Hair Loss--What's the culprit?

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bookworm21
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Date Joined Mar 2008
Total Posts : 1766
   Posted 6/8/2009 7:35 PM (GMT -6)   
Has anyone who's on Remicade or Colazal (or rather Balsalazide disodium) had hair loss?
 
I've seriously lost about 1/3--1/2 of my hair since last fall. Thank god I used to have such thick hair, so people can't tell I'm losing so much. Ugh, I'm only 20--I shouldn't be losing hair! :(
 
I've told 3 GIs my issue--one said he didn't know the cause, the other never responded to my email, and the third asked what the dermatologist said. The dermatologist said that my hair loss was delayed reaction to my flare last year (I started heading towards remission in September and hair started falling in November). He gave me a prescription, but when I got it, it was a steroid liquid for itchy scalp, which I do not have...
 
Anyway, I'm thinking Colazal may be the culprit, just because I've seen it listed as an official side effect, whereas it's not listed as a side effect on Remicade.
Female, Age 20
Remicade, Colazal, VSL #3 DS, Forvia, Vitamin D, Calcium, Prozac, Turmeric


notsosicklygirl
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Date Joined Dec 2008
Total Posts : 16736
   Posted 6/8/2009 8:22 PM (GMT -6)   
I've lost a lot since starting Asacol.
Diagnosed with mild proctitis in March 2007: Treated with Canasa (as needed)
December 08: Began treating with Asacol 400mg (9/day) + Canasa 2x/day - Anemic
May 09: Off Canasa, taking Asacol (9/day)
Back on Canasa every other night + Asacol (9/day) + Probiotics + Iron
Reducing to 6 Asacol/day + Canasa + Probiotics + Iron - So far so good!!! -SPOKE TOO SOON! Back to 9/day...


fruitgirl
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Date Joined Feb 2009
Total Posts : 7150
   Posted 6/8/2009 9:57 PM (GMT -6)   
I lost a lot of hair after being diagnosed, but it's hard to determine what caused it. I was diagnosed about four months after giving birth, and my hair had gotten a LOT thicker during pregnancy. So, it could have just been my pregnancy hair falling out. It also could have been because I was so incredibly sick. Or, it could have been an initial reaction to Asacol. Whatever the case, it's no longer falling out. I still loose a few hairs in the shower each day, but that's normal for me.
Status: Remission since late May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Eased for ~3 weeks in December, possibly b/c of probiotic use?
Returned in January 2009 (with a vengeance), diagnosed with pancolitis on January 30.
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa twice weekly, Culturelle probiotic, and Zoloft (25 mg).


saposs
Regular Member


Date Joined Nov 2008
Total Posts : 339
   Posted 6/8/2009 10:01 PM (GMT -6)   
i am also loosing lot of hair...i started loosing after i started canasa suppositories just once a day.... now i have doubled canasa & also started Lialdax2 daily...i m scared the hair loss might increase. there is always slight pain in my scalp roots
Right now -FLARING (after my Rubella vaccination)
Diagnosed in Jan'2009: Canasa suppositories 1000 nightly - worked for 2 months then re-flare
13 may: canasa 1000 X2 daily for 2 weeks - to start Lialda after 2 weeks if canasa double dose does not work
Lialda X2 started on 30th may.
Symptoms: Mucus, blood, constipated (not always), Lots Gas
Also gifted with Hypothyroid & have calicum deficiency family history!
Also started Probiotic from 23 Mar & fresh Turmeric root from 25 March'09- stopped both on 10th May


bookworm21
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Date Joined Mar 2008
Total Posts : 1766
   Posted 6/9/2009 8:03 AM (GMT -6)   
Hmm, I was on on Asacol before I started Remicade and Colazal, and I never had a problem with hair loss. This is so frustrating!

