Had 3rd Remicade today praying all goes well!

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Shelliesv
Regular Member


Date Joined Apr 2009
Total Posts : 208
   Posted 6/8/2009 7:40 PM (GMT -6)   
I had that bad reaction the 2nd time. Well Centocor says it was more likely an infection brewing and
the Remicade just reduced my immune system so the infection could thrive. Makes sense. I'm just
afraid of ending up in the hospital again!

No headache this time though so that's a good sign!
37 year old mom of 2.

Diagnosed with Ulcerative Proctitis 1995 (24 years old) / Ulcerative Colitis in 2000 (29 years old)
In remission for 4 years from 2005 - 3/2009 with colazol maintenance only.

Hospitalized for flare 3/23/09 - 3/25/09. Hospitalized 2nd time for same flare 4/17 - 4/22

Current Meds: Apriso 4/day, starting 6MP

Discontinued: Prednisone, Remicade (bad reaction to second Remicade infusion)


bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 6/8/2009 7:45 PM (GMT -6)   
That's good to hear! Hopefully it'll work out this time.

Do you get pre-medications? I've had mild reactions to Remicade, and my GI upped my pre-meds and slowed my infusion rate.
Female, Age 20
Remicade, Colazal, VSL #3 DS, Forvia, Vitamin D, Calcium, Prozac, Turmeric


Shelliesv
Regular Member


Date Joined Apr 2009
Total Posts : 208
   Posted 6/8/2009 9:37 PM (GMT -6)   
Just Tylenol and Zytrec. I am very hopeful for no reaction!
37 year old mom of 2.

Diagnosed with Ulcerative Proctitis 1995 (24 years old) / Ulcerative Colitis in 2000 (29 years old)
In remission for 4 years from 2005 - 3/2009 with colazol maintenance only.

Hospitalized for flare 3/23/09 - 3/25/09. Hospitalized 2nd time for same flare 4/17 - 4/22

Current Meds: Apriso 4/day, starting 6MP

Discontinued: Prednisone, Remicade (bad reaction to second Remicade infusion)


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 6/8/2009 9:46 PM (GMT -6)   
::fingers crossed:: for you!
it's hard to type with crossed fingers, by the way! :)

How quickly did you get ill after your 2nd infusion? Just curious...I'm sure you're kind of wanting to get past that point quickly!
Status: Remission since late May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Eased for ~3 weeks in December, possibly b/c of probiotic use?
Returned in January 2009 (with a vengeance), diagnosed with pancolitis on January 30.
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa twice weekly, Culturelle probiotic, and Zoloft (25 mg).


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6448
   Posted 6/8/2009 10:30 PM (GMT -6)   
Hey Shelly, hopefully this infusion will go better for you. Keep us updated on how you are feeling....my fingers are crossed too. It is hard to type like that! :)
Carol

Remicade - will have my 29th infusion on July 8
Vitamin B-12/Biotin, Probiotics, Vitamin D-3 (2000 IU)
 
Co-Moderator for the UC Forum
 
 


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 6/8/2009 11:45 PM (GMT -6)   
Best wishes all goes well :)
Moderate Pancolitis
Dx'd 05/2007
8 Pentasa per day (4/2)
Corti Foam p.m. 3-4X per week
Curcummin and Probiotics/Rueteri.
Bowel Soother and IntestiNew, Fish Oil, Calcium/Mag/Zinc, Multi Vitamin and Melatonin
Eliminated Fructose and Corn Syrup
Could never tolerate artificial sweetners
I try to excersice/swim daily
Did I happen to mention I HATE this disease!!!
 
*Recent Changes In Blue*


Shelliesv
Regular Member


Date Joined Apr 2009
Total Posts : 208
   Posted 6/9/2009 7:32 AM (GMT -6)   
Before it was 2 days after the infusion. I was pretty tired last night but assume that was the zyrtec which always makes me very tired!
Feeling well this morning!
37 year old mom of 2.

Diagnosed with Ulcerative Proctitis 1995 (24 years old) / Ulcerative Colitis in 2000 (29 years old)
In remission for 4 years from 2005 - 3/2009 with colazol maintenance only.

Hospitalized for flare 3/23/09 - 3/25/09. Hospitalized 2nd time for same flare 4/17 - 4/22

Current Meds: Apriso 4/day, starting 6MP

Discontinued: Prednisone, Remicade (bad reaction to second Remicade infusion)


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6448
   Posted 6/9/2009 8:21 AM (GMT -6)   
Yippee! Hope the last time was just a fluke for you. Have a great day!

Carol

Remicade - will have my 29th infusion on July 8
Vitamin B-12/Biotin, Probiotics, Vitamin D-3 (2000 IU)
 
Co-Moderator for the UC Forum
 
 


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 6/9/2009 2:38 PM (GMT -6)   
I'm so glad you gave it another try and it's going well.
I hope you can get the same good results I'm getting!
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering. Asacol maintenance for 20+ years; used prednisone & Rowasa for flares.  Probiotics (Ultimate Flora, 50 billion), salmon oil (omega-3) when I can remember. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; eliminated wheat/gluten from my diet.
Bad flare in March, used prednisone. Humira denied, started Remicade 4/12 and doing great~ learning what normal is~ wow


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 6/9/2009 2:57 PM (GMT -6)   
I hope you're still doing well this afternoon. Remicade has been so wonderful for me, I hope it will work as well for you.
Judy
 
Moderate to severe left-sided UC diagnosed 2001.
Flared for 5 years, finally in remission with Remicade since March 2006.
Avascular necrosis in both shoulders is my "forever" gift from steroids.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. 
"My life is an ongoing medical adventure"
 
.

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