New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Omans
New Member


Date Joined Mar 2009
Total Posts : 18
   Posted 6/7/2009 9:37 PM (GMT -6)   
Hello,
I had been flaring for a couple of months now. I'm on 60mgs of prednisoe, taking 12 Asacol a day and doing Rowasa enimas and I am feeling great. My diet is completely void of any fiber (mostly just meat and bread), however, so now that the urgency issue is out of the picture, I'm only using the restroom once or twice a day (which is normal for me when I'm in remission). I have no blood typically, but if for some reason I start getting constipated (due I guess to my diet) or when I haven't had a BM in a while, when I do finally have a BM, there are streaks of blood in it. I'm starting to think that maybe this is due to Hemroids, and my Zero Fiber diet, not the UC, because I can have 2 or 3 BM in a row with no sign of bleeding. Has anyone had this experience before? I just read that I should eat bananas, any other advice? Should I take metamucil wafers?

Thanks
28 Years Old.
Diagnosed Dec 2007
3 Asacol 2x a day; Prednisone During Flares
Typically flare once a year.


quincy
Elite Member


Date Joined May 2003
Total Posts : 30976
   Posted 6/7/2009 10:08 PM (GMT -6)   
Hi...you should try to incorporate more foods into your diet.
Metamucil wafers work for some, others not...I prefer the capsules as well as the powder smooth....you'll have to try to find what works for you.

It's good you're on the enemas...and the constipation could be in part of lower in the rectum inflammation...which means you're healing, and the fact that you might not be eating enough.

If you like bananas, have one. They give me horrific cramping gas (have always), but the greener they are, the less gas...go figure. You have to try them and see.

Can you eat eggs, potatoes, other fruit, veggies, etc?
There are different varieties....but ones that may cause you more gas may not be comfortable. Maybe choose to eat less gassy foods, but more of them to keep your colon exercised.

What did you normally eat before you were diagnosed? What foods do you like? What foods do you find cause you more discomfort?

You're still on pred and will have to taper.....I would suggest you stay on the enemas or go only to every second night once you're without bleeding...if you continue to bleed, go back to nightly. It's OK to adjust.

There are different kinds of fibre...some increase activity, some lessen activity, some increase peristalsis, some slow it...etc.

Experimenting will NOT make your flare worse.....but this really is a good time with you being on meds to start adding more foods.

Keep a food diary if you like, but remember that some food digestion can take a day to 3 days till it comes out as a bm.

quincy
*Heather* Status: maintenance Asacol 6 daily + Salofalk enemas every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 x2 daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


Omans
New Member


Date Joined Mar 2009
Total Posts : 18
   Posted 6/7/2009 10:14 PM (GMT -6)   
Thanks Quincy, this is the exact kind of advice I wish my doctor would give me. I completely abandoned fiber, because I thought they would cause irritation and increase bleeding. I'm not at all concerned about I'll start to incorporate it back in to see if that helps. It is good to know that experimenting won't make my flare worse.
28 Years Old.
Diagnosed Dec 2007
3 Asacol 2x a day; Prednisone During Flares
Typically flare once a year.


quincy
Elite Member


Date Joined May 2003
Total Posts : 30976
   Posted 6/7/2009 10:30 PM (GMT -6)   
Well, that will be poo-poo'd by those who may believe that food causes flares, but I've never had it happen.

before I was diagnosed and in pretty bad shape, I was afraid to eat because I had diarrhea all the time....I kept a food diary and was an emotional mess.

Eventually the bleeding started and my "then" doc sent me to a GI....diagnosis found and I had to gain back the almost 20 pounds I lost. I did avoid whole grains and foods that caused me discomfort depending on the time of day, but I took full advantage of adding foods, etc.

Not all foods agree with me, but that's the same with everyone. I was guaranteed by my doc that my flare wouldn't get worse...but I was taking my meds faithfully.

While tapering, going off meds, etc...I eventually found the proper regimen and was given free decision regarding the rectal meds.

I burned the food diaries...they didn't jibe anyway...it made me more crazy and felt like I was trapped.

So, freedom is perceived....I have enough stress, and I eat what I want. Should I eat all I do, probably not based on the common sense of food choices, but basically it's balanced.

I also take probiotics, supplements and Metamucil fibre capsules with breakfast and supper.

So far, doing OK....but did add graduate up to 3 pills from one with each meal...etc.

But, what works for me may not for everyone else....obviously since I'm not a follower of any specific diet.

Hang tough....experiement. It's better to try different things than to believe one thing and feel guilty that you're doing something wrong.
Different kind of control....more to it, methinks than just food.

quincy
*Heather* Status: maintenance Asacol 6 daily + Salofalk enemas every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 x2 daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 6/8/2009 1:01 AM (GMT -6)   
Some fibre daily is always better than none at all, fibre aids with both/either D or C and should really never be completely avoided...a combination of soluble and insoluble is best but some find they do better with either one or the other, regardless fibre is needed on a daily basis even if it's via supplementation form (I do well with one called Prodiem, which is similar to metamucil) it took time (3 months) for my system to adjust to it and the adjustment period consisted of giving me increased excess gas and bloating but it was soooo worth it cuz now I can eat all fibreous foods (popcorn, all fruits, veggies and nuts/seeds) and I now longer get gassy or bloated from them. My GI told me 5 ish yrs ago to start taking fibre supplements daily and indefinitely and it was the best advice I've ever gotten.

I'm not sure if a hemmie would cause blood to be streaked in your stool, it's possible but I've never had that experiance, when I have had hemmies in the past the blood from it wasn't ever streaked through my stools but that's not necessarily to say that it couldn't, you should talk to your doc about that.

Glad you seem to be doing as well as you are though, hope it lasts for a long long time.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)

New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, September 19, 2018 12:08 AM (GMT -6)
There are a total of 3,004,518 posts in 329,151 threads.
View Active Threads


Who's Online
This forum has 161743 registered members. Please welcome our newest member, worldmicroblade.
274 Guest(s), 2 Registered Member(s) are currently online.  Details
RunJerRun, noodlesnoodles