momhatesuc
Regular Member


Date Joined Sep 2006
Total Posts : 78
   Posted 6/9/2009 8:34 AM (GMT -6)   
Most definitely the remicade! My hair has been falling out like CRAZY since I started it. I also have read on other boards that many other people on remicade have the same side effect.
Leslie, 31~ UC diagnosed in 1999
3 lialda x day
remicade
multi-vitamin, calcium, fish oil


notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16736
   Posted 6/9/2009 9:45 AM (GMT -6)   
I lose so much hair when I use hair dye. The last two times I dyed my hair I thought I would be bald after blow drying. I still have loads of hair but not like before.
Diagnosed with mild proctitis in March 2007: Treated with Canasa (as needed)
December 08: Began treating with Asacol 400mg (9/day) + Canasa 2x/day - Anemic
May 09: Off Canasa, taking Asacol (9/day)
Back on Canasa every other night + Asacol (9/day) + Probiotics + Iron
Reducing to 6 Asacol/day + Canasa + Probiotics + Iron - So far so good!!! -SPOKE TOO SOON! Back to 9/day...


Katmom
Veteran Member


Date Joined Mar 2008
Total Posts : 1202
   Posted 6/9/2009 10:09 AM (GMT -6)   
The hair loss was huge last summer, when the drug regime was Asacol, Pred and 6mp. Doc said it was the 6mp, but hard to know. Hair was thin, but not noticeable to anyone but me and the plumber. Funny, now that the Remi has made the health better overall, the hair loss stopped. New growth in light wisps all around her face---so not the Remi for us. Isn't this a crazy disease?
Daughter,15 diagnosed 1-08 w/ UC .
Previous drug sampling: Asacol, Prevacid, Flagyl, Prednisone- 50mg to 0, 4 major flares '08.Hospital four x. Low residue diet,
6MP, Colazal , Cortifoam enemas,
Trying probiotics, Niferex, fish oil, Magnesium, Acupuncture.
Remicade 10mg per kilo@ 8wks, since 10-08. Still on 6mp and Colazal


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5191
   Posted 6/9/2009 11:52 AM (GMT -6)   
This issue gets rehashed every couple of months because it's a devil  !!!!! Steroids are known to cause thinning of hair, oral 5-ASAs seem to affect hair to varying degrees among UCers reporting here, but the flare itself & nutritional deficiencies can also cause hair loss. Probably the best overall solution to hair loss is to stop dying, use mild shampoo, eat as balanced a diet as possible & supplement vitamins/minerals if on a restricted diet, especially. It was lucky that I had thick, healthy hair to start because I've lost tons of it over the yrs with UC,  but 1st noticed excessive loss at times I was RXed antibiotics pre-UC. I really think that medicines in general negatively affect human hair! Yuck and darn it! / Old Hat (30 yrs with left-sided UC ... [etc.])

Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 6/9/2009 11:53 AM (GMT -6)   
     I lost hair because of the 6MP.  Try Nioxin, it worked wonders for me.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Meds as of June 09: Colazal (6 per day), 6MP (50 mgm), Probiotic (upped to 3 per day), Fish oil capsule, calcium, multivitamin, Cort enema nightly, Canasa in morning.  Also taking Benicar and Toprol to control high blood pressure.  Getting old is a b****.


notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16736
   Posted 6/9/2009 12:18 PM (GMT -6)   
Stop dying? not a chance!!
 
It sounds like we all began with tons of hair. The hairloss has actually made my life a bit easier since I can blow it out slightly faster. it is less of a mop.


Diagnosed with mild proctitis in March 2007: Treated with Canasa (as needed)
December 08: Began treating with Asacol 400mg (9/day) + Canasa 2x/day - Anemic
May 09: Off Canasa, taking Asacol (9/day)
Back on Canasa every other night + Asacol (9/day) + Probiotics + Iron
Reducing to 6 Asacol/day + Canasa + Probiotics + Iron - So far so good!!! -SPOKE TOO SOON! Back to 9/day...

Post Edited (notsosicklygirl) : 6/9/2009 11:23:40 AM (GMT-6)


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 6/9/2009 12:20 PM (GMT -6)   
Actually, I didn't have a lot to start with. My hair does have a lot of body, though, so it's not like anyone notices how thin it is.
Status: Remission since late May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Eased for ~3 weeks in December, possibly b/c of probiotic use?
Returned in January 2009 (with a vengeance), diagnosed with pancolitis on January 30.
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa twice weekly, Culturelle probiotic, and Zoloft (25 mg).


