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Hellokitty
Veteran Member


Date Joined Mar 2009
Total Posts : 765
   Posted 6/6/2009 12:58 PM (GMT -6)   
I have just read about this deit. Most of things that are restricted are things I eat and the the things that you are allowed to have I don't.
 
 
Has any one done this and achived remmission with it. I am wondering as it contains meat and I havent eaten meat for years except for at Christmas. And making yourgart is that dairy. Can you do this without milk
Female 32 years old
 
Diganosed ulcerative colitis November 2007
Present medication- 1X 500mg pentasa in the morrning= 250g pentasa and 1 X250g Asacol every other evening
Diet- Tried raw food diet with 80% raw foods, found some pro's and cons. Started to add more products to keep up weight as mine did not balance. Still eating raw spinage and still am combination eating. No dairy No gluten.  
 
Other medical problems- Born with asthma- no medication taken for this.
dyslexia- found out that many people with learning difficulties also have food sensitivity


herbalgerbals
Regular Member


Date Joined Feb 2009
Total Posts : 85
   Posted 6/6/2009 1:44 PM (GMT -6)   
I think you really need to evaluate what is best for you kitty... no one diet will work for everyone.

For me, what is working great, is fruit all morning/afternoon, veggie juice etc. in the afternoon, romain lettuce and a simple meat dish at night, nothing crazy..

All Iknow, is I do best with out grains, carbs/starches, nuts, seeds, etc...

blankslatejoe
Regular Member


Date Joined Jun 2006
Total Posts : 71
   Posted 6/6/2009 4:41 PM (GMT -6)   
I did SCD for 9 months a couple of years ago. I treated it as a religion--just like the book tells you to--adhering to it so closely and fanatically that I ended up blindly thinking it was helping me when it clearly wasn't. I restarted the diet three or four times, going 'back to the basics' to detox my body...My weight dropped 50-60 pounds, despite eating as much of the 'legal' foods as I could possibly cram in my mouth. I got so light I was running the risk of organ failure. My immune system gave up, I would openly bleed from small cuts for hours, I lost clumps of hair, and I was STILL having to run to the bathroom every half hour. It flat out didn't work for me, and nearly killed me.

That said, I think the diet must work for some people--there are too many success stories. I've talked directly with people over at SCD bakery and on the SCD mailing lists and people can really improve on the diet. Just be prepared to lose weight in the beginning, till you get into the midst of the diet. If your UC stabliizes enough you can regain it. Just try and recognize early if the diet is not going to work for you--if you're losing a ton of weight and still have too many symptoms of UC after 4 or 5 months, then STOP SCD.


As for the yogurt, yes it's dairy but it's lactose-free, as proper SCD yogurt creation removes all lactose. It was the best thing about the diet, and I'll still occasionally get cravings for it. It's pretty awesome when you make it with half and half.

Goodluck!

Hopingforacure
New Member


Date Joined Jun 2009
Total Posts : 16
   Posted 6/6/2009 5:43 PM (GMT -6)   

Hi Kitty!

I just started SCD this week - too soon to tell if it's helping, but after being on massive doses of prednisone and refusing to take the 6mp - I am willing to give it a shot.  I am 32 and want to have children someday, all the drugs we have to take was making me worry if that would ever be possible.

Here is my thinking - there are so many success stories that it's worth a shot - there are also sites that talk about doing the diet as a vegetarian. 

Good luck!


Jamie : 32 : Female
Diagnosed 12/97
Started SCD this month : 40 mg of prednisone : Rowasa
 
 


blueclassring
Regular Member


Date Joined Feb 2007
Total Posts : 385
   Posted 6/6/2009 7:21 PM (GMT -6)   
I do want to point you out to various resources.
 
pecanbread.com
healingcrow.com
scdiet.com
 
All find the message board that Gottschall had going for a while.  I read that for inspiration.  Stay away from the yogurt and nut flours for a while, until diarrhea is gone.  Supplement with a good probiotic instead. 
 
All good resources with valuable info about the diet. 
 
2nd go around with the diet.  In remission right now.  Started to flare after straying far from the diet.  Darn, I want pizza and chinese food so bad
 
 
Diagnosed 8/99. Suffered for almost 10 years. I am currently on the Specific Carbohydrate Diet and am nearing remission. I feel fantastic! I have lossed so many years to this disease.

MED-FREE!!!

Doc wanted to put me on 6-mp or Remicade, but I refused to take the medications! Currently on the Specific Carbohydrate Diet.  I'm in remission and life is like it always should have been.


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 6/7/2009 3:33 PM (GMT -6)   
The general principles of the diet have worked well for me: high protein, low carb, high healthy fats. Little or no grains or starchy veggies. I'm a heretic in that I feel you shouldn't necessarily stick to the diet "fanatically." There are some things that are allowable that may be problematic for you personally - like the yogurt. There may be some restricted foods that you're able to tolerate in moderation. Experiment, keep a food journal to track your reactions and adjust accordingly.
Diagnosed with ulcerative colitis spring 1999. Have been in remission for years with only a few minor blips.
 
