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darksky602
New Member


Date Joined Jun 2009
Total Posts : 15
   Posted 6/9/2009 12:16 AM (GMT -6)   
I am curious if anyone is using probiotics currently and has seen real positive results? My father has had UC for about 6 months and is in the hospital. He is currently had his first remicade treatment, and seems to be getting better. He wants to use probiotics to treat the disease and possibly stop using remicade as soon as possible. I had UC for 8 years until I had a total colectomy and i currently live with a pouch, waiting for my j pouch surgery. He is just beginning this painful process and is looking to gather as much information about probitics positive or negative. Knowledge is power. Thank you for everyone's responses so much.

mumbles
Regular Member


Date Joined Dec 2008
Total Posts : 199
   Posted 6/9/2009 12:20 AM (GMT -6)   
For me no probiotic has had that drastic of an effect. VSL#3 may have, but I am not exactly sure. For me diet and sleep have been the main things that get me into remission. Hope your dad starts getting better soon.
Asacol-12 a day
1 Culturelle
1 Canasa
5g Fish oil supplements
1 Vitamin
1 Haldi Drink
Gluten-free and lactose-free diet


herbalgerbals
Regular Member


Date Joined Feb 2009
Total Posts : 85
   Posted 6/9/2009 12:22 AM (GMT -6)   
I use probiotics everyday, I think its a wonderful thing for everyone especially with IBD to put in there diet, on an empty stomach ofcourse, firs tthing in the morning..

It takes a while for the friendly bacteria to build up, 3 months even to be fair about it,
there isnt really a big difference, but it is real, the bacteria in the gut does differ, and the strains of probiotics do matter.

Some people swear by it, some people dont.. I guess its just somthing you need to research, find a legitimate company that produces strong strains and have trust in the bacteria to do there job. =]
Balance is Key. Nature Intended.
Eat for Optimal Digestion.
Fruit. Vegetables. Meat.
Veggie Juice, Coconut Water.
Raw Honey, Raw Bee Pollen.
90% Raw. 10% Cooked.
5% Fat. 10% Protein.

Food Combining.
6mp. Colazal.
Oxycontin.


UniG
Regular Member


Date Joined May 2009
Total Posts : 110
   Posted 6/9/2009 1:04 AM (GMT -6)   
I highly recommend using probiotics. I've been using HMF Superpowder on the advice of my naturopath for almost a year now.
Even my most conservative and skeptic bum doc advises that probiotic therapy has major benefits.

Probiotics are very undervalued in allopathic medicine. The healthy flora (bacteria) in you gut is critical for many, many functions in the body.

Research shows that there is an imbalance of bad bacteria found in UC patients. High quality probiotics are a very good choice.

Good luck -
Uni G
40 yrs.
Diagnosed Jan 2008 ulcerative proctitis 9" of lower colon.
Last sigmoidoscopy Jan 2009, 17" inflammation of lower colon.
Naturals: probiotics, ground flax, salmon oil, Glutagenics, Aloe Vera juice, mega vitamin supplements, Curcumin and a Vegan diet.
Pharma: Salofalk enema and oral
My brother had UC and ended up with an illiostomy after years of struggle.


PrednisoneJunkie
Regular Member


Date Joined May 2009
Total Posts : 33
   Posted 6/9/2009 6:16 AM (GMT -6)   
I sort of discovered probiotics were helpful on my own, and then was pleased to find out most people on this forum are already taking them. Can't hurt, and they definitely help me.
27 / Male
UC Diagnosis May 2003
Survived 9 flares
Used prednisone, asacol 6/day
Alternatives: have successfully tamed 1 flare and counting without prednisone with massive doses of probiotic (along with asacol)
Diet: paleolithic (but I often cheat), non-smoker, non-drinker
Other problems: Childhood asthma