Scrap Girl
Veteran Member


Date Joined Jan 2007
Total Posts : 653
   Posted 6/9/2009 12:32 PM (GMT -6)   
I've had major hair loss with Asacol and Immuran. As soon as I stopped taking them, the hair loss stopped immediately. Try a high dosage level of Biotin, which can be bought at any drug store. That helped me bigtime.
Diagnosed with UC in Feb. 2005
 
Colazal (9 a day)
Folic Acid
Biotin
Calcium
Remicade


bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 6/9/2009 1:40 PM (GMT -6)   
Old Hat, I don't dye my hair, I use a mild shampoo and natural oils, eat a farily balanced diet and definitely get me vitamins/nutrients through supplements, and I'm in remission! I don't know what else to do.
 
The reason I haven't used Nioxin or Rogaine is because I have really sensitive skin, and I've read that those two can cause burning on the scalp. As for the biotin, I just don't want to put more chemicals into my body. Does biotin stop hair loss or promote hair growth (or both)?
 
If Asacol didn't cause hair loss before, should I try taking that instead of Colazal?


Female, Age 20
Remicade, Colazal, VSL #3 DS, Forvia, Vitamin D, Calcium, Prozac, Turmeric


Shadam
Regular Member


Date Joined Jan 2009
Total Posts : 307
   Posted 6/9/2009 6:57 PM (GMT -6)   
I was noticing hair loss as well because of all the meds that I'm on.  I started to use Nioxini per one of Christine's post an dit has worked wonders.  I HIGHLY RECOMMEND IT!
 
I've also heard that biotin helps as well.  I've decided to not take the biotin to see how beneficial the Nioxin is. 
Age: 25 / Male / Florida
Diagnosed: 11/08 / Pancolitis
Asacol - 2 x 3 day (waiting for results)
6MP - 50mg - started 5/04/09
Prednisone / ended 1/09 (started at 30mgs and tapered down)
Mens Multi Vitamin - 1 a day
Calcium & Vitamin D3 - 1200mc of Calcium and 800iu of Vitamin D3  
Jaro - Dophilus Probiotic (3.4 Billion) - 1 a day
Diagnosed with PSC: 3/9 --now taking Urso
Sunflower Seed & Spinach Diet - Started 4/26/09


jeanneac
Veteran Member


Date Joined Feb 2009
Total Posts : 1916
   Posted 6/9/2009 8:38 PM (GMT -6)   
Yea, I saw on this site where a lot of the drugs can cause hair loss. The colazal makes mine drop out a bit but it seems to be growing back in with new growth, so I guess I am not too worried. The texture of my hair got finer and got thinner through menopause. I got some biotin and will start taking that.  Without hormones, I doubt mine will ever be the same again. My thyroid problems don't help matters either.
diagnosed 1/09 with colitis & diverticulitis
 54 yo, colazal, fish oil, synthroid, cymbalta
good results w/ acupuncture


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5191
   Posted 6/9/2009 10:36 PM (GMT -6)   
Bookworm, have you mentioned the hair loss to your gyno? Since hormonal issues can affect hair growth/loss, gynos are usually willing to listen to the problem. I agree that at age 20, one doesn't expect to have continuing hair loss so it can be pretty disturbing. But it bugs older me, too, especially when I have to keep vacuuming or sweeping it off the floors at home. A Romanian-born neighbor told me that they have a funny saying about hair loss: the smart hairs are leaving the foolish head. (Lol.) / Old Hat (30 yrs with left-sided UC ... [etc.])

bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 6/10/2009 8:00 AM (GMT -6)   
Are you saying that I have a foolish head??? tongue
 
I didn't even think of mentioning it to my gyno because the dermatologist told me it was due to UC. I've mentioned this to my PCP as well and she also thought it was UC-related and not hormones.

