Husband finally opened up (See post confused about colonoscopy results)

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Jenn C
Regular Member


Date Joined May 2009
Total Posts : 31
   Posted 6/7/2009 6:42 PM (GMT -6)   
My husband finally opened up after I started crying about him not being supportive. He is scared, he is thinking about things that haven't crossed my mind yet, like cancer and poo bags. I told him not to kill me off before I even have a diagnosis.

I don't want to wait 3 weeks for my biopsy results, so I am calling the Dr office tomorrow and asking when for sure will have the results and can they call me with them instead of me having to wait. I am also going to ask if I can get an appointment sooner than 3 weeks so I can start feeling better sooner than later.

I don't want to switch Drs if I don't have to, he is good and takes time to talk to me, and the next closest one is an hour drive from me, and I don't even know if he is a good Dr. or not.

kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 6/7/2009 7:19 PM (GMT -6)   

Glad you and your hubby were able to communicate about this.  I know after being married 48 years that it is hard to open up sometimes and tell our spouse our fears, etc. 

Good luck and try to relax until you actually know the answers!

ElaineNY


 
Senior - New diagnosed with proctosigmoiditis - 6/2008   Tried, Colozal, steroid enemas, etc. - started working but severe side effects occurred. No mesalamines!!
Started on prednisone Feb.7, 2009 - tapering to 20 mg. - upped prenisone to 25mg. on my own (bleeding returned) - 6MP - 50 mg. 2/28/2009 - staying on 10 mg. prednisone also until visit with specialist.
 
Probiotic Align, Prilosec for GERD, Gas-X, vitamins, Calcium/D
Tylenol for knees and arthritis.
 
 
 


kretinist
Regular Member


Date Joined May 2009
Total Posts : 33
   Posted 6/7/2009 7:33 PM (GMT -6)   
Thats so good he was able to talk about it! My husband still has a hard time talking about our son's UC and its mostly for the same reasons. He's afraid of what might happen but thinks that if we talk it will just make it worse. I'm sooooo the opposite and need to talk about everything!

As long as you are comfortable with your doctor right now then I wouldn't switch. We've done that before and it took us even longer to get some answers. Just hang in there hun and all of the best luck to you!
Mom to:
 
Number One Son -
Sigmoidoscopy followed by full bowel study 3/2008
DX with ulcerative colitis 3/2008
Blood transfusion 3/2008
Hospitalization for two weeks
Stroke caused by colitis 3/2008
ICU for two weeks
Second blood transfusion
Rehab in-hospital for two months
Colonoscopy 6/2008
Not in remission
 
 


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 6/7/2009 7:37 PM (GMT -6)   
Silly boy! I can understand his concerns, but living with a poo bag isn't all that bad, I hear. And very few people with UC die from it, and even though our chance of getting colon cancer is somewhat higher, I actually view it as not being that big of a deal since we get colonoscopies more often, so it's likely going to be caught earlier. Anyway, I hope that he's a bit more supportive now! Maybe have him look at the ccfa.org website. I think there's some good info on there for families of UC/Crohn's people.
Status: Remission since late May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Eased for ~3 weeks in December, possibly b/c of probiotic use?
Returned in January 2009 (with a vengeance), diagnosed with pancolitis on January 30.
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa twice weekly, Culturelle probiotic, and Zoloft (25 mg).


notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16744
   Posted 6/7/2009 8:17 PM (GMT -6)   
That's good that he was willing to show his sensitive side. My boyfriend always says how I am being a baby and that I exaggerate and that I am "fine". He even goes so far as to say that my doctor told him I am fine, which I know she didn't because he never spoke to her when I wasn't there - I would remember that. I am definitely not fine and I was in really bad health a few months ago. I could barely make it across the room without passing out from weakness. He says I make that up. I offer up my bloodwork for proof but of course it's never enough. You're lucky that he is willing to be open and wants to be supportive of you. Whatever happens you guys will get through it together. I am sure you will get good results and your fears will disappear. Really surgery isn't the end of the world, most people who have had surgery have never looked back and enjoy life more after.
Diagnosed with mild proctitis in March 2007: Treated with Canasa (as needed)
December 08: Began treating with Asacol 400mg (9/day) + Canasa 2x/day - Anemic
May 09: Off Canasa, taking Asacol (9/day)
Back on Canasa every other night + Asacol (9/day) + Probiotics + Iron
Reducing to 6 Asacol/day + Canasa + Probiotics + Iron - So far so good!!! -SPOKE TOO SOON! Back to 9/day...


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 6/7/2009 8:57 PM (GMT -6)   
It doesn't surprise me that he's scared and I don't blame him for the fears he mentioned (cancer, osotmy bags) it's very natural to have fears of those things even if cancer is found and cured and lets face it, most people don't like the idea of having a crap bag hanging off their bodies let alone their partners so he has every right to feel the way he feels, afterall feelings are neither right or wrong. It's great he opened up to you about it all, good communication is key now you know he cares and is scared, not insensitive and mean. Lots of people deal with cancer and "bag's" everyday (their partners included), some people learn that they can deal with those issues fine, others can't, it is what it is, lots of people here at HW have gotten divorced and gone through relationship break-ups over the yrs and many of them have found new partners in life that deal with their IBD issues just fine.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


jeanneac
Veteran Member


Date Joined Feb 2009
Total Posts : 1916
   Posted 6/7/2009 9:47 PM (GMT -6)   
I feel SO lucky to have a good husband. We have not been married that long and I got sick about 1-2 years after we got married. I felt so bad about it, especially since his first wife had a long illness and died when she was fairly young. I told him he should have married a younger woman.  turn       He takes it in stride that I have to make mad dashes for bathrooms sometimes because of my stomach. We are not young, so perhaps that we understand illness more than young folks. I guess I am grateful for that. I can't imagine how hard it would be to have an unsupportive spouse or family members. Hang in there.
diagnosed 1/09 with colitis & diverticulitis
 54 yo, colazal, fish oil, synthroid, cymbalta
good results w/ acupuncture


Sweetie31105
Veteran Member


Date Joined Aug 2008
Total Posts : 903
   Posted 6/7/2009 10:30 PM (GMT -6)   
My hubby is totally open about my UC. He's more paranoid about the food offered at other peoples places than me. He's the first to ask questions about what's in the food before ordering it. It's nice to have a guy who worries about you.
Good luck on getting the results.

Jeanneac: Random! you were diagnosed about the same time frame I was diagnosed in the marriage. I was in the middle of my diagnosis when I celebrated my 2 year anniversary with my hubby.
27 year old, Married, Female.
Diagnosed with UC since March 2007

Taking Humira and Imuran since May 2007 (Currently in remission since May 2007)
Taken off Imuran 1/15/09
Only taking Humira.

Can't take Asacol, Allergic to Remicade


jeanneac
Veteran Member


Date Joined Feb 2009
Total Posts : 1916
   Posted 6/8/2009 1:02 PM (GMT -6)   
Wow, that is a coincidence about our timing, isn't it? I hate it for my husband and for me too but I count my blessings for today. It can always be worse!
diagnosed 1/09 with colitis & diverticulitis
 54 yo, colazal, fish oil, synthroid, cymbalta
good results w/ acupuncture

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