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TLB37
Regular Member


Date Joined Dec 2008
Total Posts : 79
   Posted 6/6/2009 10:00 AM (GMT -6)   
   Hi, i'm new here but not to uc have had it for 20 years  cry  . It has been a long road for me the last 4 years have been awful. But the last 3 months i have seen a big turn a round.  I'm doing so much better. yeah I having been reading on here for a while now and well thought it was about to time i said hi !!   So hi everyone
    Female 37
 
   20 years of Ulcerative Colitis
 
  meds,  2 Lialda, 3 Azathioprine, 1 Celebrex, Cymbalta, Mirtazapine,
               TLB ( :


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 6/6/2009 10:06 AM (GMT -6)   

Hi!  I am one of the seniors here - diagnosed when 67 years old.  What do you attribute your turn around to?

ElaineNY


 
Senior - New diagnosed with proctosigmoiditis - 6/2008   Tried, Colozal, steroid enemas, etc. - started working but severe side effects occurred. No mesalamines!!
Started on prednisone Feb.7, 2009 - tapering to 20 mg. - upped prenisone to 25mg. on my own (bleeding returned) - 6MP - 50 mg. 2/28/2009 - staying on 10 mg. prednisone also until visit with specialist.
 
Probiotic Align, Prilosec for GERD, Gas-X, vitamins, Calcium/D
Tylenol for knees and arthritis.
 
 
 


TLB37
Regular Member


Date Joined Dec 2008
Total Posts : 79
   Posted 6/6/2009 10:23 AM (GMT -6)   
 
  Well my dr put me on Lialda as my last resort . Well it helped alot  but i was still having lot of trouble so i started looking at my dite and and well i cut out sugars and that was when i really started to feel better. Im still going 3 to 6 times a day but its much better . And the pain is almost gone . I was living in so much pain my stomach hurt all the time.
    Female 37
 
   20 years of Ulcerative Colitis
 
  meds,  2 Lialda, 3 Azathioprine, 1 Celebrex, Cymbalta, Mirtazapine,
               TLB ( :


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 6/6/2009 10:24 AM (GMT -6)   

Glad you said that about sugar.  I am going to a specialist in a couple weeks who seems to agree with you about sugar and diet helping.  I am anxious to find out because I am a sugar addict and trying so hard to cut back.

ElaineNY


 
Senior - New diagnosed with proctosigmoiditis - 6/2008   Tried, Colozal, steroid enemas, etc. - started working but severe side effects occurred. No mesalamines!!
Started on prednisone Feb.7, 2009 - tapering to 20 mg. - upped prenisone to 25mg. on my own (bleeding returned) - 6MP - 50 mg. 2/28/2009 - staying on 10 mg. prednisone also until visit with specialist.
 
Probiotic Align, Prilosec for GERD, Gas-X, vitamins, Calcium/D
Tylenol for knees and arthritis.
 
 
 


TLB37
Regular Member


Date Joined Dec 2008
Total Posts : 79
   Posted 6/6/2009 10:31 AM (GMT -6)   
  O i was too now the only sugar i get is from fruit  and veggies and i feel so much better . I have been six weeks with no sugar and i don't miss it at all . Give it a try and just see how you feel.
    Female 37
 
   20 years of Ulcerative Colitis
 
  meds,  2 Lialda, 3 Azathioprine, 1 Celebrex, Cymbalta, Mirtazapine,
               TLB ( :


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 6/6/2009 10:47 AM (GMT -6)   
Welcome! Why do you say that Lialda is a "last resort?" It's viewed as a first-line med in UC treatment and as a 5-ASA drug, is one of the safest to use long-term. Usually, drugs like Remicade are viewed as the last resort.
Status: Remission since late May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Eased for ~3 weeks in December, possibly b/c of probiotic use?
Returned in January 2009 (with a vengeance), diagnosed with pancolitis on January 30.
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa twice weekly, Culturelle probiotic, and Zoloft (25 mg).


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 6/6/2009 10:57 AM (GMT -6)   

Yes, I wish I could tolerate the mesalamines as they are the safest and best in the long run if they work for you and you can take them. 

Question about sugar - I can't eat raw fruit or veggies - what are your suggestions - canned?  They have to be well cooked! Also, do you use any artificial sweeteners.  I just started Stevia and does not seem to bother me - only use it in tea and coffee.

ElaineNY


 
Senior - New diagnosed with proctosigmoiditis - 6/2008   Tried, Colozal, steroid enemas, etc. - started working but severe side effects occurred. No mesalamines!!
Started on prednisone Feb.7, 2009 - tapering to 20 mg. - upped prenisone to 25mg. on my own (bleeding returned) - 6MP - 50 mg. 2/28/2009 - staying on 10 mg. prednisone also until visit with specialist.
 
Probiotic Align, Prilosec for GERD, Gas-X, vitamins, Calcium/D
Tylenol for knees and arthritis.
 
 
 


TLB37
Regular Member


Date Joined Dec 2008
Total Posts : 79
   Posted 6/6/2009 11:03 AM (GMT -6)   
   I was on Remicade and could not tolarate it i have been on dipentum,ascol, and could not tolarate them and i'm
alergic to sulful med .  So can't take them .Over the years i have taken so much pred. that it made my sugar go up so thats now out also. So My gi said i had nothing to try but lialda. and thank the lord so far so good. 
    Female 37
 
   20 years of Ulcerative Colitis
 
  meds,  2 Lialda, 3 Azathioprine, 1 Celebrex, Cymbalta, Mirtazapine,
               TLB ( :


TLB37
Regular Member


Date Joined Dec 2008
Total Posts : 79
   Posted 6/6/2009 11:13 AM (GMT -6)   
umm I eat the canned fruit and veggies i just make sure its no sugar added . and i do fine with fresh fruits and veggies also and i only drink water always have . So i don't use sweeteners sorry .
    Female 37
 
   20 years of Ulcerative Colitis
 
  meds,  2 Lialda, 3 Azathioprine, 1 Celebrex, Cymbalta, Mirtazapine,
               TLB ( :


quincy
Elite Member


Date Joined May 2003
Total Posts : 30603
   Posted 6/6/2009 11:15 AM (GMT -6)   
Hi..welcome to the forum!

Your doctor should consider for you to use rectal meds.
 
It's great you're feeling/doing much better!
 
I was diagnosed 20 years as well....hoping to maintain the status quo for a while yet.


q


*Heather* Status: mild flare enemas tapered to every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 x2 daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


TLB37
Regular Member


Date Joined Dec 2008
Total Posts : 79
   Posted 6/6/2009 11:27 AM (GMT -6)   
ya know thats the one thing he has not tried . I go to see him in a few weeks and im going to ask about that. . cause let me tell you im not going to let this us win ! I do not want to have my colon removed !!! I have made my mind up i will try most anything chang my dite , Im even trying yoga for stress lol
    Female 37
 
   20 years of Ulcerative Colitis
 
  meds,  2 Lialda, 3 Azathioprine, 1 Celebrex, Cymbalta, Mirtazapine,
               TLB ( :

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