awake and alert after my colonoscopy and then brings me and my husband into a room where he explains the results to BOTH of us.  He then asks us if WE have any questions which he is more than happy to try to explain.  I think you need a new GI doctor.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Meds as of June 09: Colazal (6 per day), 6MP (50 mgm), Probiotic (upped to 3 per day), Fish oil capsule, calcium, multivitamin, Cort enema nightly, Canasa in morning.  Also taking Benicar and Toprol to control high blood pressure.  Getting old is a b****.


mbx5
Regular Member


Date Joined Sep 2007
Total Posts : 365
   Posted 6/6/2009 12:02 PM (GMT -6)   
I think your husband should read some posts on this forum before he continues to assume you are being a baby. I am not sure that anyone w/o UC could ever understand what it is like, but after reading what other people are suffering through he might get a better understanding. Many of my friends never understood my condition and called me a whiner, party pooper, etc...they had no idea... my wife is very understanding and it helps a lot.

I had a colonoscopy about 3 weeks ago and still havent gotten my biopsy results....my GI came and talked to my wife and I, and explained everything clearly with color pictures that we took home....I havent called and asked for the biopsy results yet however.
Stats:35 yr old male. UC for 15 years.
location:North Western PA
DX: Left sided UC, most recent scope 5/20/09 UPMC Pittsburgh Presbeterian
Medications:20mg pred (as of 4/27/09), 12x pills Asacol per day, 100mg Imuran per day, 1mg Atavan per day (anxiety) when needed, 20mg paxil per day, Super-omega fish oil pills - 1x per day, Flax oil pills - 1x am, 1x pm, Culturelle probiotics - 2x am, 1x pm, Vitamin B-12 injections weekly.
Surgeries: Recent Endonasal brain surgery to remove non-cancerous hormone producing tumor on pituitary gland (and I am still more afraid of my UC!!)

"I poop in the woods because I can"


Jenn C
Regular Member


Date Joined May 2009
Total Posts : 31
   Posted 6/6/2009 12:24 PM (GMT -6)   
I am definitely calling the office on Monday. I am also having a lot of pain which I was told I should not have any pain or discomfort besides gas, but this is a sharp stabbing pain in my left side and feels at times like it is spasming and throbbing, not at all like gas pains. I have passed gas several times yesterday and today and have had two bowel movements, and the pain has not changed in any way. I am walking with a limp also because of the pain.

My husband has no sympathy/empathy. He says he specifically asked the Dr if I would have any issues such as pain afterward and the Dr said "no, I shouldn't" so he is convinced I am faking.

I am so upset and feel so unsupported right now I don't even know what to do. I woke up so sick yesterday with headache and severe nausea from the anestesia and asked him to call the hospital and he refused, so in tears, I called them and asked what I should do. They said to go back to sleep and take some Tylenol for the headache. Well I did that but woke up again later still feeling ill. I feel ok today, just a slight headache and no nausea and the abdominal pain.

My husband doesn't usually act this way so I am confused as to why he suddenly developed this I don't care attitude. He thinks I am not sick,and I am faking. I understand faking the things you can't see, but how can I fake things that you can see (like blood in the stool) for over 14 months?

Maybe I am just down and depressed, but I am usually not a depressed person, although this is taking its toll on me especially since the husband has decided to not care anymore.

AmyWaffle
Regular Member


Date Joined Jun 2009
Total Posts : 173
   Posted 6/6/2009 12:39 PM (GMT -6)   
Faking?! Ooooh your husband is making me mad! You know what, some guys just don't handle seeing family members sick very well. Maybe you could talk to him about it (not easy, I know), he could be scared or in denial about it. I had a friend whose otherwise lovely husband wouldn't visit her in the hospital--I guess he was terrified of hospitals.
My GI doesn't meet with me immediately after the colonoscopy but always the next day. I am usually in no shape to pay any attention, even after waking up. Bleck. Also, then he has the results of the biopsies.
Good luck and I very much hope you are feeling better soon.
UC since 1996 (age 20)
Mommy of 2 sweet little girls.
My life is one big flare.


AMK77
Veteran Member


Date Joined Mar 2008
Total Posts : 678
   Posted 6/6/2009 1:11 PM (GMT -6)   
The day of my colonoscopy I left with a 2 page report of the findings and pictures. My GI also came and spoke to both my husband and I once I had recovered a bit.
32 yr old female
Mild Pancolitis
I've had UC since 2000 but was in remission for most of those 8 years med free
Cannot tolerate mesalamine - starting 6mp soon?


quincy
Elite Member


Date Joined May 2003
Total Posts : 30614
   Posted 6/6/2009 1:24 PM (GMT -6)   
Wow, what's with some spouses???

Have you asked your husband what's going on and why he's treating you that way? Tell him it hurts you deeply that he's not empathetic.

Do call the GI on Monday and talk with the doctor (leave a message for him to call you back).

Make a list of questions to ask him so that it will be an efficient call.

Take the antispasmodics and tylenol to help with the pain.

Do you have your period as well?

