Remicade and swollen lymph nodes???

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uclife
Regular Member


Date Joined Aug 2007
Total Posts : 50
   Posted 6/8/2009 2:12 PM (GMT -6)   
HI there everyone,
 
I am back with yet another problem.  I went to my family doc today because I have had some bad pain in my right armpit, breast area.  He did an exam and found that my lymph nodes were swollen, he said it was pretty bad.  I knew something was wrong when the pain worsened while being examined.  He ordered me a mammogram and sonogram to rule out any masses other than the swollen lymph nodes. I have not and do not feel ill either. 
 
Now.....I have been on remicade and he told me that this is a side effect.  I am confused and scared.  I was not expecting this type of side effect after only 2 treatments.  I am to have my 3rd treatment this week and am very afraid to get it.  I called my GI doc and left a msg letting him know of my situation and that I was unsure if it would be wise to have my remicade treatment since we are trying to rule out what might be causing my swollen lymph nodes.  What confuses me the most is I was told not to have remicade if I felt sick, was sick or had any signs of illness for that matter.  Well, swollen lymph nodes tell me that my body is fighting something.  I just have a hard time trusting the girl who administers the remicade...she seems so pushy.
 
Has anyone had any similar problems with Remicade??
 
Thanks for your help!
 
Amy
Amy
32 yr old
Pancolitis since oct 06  told I have crohns-colitis over lap 10/08
waiting on that remission
asacol 12 daily, canasa suppositories, protonix, iron supplement, ativan, Prednisone started at 30mg now on 10mg daily. 
Started remicade 4/28/09....no notice of relief yet
Trying to stay positive!!
 


Katmom
Veteran Member


Date Joined Mar 2008
Total Posts : 1202
   Posted 6/8/2009 8:42 PM (GMT -6)   
No similar problems, but I would be frightened too. The lymph nodes are telling you something...Ck with the GI, not the infusion gal!
Goodluck
Daughter,15 diagnosed 1-08 w/ UC .
Previous drug sampling: Asacol, Prevacid, Flagyl, Prednisone- 50mg to 0, 4 major flares '08.Hospital four x. Low residue diet,
6MP, Colazal , Cortifoam enemas,
Trying probiotics, Niferex, fish oil, Magnesium, Acupuncture.
Remicade 10mg per kilo@ 8wks, since 10-08. Still on 6mp and Colazal


jones_77
Regular Member


Date Joined Dec 2005
Total Posts : 77
   Posted 6/17/2009 7:47 AM (GMT -6)   
Hi UCLife,

Sorry I'm seeing this a bit after you've posted it. I too have had a swollen lymph node - in the left groin area, right above my colon - on and off for the past year or so. I'd also wondered if this was the remicade, but was told that wasn't the case (...not sure I buy that). My doc actually sent me for an ultrasound to determine if the node looked cancerous, and thankfully, it didn't. I'm hoping you've gotten the same news!

For me, the swollen lymph node comes and goes. What's odd is that I stopped taking Remi back in February, and just in the last few days have had a new incidence of swelling, this time with pain. Does seem weird. Swollen lymph nodes are an immuno response, and as people with active auto immune diseases, we're good candidates for inflammation manifesting all over. I'm eager to hear what you find out.

Best luck,

Jones


____

DX'ed 6/03, have taken most everything including Remicade, 6MP, pred, asacol, colazol... the works
Currently med free and 14 weeks pregnant - YAY!

ericsoaps
Regular Member


Date Joined Nov 2010
Total Posts : 42
   Posted 7/4/2011 9:43 PM (GMT -6)   
Hi Amy I feel like I should cut and paste your entry because I feel the exact same way and have the same symptoms right now. I know it's been a while so reply back and update me on how everything turned out ! Take care Eric
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