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 6/9/2009 11:20 AM (GMT -6)   
I found a difference the day after I started taking one called Primadophilus Reuteri made by Natures Way (found in health food stores), the only downside is it must be kept cold, at the store they keep in their fridge as well. The things I love about it is it has guaranteed intestinal release, only one/day is needed (where I live in alberta, canada, it only costs me 29.00 for a bottle of 90 tabs which lasts me 90 days) so it's very affordable with only one/day being needed. It has also aided my severe lactose intolerance, high cholesterol and vaginal health (but it's still perfect fine for men to use of course) it states these claims on the packaging and from my experiance it holds true to it's word. It's only got some potato starch for preservations which makes it a good one cuz you don't need a bunch of fillers, sugars and junk in your probiotic.
 
I've been taking one everyday for the last 4ish yrs and I have to say it may be coincidence but that's the longest I have not had proctitis issues as well in my 18 yrs of having crohn's colitis, I have often had issues with proctitis at least a few times a yr but not once in the last 4ish yrs since I started taking this probiotic, like I said, it could be coincidence but whatever it is I don't care I'm just glad not to have proctitis issues for so long and hope it continues.

:)


My bum is broken....there's a big crack down the middle of it! LOL :)


notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16284
   Posted 6/9/2009 11:28 AM (GMT -6)   
I take them religiously but I can't say whether they help or not. I don't notice too much of a difference.
 
I wouldn't stop using the Remicade if it is helping. How old is your father?
 
I have heard if you stop using it, it may not help as much if you need to start it again. Usually people with UC do flare up again at some point in the future and sometimes the flares are not easy to control (as you know).
 
I hope you have goodluck with your j-pouch surgery. You're lucky to be done with this disease. It's too bad your father is dealing with this.
Diagnosed with mild proctitis in March 2007: Treated with Canasa (as needed)
December 08: Began treating with Asacol 400mg (9/day) + Canasa 2x/day - Anemic
May 09: Off Canasa, taking Asacol (9/day)
Back on Canasa every other night + Asacol (9/day) + Probiotics + Iron
Reducing to 6 Asacol/day + Canasa + Probiotics + Iron - So far so good!!! -SPOKE TOO SOON! Back to 9/day...


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 6/9/2009 11:48 AM (GMT -6)   
Probiotics are one important part of reestablishing a healthy gut. I've had excellent results with Custom Probiotic's six strain powdered blend and all of Natren's products.
Diagnosed with ulcerative colitis spring 1999. Have been in remission for years with only a few minor blips.
 
Maintenance dose sulfasalazine. Probiotics, vitamin D, fiber supplement and fish oil caps. George's aloe vera juice and l-glutamine for gut healing. Mostly grain-free and dairy-free low carb diet.
 
 


kimor
New Member


Date Joined Apr 2009
Total Posts : 8
   Posted 6/9/2009 1:19 PM (GMT -6)   
pb4- you seem to have such good things to say about Primadophilus Reuteri, I'd like to give it a try. Do you mind letting me know where you buy it - I live in Calgary. Thanks!

darksky602
New Member


Date Joined Jun 2009
Total Posts : 15
   Posted 6/9/2009 2:01 PM (GMT -6)   
My father is currently 60 years old and the disease only showed up 6 months ago.

heathd
Regular Member


Date Joined Sep 2008
Total Posts : 40
   Posted 6/9/2009 2:13 PM (GMT -6)   
darksky602
i am still trying variouse probiotics so i cant say it works or it doesnt but i have to warn you about the remicade once your on it dont go off it until you have a bad reaction to it. Once you are off it you can never be put back on to it due to your body building up antibodies to it. great luck with your surgery
diagnosed 2004
Prenisone finally off (oct 2008)
Prilosec otc (1 a day)
Sulfasalazine (12 a day)
Flora q (every other day)
Remicade (failed oct 2007)
Humira (started oct 2008)
Multivitamin (1 a day)


darksky602
New Member


Date Joined Jun 2009
Total Posts : 15
   Posted 6/9/2009 9:39 PM (GMT -6)   
thank you everyone for the information about the remicade. I never knew you could not go back to it if you go off it. That will help my father make a much more informed decision. My dad is still undecided about when he is going to start using the probiotics, but I believe eventually he will give them a shot. Any suggestions on probiotic brands are very welcome. We found a local shop that sells them, but I am still unsure, if it is the correct one to try.

