salofalk enemas cramping nausea

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ozmom
New Member


Date Joined Jun 2009
Total Posts : 19
   Posted 6/8/2009 9:55 PM (GMT -6)   
I am on day 5 of trying to stop the bleeding with salofalk emenas (4G at night), my stomache is in knots.  Lots of cramping throughout the day along with nausea.  The bleeding is slowing, no forming of stools though....and to complicate things the doctor saw worms during my colonoscopy....nice.
 
Just wondering is anyone who has achieved remission with enemas could tell my what they experienced.  I've been on prednisone and remission happened quickly and my stools formed up nicely, I'm just wondering what its like with the enemas
 
thanks

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 6/8/2009 9:59 PM (GMT -6)   
When I used salofalk I never had any issues, it didn't aid with my proctitis much either so my GI put me on Cortifoam which did wonders, since then it's the only rectal meds I use...hope the doc can treat those worms for you and that you feel better soon...I doubt the salofalk is causing the extra grief you're having with cramping and nausea, but you should definitely mention it to him just incase.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 6/8/2009 10:00 PM (GMT -6)   
Worms?! What kind? Was it a harmful worm and are you on any kind of treatment for it?

Where is your inflammation and are you on any other meds beside the enema? Whether or not you'll be able to achieve remission on enemas alone really depends on where the inflammation is.
Status: Remission since late May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Eased for ~3 weeks in December, possibly b/c of probiotic use?
Returned in January 2009 (with a vengeance), diagnosed with pancolitis on January 30.
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa twice weekly, Culturelle probiotic, and Zoloft (25 mg).


ozmom
New Member


Date Joined Jun 2009
Total Posts : 19
   Posted 6/8/2009 10:55 PM (GMT -6)   
I only had the colonscopy a week ago and apparently it takes awhile to find out what kind of worm it is (they took a piece of it for identification)...again....nice. So I'm not on any meds for it yet, soon hopefully.

My colitis is in the bottom 15cm, I'm not sure how acurate that is though because the colonoscopy was so painful he only got about 1/2 way, but he thought is was only the 15cm. For some reason I don't seem to do so well on the oral meds, I tried pentsa last and it changes things but doesn't necessarily make it better...does that make sense. I can stay at a certain level with diet (can't go into remission though), I have alot of allergies (I'm also celiac) I basically only eat veggies fruit and meat very basic foods.
I've tried alot of vitamins but during a flare up I wonder if its just money down the drain (or toilet) so I stopped that. this flare up has been on going for 7 months now, its lasted so long because I have just returned from 3 years in Australia and didn't get the best care there because I was in a pretty remote area, spent 7 days in the hospital on cort IV, went into remission after 2 months on Pred, and continued on oral mesalazine and salofalk enemas. It was after I went off the enemas that it came back and I haven't gotten well since. I didn't go back on the enemas because I didn't realize (neither did my doc at the time) that they were what was working at the time. I can see now thats when the problems came back.

so....now I'm wondering why I'm having so many problems with the enemas now, I didn't get all these side effects last time.

Its gets so complicated because things change but it hard to tell if they are actually getting better or just different. I have no energy and am getting depressed, I also have two small children (2and 5), you know, I'm just in a hole at the moment, don't mean to be a downer but thats where I am right now.

fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 6/8/2009 11:06 PM (GMT -6)   
Are you using the EXACT same med as last time? I know that some people on here have had trouble with the generic forms of meds...they react to the non-active ingredients in them. If it is the exact same thing, I'd be tempted to chalk your troubles right now up to the worm. I guess I'd wait and see what that turns out to be and if you need to be treated for that before changing anything.
Status: Remission since late May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Eased for ~3 weeks in December, possibly b/c of probiotic use?
Returned in January 2009 (with a vengeance), diagnosed with pancolitis on January 30.
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa twice weekly, Culturelle probiotic, and Zoloft (25 mg).


ozmom
New Member


Date Joined Jun 2009
Total Posts : 19
   Posted 6/9/2009 5:09 AM (GMT 0)   
actally, i can't be sure its the exact same med because I was in Australia last time am the meds are different there. I will check into that tomorrow, thanks for that

Mitzo
Veteran Member


Date Joined Dec 2007
Total Posts : 536
   Posted 6/9/2009 8:59 AM (GMT -6)   
I had stomach aches and worse D when using the Salofalk enemas - but they worked, I toughed it out for a month and then tapered. They killed the bleeding and inflammation.
23 years of UC which started after quitting smoking. In and out of flares which are usually triggered by antibiotics. Latest issue is endless diarrhea without blood or mucous.

 


ozmom
New Member


Date Joined Jun 2009
Total Posts : 19
   Posted 6/9/2009 10:11 AM (GMT -6)   
thats interesting I feel like that might me whats happening to me. A month, humm but its better than prednisone.

quincy
Elite Member


Date Joined May 2003
Total Posts : 30692
   Posted 6/9/2009 1:41 PM (GMT -6)   
The healing process, inflammation, food intake, spasming, colonic activity..either fast or slow...etc can affect comfort.

Yes, when I use Salofalk, sometimes I have discomfort, and the bm sometimes the morning after has extra propulsion...blast off!!! LOL!

You could ask the doc for an antispasmodic...that might help with the discomfort so that you're not focussed on that.

It would be good if they help your UC...and for you to continue to use them.

q
*Heather* Status: maintenance Asacol 6 daily + Salofalk enemas every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 x2 daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 

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