arthritis, joint pain, etc. etc.

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Regular Member

Date Joined Feb 2009
Total Posts : 85
   Posted 6/8/2009 5:55 PM (GMT -6)   
Due to your colitis/crohns disease,

What locations of your body do you suffer from pain??

Ive been expereincing lower back pain, neck/shoulder tension, and discomfort in my wrists..

Ive read that this could be arthritis becuase of my colitis and/or my medications like 6mp or prednisone

any thoughts?
again, where do you experience your pain /discomfort, how long does it last, please give me as much detail as you can.. thanks.
Balance is Key. Nature Intended.
Eat for Optimal Digestion.
Fruit. Vegetables. Meat.
Veggie Juice, Coconut Water.
Raw Honey, Raw Bee Pollen.
90% Raw. 10% Cooked.
5% Fat. 10% Protein.

Food Combining.
6mp. Colazal.

Veteran Member

Date Joined Feb 2009
Total Posts : 7150
   Posted 6/8/2009 6:09 PM (GMT -6)   
I'm lucky, and basically have NO pain due to my UC. Even when my flare was at its worst (severe urgent diarrhea 15+ times a day), I didn't really have any gut pain at all; maybe just a little cramping, but really nothing.

I have occasional lower back pain when I overdo it and try to lift too much or something, but that's because I hyperexdended my back with I was in 5th grade doing gymnastics.

I also have a 20-lb almost-eight-month old, so I have occasional sore muscles on days when he's cranky and wants held a lot! :)
Status: Remission since late May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Eased for ~3 weeks in December, possibly b/c of probiotic use?
Returned in January 2009 (with a vengeance), diagnosed with pancolitis on January 30.
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa twice weekly, Culturelle probiotic, and Zoloft (25 mg).

Elite Member

Date Joined Apr 2004
Total Posts : 23551
   Posted 6/8/2009 6:17 PM (GMT -6)   
I know I have arthritis but what kind, I'm not sure yet. But the areas that bother me the most is my lower back/hip area, knees and hands.

Here is a link to the CCFA regarding the most common seen arthritis's:
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~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate ALL mesalamines**~Allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-had 2 series of 3, OA-Celebrex, Tylonel Arthritis and Voltaren Gel
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Regular Member

Date Joined May 2009
Total Posts : 33
   Posted 6/8/2009 6:23 PM (GMT -6)   
Garrison gets pain in his knees, ankles, feet, wrists, hands and neck (its mostly the major joints though). His eyes also get extremely inflammed. It's usually painful enough that he's screaming (unusual for him). Sometimes the pain is brief but most of the time it lasts for hours/days. High doses of steroids seem to help, but he's constantly tapering up and down on them so it's hard to tell if it actually does. These were things that he felt before he started asacol or prednisone. I've read that it's part of the UC, which has also been confirmed by physicians. But what do they know? :P
Mom to:
Number One Son -
Sigmoidoscopy followed by full bowel study 3/2008
DX with ulcerative colitis 3/2008
Blood transfusion 3/2008
Hospitalization for two weeks
Stroke caused by colitis 3/2008
ICU for two weeks
Second blood transfusion
Rehab in-hospital for two months
Colonoscopy 6/2008
Not in remission

Veteran Member

Date Joined Mar 2008
Total Posts : 1766
   Posted 6/8/2009 7:39 PM (GMT -6)   
I don't get swelling, but I definitely have pain. In the mornings, I have stiffness. It's worst in my fingers and wrists, followed by my lower back, and then sometimes upper back, knees, and ankles.
My GI thought it must have been a reaction to Remicade, but according to blood tests it's not. I went to a rheumatologist and she said it sounded like inflammation but she didn't think it was UC-related since it began while I was in remission. But I'm going to blame UC anyway--it's after I got it that a cascade of health problems began!
I've found that a wrist brace helps--you may want to try that. I also use a heating pad on my back. 
Female, Age 20
Remicade, Colazal, VSL #3 DS, Forvia, Vitamin D, Calcium, Prozac, Turmeric

Veteran Member

Date Joined Jun 2008
Total Posts : 610
   Posted 6/8/2009 10:22 PM (GMT -6)   
I had joint pain for many, many years before the intestinal symptoms showed up.  After awhile, I could tell my doctor thought it was all in my head, and I just stopped mentioning it.  Sulfasalazine has gotten rid of most of it, and it's easily the first time in 20 years my knees don't bother me.
I still get a little stiff in the very lower back from time to time.
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