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kretinist
Regular Member


Date Joined May 2009
Total Posts : 33
   Posted 6/8/2009 2:01 PM (GMT -6)   
In the months prior to his dx, my son started sleepwalking, during which times he would lose control of his bowels.  He still does this.  Anyone else experience this?  Or any other sleep problems?   
 
Mom to:
 
Number One Son -
Sigmoidoscopy followed by full bowel study 3/2008
DX with ulcerative colitis 3/2008
Blood transfusion 3/2008
Hospitalization for two weeks
Stroke caused by colitis 3/2008
ICU for two weeks
Second blood transfusion
Rehab in-hospital for two months
Colonoscopy 6/2008
Not in remission
 
 


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 6/8/2009 2:14 PM (GMT -6)   
I sleptwalked (is that the past tense of sleepwalk???) occasionally when I was a kid, but I didn't have UC then. I can see why he'd loose control of his bowels when he sleepwalks, though. When I was flaring and would have to get up with my son at night (he's almost 8 months), I'd ALWAYS have to run to the bathroom. Being up and moving after seemed to get things moving. Aren't people in a really deep sleep when they're sleepwalking? If so, that makes sense why he wouldn't wake up and realize he's got to poo.
Status: Remission since late May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Eased for ~3 weeks in December, possibly b/c of probiotic use?
Returned in January 2009 (with a vengeance), diagnosed with pancolitis on January 30.
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa twice weekly, Culturelle probiotic, and Zoloft (25 mg).


kretinist
Regular Member


Date Joined May 2009
Total Posts : 33
   Posted 6/8/2009 2:29 PM (GMT -6)   
It's weird. He'll get up and try to open the front door. I'll ask him where he's going and he says 'to the bathroom'. Or he'll wander around the kitchen and go over to the computer. He always says 'to the bathroom'. I think some part of him knows he has to go. It's just so creepy to watch....He's not losing control as much now as when he first started doing it but I think that's because he's got a bit more control with the prednisone even though his stool isn't any firmer.
Just one more thing for the doctors to look at me like I'm crazy for.... :P
Mom to:
 
Number One Son -
Sigmoidoscopy followed by full bowel study 3/2008
DX with ulcerative colitis 3/2008
Blood transfusion 3/2008
Hospitalization for two weeks
Stroke caused by colitis 3/2008
ICU for two weeks
Second blood transfusion
Rehab in-hospital for two months
Colonoscopy 6/2008
Not in remission
 
 


rouns
New Member


Date Joined Apr 2008
Total Posts : 9
   Posted 6/8/2009 9:27 PM (GMT -6)   
For several years I sleepwalked.

Haven't for quite a while.

It's not related to my UC, but I can tell you from the walker's experience what it is like. I was always trying to go outside, and would get lost in the house often, sometimes stuck in a corner, and sometimes make it outside.

My husband would come to retrieve me, he would speak firmly to me, and lead me back. The next day I had little to no recollection of the event.

When he was speaking loudly to me, all I would hear would be a faint whisper, barely noticeable. He said I would carry a conversation, and talk normal, and look awake.

It was just weird, I have no bad feelings about it, because I recall so little. I recall stories of when I was a child, that I sleepwalked. Seems to occur during unstable times in my life.
Diagnosed 1978, first proctitis, left sided UC diagnosed a few years ago, and bilateral uveitis and in '09 rheumatoid arthritis

Current meds: Lialdia 4.8 mg/day, Canasa.


Born in 1957.


suebear
Veteran Member


Date Joined Feb 2006
Total Posts : 5698
   Posted 6/9/2009 8:13 AM (GMT -6)   
I'm a sleepwalker and have been since before I had UC, when I had UC, and now without a colon. Several times I have answered the same question upon where I am going...To the bathroom!! However, I have never lost control of my bowels or of my urine. I enjoy these random episodes and usually remember them in the morning. Oh, and I also have vivid dreams of which I remember too.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free

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