Same case as Katmom's daughter here. Bad case of unresponsive UC. I have been hospitalised 2 weeks ago (this is my 1st post since.. hi everyone :) ) and my decision was to have surgery since no meds seemed to work. When I got to he hospital I was so weak I was in shock, dehydrated, with weird muscle spasms. I was too weak for the surgery and I decided to give Remicade another try. They gave me a 10 mg / kilo (double dose) and it seems like I am on my way towards remission (miracle! yay!). I am on Imuran too , and as Katmom said, my doc also told me that recent studies show that the combination of Remicade + Imuran (or 6mp etc) is helpful in maintaining the effect of the Remicade treatment.
I had nausea with Imuran a couple of times, Remicade doesn't give me any side effects.
I have been on Imuran and Remicade for about 2-3 moths now...
Hope it helps, I know taking new drugs is scary, especially immunosuppressants. Pharmacists are very well informed on the topic, maybe you could have a chat with yours :)
26 Years old
Diagnosed with severe pancolitis 03/09 unresponsive to medical treatment
Prednisone 35 mg, Imuran 100mg, 2nd Remicade infusion.
Mulitivitamin, calcium supplements, probiotics
Seroquel 12.5mg, Paxil 10 mg (for anxiety, since 2003)
Considering total colectomy + J pouch a couple of months later