Maintenance dose sulfasalazine. Probiotics, vitamin D, fiber supplement and fish oil caps. George's aloe vera juice and l-glutamine for gut healing. Mostly grain-free and dairy-free low carb diet.
 
 


Russ Nobbs
New Member


Date Joined Jun 2009
Total Posts : 3
   Posted 6/27/2009 1:23 PM (GMT -6)   
Kitty,
You can adjust the SCD to your preferences. The point (as I understand it) is to avoid ALL long chain complex sugars and carbohydrates. I'm med free and on the diet since '97.

Just as every drug does not help each person in the same way, the SCD does not help every IBD sufferer the same way. MuI GI doc has one Chronie who found that taking fish oil was enough without major diet change. I needed to go the whole way on the diet and can now tolerate a tiny amount of illegal foods.
Crohn's since 1996, Rx of Sulfa & Pred helped symptoms, but turns out I am deathly allergic to Sulfa. Sulfa nearly killed me with "drug fever" and finally kidney failure. I survived and discovered SCD diet, Chinese herbs, Probiotics, Fish oil. etc. Exploring theory that physical trauma may be root of my autoimmune disease.

Today Rx med free and mostly symptom free. Turned 65 in'08.
SCD does not work for everyone. (Neither does every drug therapy work for every one.)
But SDC DOES work for 1000's of IBD sufferers.


P-Fit
Regular Member


Date Joined Jun 2008
Total Posts : 419
   Posted 6/27/2009 2:49 PM (GMT -6)   
What effect does a SCD have on cholesterol levels? t is high in animal proteins?

Dee-39yrs old wife and mom of 3 boys
UC since 2004/PTSD/Panic Attacks/Depression/myofacial pain syndrome 2009-750mg colozal/1,000mg canasa/.5mg clonazepam, 4mg Lexapro-/Fioricet/Prilosec OTC-2x daily, Entorcort 9mg, Triple Strength Fish Oils/Colonoscopies-4
 


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 6/28/2009 5:29 PM (GMT -6)   
Dietary cholesterol has less effect on blood cholesterol levels than most people think. My cholesterol was high when I ate the Standard American Diet of low fat, but high carb sugary junkfood. After I got sick and started the SCD - eating eggs, butter, meats, olive oil, fish oils - my cholesterol was low. When compared with previous levels, the lab tech said, "Whatever you're doing... keep doing it!"
Diagnosed with ulcerative colitis spring 1999. Have been in remission for years with only a few minor blips. Scope on 6/22 showed no inflammation at all.
 
Maintenance dose sulfasalazine. Probiotics, vitamin D, fiber supplement and fish oil caps. George's aloe vera juice and l-glutamine for gut healing. Mostly grain-free and dairy-free low carb diet.
 
 


blueclassring
Regular Member


Date Joined Feb 2007
Total Posts : 385
   Posted 6/28/2009 10:39 PM (GMT -6)   
Yeah, I often wonder about this as well. I need to have my physical done soon.
Pharmacist as of 6/12/2009.
Diagnosed 8/99. Suffered for almost 10 years. I am currently on the Specific Carbohydrate Diet and am nearing remission. I feel fantastic! I have lossed so many years to this disease.

MED-FREE!!!

Doc wanted to put me on 6-mp or Remicade, but I refused to take the medications! Currently on the Specific Carbohydrate Diet.  I'm in remission and life is like it always should have been.


LuckyLindy
Regular Member


Date Joined Feb 2009
Total Posts : 226
   Posted 6/30/2009 11:19 AM (GMT -6)   
SCD didn't help at all until I cut out the fruit as well. As soon as I went virtually carb-free (basically strict Atkins), all my symptoms disappeared immediately. If I eat carbs (a guy has to cheat every once in a while), my D and even blood come back within days.

Wish I understood why though (suspect some type of bacterial infection) ... I'd LOVE to eat normal food regularly someday.

princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 6/30/2009 1:27 PM (GMT -6)   
LuckyLindy said...
Wish I understood why though (suspect some type of bacterial infection) ... I'd LOVE to eat normal food regularly someday.
Check out the book Optimal Digestion. It's a fabulous source of information on healthy digestion, how the system is supposed to work, what can go wrong and ways to restore balance. It's written by a collection of cutting edge gastro docs and technicians. IMHO, it should be required reading for everyone who has IBD. It's amazing how little we really know about our own digestive systems.
 
And I'll keep saying it: Diet is just once piece of the puzzle. In most, if not all, cases, diet needs to be combined with other therapies to heal the gut and restore healthy gut ecology.


Diagnosed with ulcerative colitis spring 1999. Have been in remission for years with only a few minor blips. Scope on 6/22 showed no inflammation at all.
 
Maintenance dose sulfasalazine. Probiotics, vitamin D, fiber supplement and fish oil caps. George's aloe vera juice and l-glutamine for gut healing. Mostly grain-free and dairy-free low carb diet.
 
 

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