I have a friend who has fistulising Crohn's, multiple fistulas and will soon be having surgery (again).
She does have a spot higher in her colon that's affected and gives her diarrhea when she's flaring...but really, the fistulas have been not so great. She deals with it in a very humble manner....truly my hero...I'm so hoping this surgeon will help in getting things more settled permanently rather than "bandaid". I'm not totally privy, however...but there was no question regarding her diagnosis by the one doctor who was on the ball.
And oh so long ago, she was passed off by another GI who said she had IBS and was just an uptight little girl.
It saddens me that diagnosis can take so long, but I also have to remember that some of our symptoms are tolerated long before we seek care.
Bad experiences can equate to being doc-shy.
Please keep us updated on your situation. The CD forum will also be a huge help to your enquires I'm sure.
Thank you for the kind words.
*Heather* Status: maintenance Asacol 6 daily + Salofalk enemas every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 x2 daily); Salofalk enemas nightly for flares & taper to maintenance
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux); Effexor XR 75mg(depression); Pulmicort/Airomir (asthma)
~vitamins/minerals/supplements; Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!