Pentasa suppostiories.

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Sore Tum
Regular Member


Date Joined Jun 2009
Total Posts : 144
   Posted 6/9/2009 9:35 AM (GMT -6)   
Sorry, a slightly icky question, I'm getting the occasional tar black poo in very small quantities, could this be dure to the suppositories?
30 year old, female.
Diagnosed with severe ulcerative proctitis, Mar 2009.
Currently taking, 800mg asacol TDS, 1g Pentasa supp at night, 30mg pred (tapering over one month)
Probiotics, zinc supplements, Cod liver oil.


quincy
Elite Member


Date Joined May 2003
Total Posts : 30603
   Posted 6/9/2009 12:34 PM (GMT -6)   
I wouldn't think so....could depend on what you ate, how high the bleeding is and how slow your digestive tract is...as well as how long blood has sat in the lower colon, if it's mixed with stool and the suppository.  Could look "black"...but may be also a dark maroon chocolate colour?
 
How often are you having bms...and when you have this happen, is there a longer time between bms?

Not an icky question at all....poo is what we discuss!

q


*Heather* Status: maintenance Asacol 6 daily + Salofalk enemas every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 x2 daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 

Post Edited (quincy) : 6/9/2009 12:38:23 PM (GMT-6)


Sore Tum
Regular Member


Date Joined Jun 2009
Total Posts : 144
   Posted 6/9/2009 12:49 PM (GMT -6)   
It seems to be when I'm having what we call 'ghost poos' (really need to go but it's just wind and mucus), exceot since taking the suppositories its this black tar like substance instead of mucus (the mucus seems to have stopped). I thought my BMs were slowing down, but I today its been a bit cross with me. Unfortunately I have been struck with the munchies since starting the pred, and am craving fruit and chilles (opps).

Just started on metronidazole (flagyl) today as I have developed another abcess, don't need a third fistula to add to my evergrowing list!

I've read alot over the last few days and spoke to my GP today, he said that the correspondance he has recieved from the hospital says that they have not reached a definate diagnosis and it may still be crohn's (joy!). The information I've read would agree with that. :-(

I have another appointment with the GI medic next week to check the progress of the pred, so I think I'll ask if we are any closer to a diagnosis.
I have to say, from what I've read on here I feel very lucky, now that I am in the system I am being very well looked after, (maybe because I'm staff in the hospital). Also my family and partner have been an absolute gift.
30 year old, female.
Diagnosed with severe ulcerative proctitis, Mar 2009.
Currently taking, 800mg asacol TDS, 1g Pentasa supp at night, 30mg pred (tapering over one month)
Probiotics, zinc supplements, Cod liver oil.


quincy
Elite Member


Date Joined May 2003
Total Posts : 30603
   Posted 6/9/2009 11:57 PM (GMT -6)   
I guess the colour change could also be from the fistula?

i would lean more toward CD considering you have multiple fistulas.

I hope you get some confirmation soon...but to me, what's the difference, the meds are pretty much the same. You may want to enquire about using Remicade...maybe not as a continual schedule, but to help as a boost when things are beyond the help of the meds you're using at the time.

Is your whole colon affected or limited to lower colon?

quincy
*Heather* Status: maintenance Asacol 6 daily + Salofalk enemas every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 x2 daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


Sore Tum
Regular Member


Date Joined Jun 2009
Total Posts : 144
   Posted 6/10/2009 12:44 AM (GMT -6)   
It's just isolated to my rectum (although I have only had a flexi-sig), I will push the GI medic to re: a diagnosis next week, but I'm pretty sure he'll say that they are not sure yet. My symptoms don't fit into a definate box, I do not experience diarrhoea and the bleeding is very, very ocassional.
But from what I'm reading, I think you're right it does sound slightly more like crohn's.
Thank you for your input with this, I've been all over the place with my thoughts and having some medical knowledge always makes you assume the worst...........my immediate thought when I found out was I was going to need a stoma! Your advice has been very helpful and calming. x
30 year old, female.
Diagnosed with severe ulcerative proctitis, Mar 2009.
Currently taking, 800mg asacol TDS, 1g Pentasa supp at night, 30mg pred (tapering over one month)
Probiotics, zinc supplements, Cod liver oil.


quincy
Elite Member


Date Joined May 2003
Total Posts : 30603
   Posted 6/10/2009 2:02 PM (GMT -6)   
I have a friend who has fistulising Crohn's, multiple fistulas and will soon be having surgery (again).

She does have a spot higher in her colon that's affected and gives her diarrhea when she's flaring...but really, the fistulas have been not so great. She deals with it in a very humble manner....truly my hero...I'm so hoping this surgeon will help in getting things more settled permanently rather than "bandaid". I'm not totally privy, however...but there was no question regarding her diagnosis by the one doctor who was on the ball.

And oh so long ago, she was passed off by another GI who said she had IBS and was just an uptight little girl.

It saddens me that diagnosis can take so long, but I also have to remember that some of our symptoms are tolerated long before we seek care.

Bad experiences can equate to being doc-shy.

Please keep us updated on your situation. The CD forum will also be a huge help to your enquires I'm sure.

Thank you for the kind words.

quincy
*Heather* Status: maintenance Asacol 6 daily + Salofalk enemas every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 x2 daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 

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