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 6/9/2009 11:23 PM (GMT -6)   
kimor said...
pb4- you seem to have such good things to say about Primadophilus Reuteri, I'd like to give it a try. Do you mind letting me know where you buy it - I live in Calgary. Thanks!
Too funny kimor, I live just outside Calgary (I was born and raised there but moved about 6 yrs ago, traffic, too many people, blah, blah blah)
 
I get them from Sangsters in Calgary at Marlborough Mall, they keep them in their fridge at the back of the store, good luck if you try them and let me know how they work for you.
 
:)
My bum is broken....there's a big crack down the middle of it! LOL :)


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 6/9/2009 11:27 PM (GMT -6)   
darksky602 said...
My father is currently 60 years old and the disease only showed up 6 months ago.
My mom didn't get UC until she was in her mids 60's (I have crohn's myself, specifically crohn's colitis which is crohn's affecting the colon), the common age groups for IBD are early 20's to 30's and 60's to 70's from what I remember...Probiotics would be a good idea for yourself as well, many j-pouchers use it...best of luck with everything for you and your dad.
 
:)
My bum is broken....there's a big crack down the middle of it! LOL :)


theklep
Regular Member


Date Joined Nov 2007
Total Posts : 75
   Posted 6/10/2009 4:25 AM (GMT -6)   
VSL #3 And Ethical Nutrients brand probiotics have really helped me out. They can't hurt. Give it at least a couple weeks to see if you can tell a difference.
Jeff, 24, Diagnosed July 2007 probably had it since 2005 but no real symptoms till July 2007 *Update 3/25/08: Entire Colon UC*
Lialda - 2.4mg 2x Day
Perrigo 1x Every night
Centrum Multi-Vitamin 1X Day
Probiotics by Ethical Nutrients- Intestinal Care (Started Recently During a Long Flare Seems To be Working Wonders) 2x day
Probiotics by VSL #3 (trying it out at 2x a day now)
Slow Fe (Iron supplement)- 1x day
Lexipro- 2x Day 10Mg
In What I Would Call a Remission....As Close to Normal As It Gets


kimor
New Member


Date Joined Apr 2009
Total Posts : 8
   Posted 6/10/2009 2:21 PM (GMT -6)   
Thanks pb4. I'll try them out and let you know.:)

ickypoo
Regular Member


Date Joined Dec 2008
Total Posts : 224
   Posted 6/10/2009 3:01 PM (GMT -6)   
I don't think there is any question that probiotics can be beneficial. In fact, I wouldn't be surprised to see them eventually recognized by GI's as an important component in the treatment of IBD, if current medical research activity is an indicator.

With respect to brands, my experience has been limited to Natren products, especially Healthy Trinity. Kind of pricey, but they have worked well for me. Too scared at present to experiment with other brands while things are going so well. If it ain't broke...
Diagnosed with UC in 1990.
Current Meds: Sulfasalizine (2 g), Rowasa (now and then), Folic Acid (1 mg)
Supplements: fish oil, flax oil, glucosamine, CoQ10, fiber, aloe vera juice, probiotics.
Other: Raw Milk for breakfast. Currently exploring a raw milk fast one day/week.


imagine
Regular Member


Date Joined May 2009
Total Posts : 30
   Posted 6/10/2009 9:18 PM (GMT -6)   
Was on VSL #3 for about two good years and it never really did anything for me except drain my wallet...

Sorry, it seems like others are having a good try. Seems like cures are pretty individual with this disease.
Diagnosed 2002(?)
Currently on: alternating doses of 6mp, 8 Asacol, weekly Humira, & 1000mg Canasa nightly
Also: generic Immodium and Levbid

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