Oh, it doesn't mean you don't have UC or CD, but the doc could certainly put you on at least 5ASA meds to help the inflammation...low dosage.

quincy
*Heather* Status: mild flare enemas tapered to every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 x2 daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5965
   Posted 6/6/2009 5:33 PM (GMT -6)   
     Hope you are feeling better Jenn.  Sorry to hear your husband isn't sympathetic with your condition.  My hubby used to be that way until the doctor had a talk with him about my condition early on, about a year or two after I was diagnosed.  When first diagnosed I was hospitalized for eight days and nearly died undergoing the colonoscopy because I am allergic to Demerol (horrible way to find out I was allergic to it..lol).  This took place in the hospital the day before I was SUPPOSED to come home.  Needless to say, I had to spend another few days in there.  My hubby was working at the time.  But he did make a complete turnaround when it sunk in just how serious IBD could be.  Now he can't do enough for me.  Sometimes I even wish he would just leave me alone shocked !  He's been retired for nine years.
     My oldest daughter isn't sympathetic either....to anyone!  She went through a bad divorce six years ago and I think it hardened her.  But then she never had much consideration for those who were sick.  On the other hand, my youngest daughter, who still lives at home (we are having an addition put on for her) is extremely considerate.  So, lucky for me the youngest is home and not the oldest huh?
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Meds as of June 09: Colazal (6 per day), 6MP (50 mgm), Probiotic (upped to 3 per day), Fish oil capsule, calcium, multivitamin, Cort enema nightly, Canasa in morning.  Also taking Benicar and Toprol to control high blood pressure.  Getting old is a b****.


Jenn C
Regular Member


Date Joined May 2009
Total Posts : 31
   Posted 6/6/2009 5:46 PM (GMT -6)   
I really don't know why he is acting this way, he has never been unsympathetic before. I think he is just ill because of all the money we've spent on Dr bills and me not having a diagnosis of anything yet. I also don't understand why it is taking so long to figure out what is wrong with me, but I feel so bad and need to know why. I really though 6 months ago when I started having the IBD symptoms, that I finally would know what was wrong, now I am not so sure. I can't even go out because I am afraid I'll not make it to the bathroom and have an accident in public, I've had one at home, and it wasn't pretty, I almost had one while grocery shopping, but made it to the restroom just in time. It is not funny, fun, and I am certainly not faking. If I was faking I'd find something less embarassing to fake thank you.

Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 6/6/2009 5:52 PM (GMT -6)   
I hope you can focus on yourself, get rest and take your meds (what are they?). The polyp is gone, that's good! The report of inflammation was not a surprise, I suppose. Sounds like the scope irritated things, that is also not unusual. You'll just have to be extra gentle to you gut for a while! I know you want information, but would you do anything differently if you had been told, yes, you have IBD or UC?

Please try to relax, do whatever you need to take care of yourself and don't dwell on your husband and his reaction to things. Give yourself peace.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering. Asacol maintenance for 20+ years; used prednisone & Rowasa for flares.  Probiotics (Ultimate Flora, 50 billion), salmon oil (omega-3) when I can remember. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; eliminated wheat/gluten from my diet.
Bad flare in March, used prednisone. Humira denied, started Remicade 4/12 and doing great~ learning what normal is~ wow


Jenn C
Regular Member


Date Joined May 2009
Total Posts : 31
   Posted 6/6/2009 6:08 PM (GMT -6)   
I guess if I had been told yes it was UC I could start on meds and hopefully start feeling better instead of just suffering alone. I really feel alone in this. My husband doesn't want to hear me talk about it and it is a sensitive topic that I don't really feel comfortable discussing with anyone else. My husband is my best friend and I thought he would support me and be there for me and I was wrong. That hurts so bad I can't even describe it.

I am taking Tylenol, Immodium, and HYOMAX-SL SUB 0.125MG, which doesn't seem to help at all.

mbx5
Regular Member


Date Joined Sep 2007
Total Posts : 365
   Posted 6/6/2009 7:52 PM (GMT -6)   
I would possibly check out another GI, and have your husband and yourself meet with him with your recent colonoscopy results, or do the same with your current GI.... It is much easier with a supporting spouse. If my wife was unsupportive and thought I was faking, it would be very difficult...it makes it harder to feel relaxed, etc...
Stats:35 yr old male. UC for 15 years.
location:North Western PA
DX: Left sided UC, most recent scope 5/20/09 UPMC Pittsburgh Presbeterian
Medications:20mg pred (as of 4/27/09), 12x pills Asacol per day, 100mg Imuran per day, 1mg Atavan per day (anxiety) when needed, 20mg paxil per day, Super-omega fish oil pills - 1x per day, Flax oil pills - 1x am, 1x pm, Culturelle probiotics - 2x am, 1x pm, Vitamin B-12 injections weekly.
Surgeries: Recent Endonasal brain surgery to remove non-cancerous hormone producing tumor on pituitary gland (and I am still more afraid of my UC!!)

"I poop in the woods because I can"

Post Edited (mbx5) : 6/6/2009 8:55:22 PM (GMT-6)

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