pam222
Veteran Member


Date Joined Jun 2009
Total Posts : 985
   Posted 6/14/2009 3:58 PM (GMT -6)   
I didn't realize Prednisone and Asacol could cause hairloss. I just blamed it on being anemic from being sick and pregnant when I lost TONS of my hair. It was falling out by the handful when I took showers. It's growing back now, so I have all these weird short places, but I'm just happy it's coming back.
26 year old female
Diagnosed with unspecified UC 11/08 by flex. sig. as I was pregnant at the time and did not want to be put under for a colonoscopy
Breastfeeding my baby boy (born 4/8/09)
30 mg Prednisone AM, 30 mg PM
Started Remicade 6/11/09
Was on Asacol (2400mg or 3600mg a day) for 6 months with no success


darla scared
Regular Member


Date Joined Jun 2009
Total Posts : 34
   Posted 6/14/2009 4:20 PM (GMT -6)   
I lost about 1/4 of my hair while on Remicade and Prednisone. I: have always had really thikc hair so this was devastating to me. It all fell out around my bangsg and the top of my hear. It would actually come out in chunks. My sister had cancer and had loswt her hair from chemo and the way mine started coming out reminded me of her jsut not as much hair loss. IT did finalyy come back after I went of the prednisone and REmicade and is as thick if not thicker than before so don't worry too much. It is a hard thingk to deal with but at the time I was so desperate for relief of the colitis symptoms that I was just too tired to care about the hair. I have to say baseball hats were my best friend for a couple months.

darla scared
Regular Member


Date Joined Jun 2009
Total Posts : 34
   Posted 6/14/2009 4:22 PM (GMT -6)   
Also another thing I noticed whenever I had hair loss starting from treatments, I also had my periods cease as well.

RH_Texas_Gal
Regular Member


Date Joined May 2009
Total Posts : 367
   Posted 6/14/2009 6:02 PM (GMT -6)   
I am in the unfortunate situation of not knowing exactly what has been causing my hair loss ... although it has slowed down quite a bit. I am only 37 but going through early menopause, taking birth control that has the loss of scalp hair as a side effect. PLUS, I was on Asacol before switching recently to Lialda. And ... the vitamin deficiencies definitely don't help matters.

The dermatologist said it was a toss up on what the actual cause could be. I will tell you this though, once I started on iron and vitamin D supplements along with other supplements, the hair loss slowed way down and I am noticing a bit of new growth along the hairline ...

subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 6/14/2009 11:05 PM (GMT -6)   
I have not experienced hair loss. I have the same amount of hair that I had when I was 18. I take a lot of vitamins. I'm not taking any Colitis medications. And I've never been on the pill. I've been seriously anemic and dehydrated from flares, and I did take Prednisone for one of my flares. I didn't notice any out-of-the-ordinary hair loss though.
Joy - 47 yrs and counting; Colitis Dec 06 (also have IBS); Currently in remission

Figuring out how to reduce a flare or get into remission is a trial and error experience. Don't expect your GI to have all the answers. He was trained in making diagnoses, prescribing medications, and surgically removing the colon. He was not trained in alternative treatments. That's why they are called alternative treatments.

Lexapro (for stress), Probiotics and Vitamins, Anti-inflammatory foods, No pro-inflammatory foods when flaring, No HFCS, No foods high in fructose, No artificial sweeteners -- Fecal transplantation worked, Prednisone stopped working, Colazal stopped working, Asacol stopped working


sunnyisagirl
New Member


Date Joined Jun 2009
Total Posts : 10
   Posted 6/15/2009 7:52 AM (GMT -6)   
I experienced hair loss which seemed to begin after I started taking Asocol (the first oral mesalamine I ever took). Before that my hair became really brittle about six months after I started using mesalamine rectal medicine every night. So, I think Mesalamine is bad for your hair quality in general.
36 yr old Female. Diagnosed UC Sept 2008.

Just started Corazal 3x/day. Rowasa 1x/day. Various supplements.


bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 6/15/2009 8:37 AM (GMT -6)   
darla scared, what are you using as your UC treatment if you're not on Remicade?
 
My GI now told me to use zinc supplements, since it's probably not a smart idea to stop either medication.
 
Has anyone heard of TheraPro? Apparently it's used for hair loss and has more natural products.
Female, Age 20
Remicade, Colazal, VSL #3 DS, Forvia, Vitamin D, Calcium, Prozac, Turmeric

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