Do you know the extent of her Uc? Meaning, does it involve her entire large intestine, a portion, left sided, rectal? Where are you from? Has she ever tried Mesalamine or Salofalk enemas? If not, this may be an option. There is a class of "safer" drugs that are called 5-ASA's. Mesalamines and Basalazide are among them and is considered to be safe for long term usage while the steroid enemas/foam or capsules are not safe for long term.
OK, to answer a few more details and facts about
- From memory it's affected part (maybe 2/3)of the colon, can't remember exactly though. Will need to reconfirm this with the GI when we have our next appt. and get back to you.
- We live about 1hr north of Sydney in Australia.
- Currently back trying Colifoam enemas as of 24hrs ago.
- Drugs currently being taken are
*Colazide 750mg, taking 3 caps, 3 times daily.(this is the equivilant to Basalazine & Mesalazine)
* Prednisone currently reduced dosage to 25mg daily as of 48hrs ago, as advised by GI.(Possibly going back to 50mg daily if flare continues)
* 1 x Swiss mulit vitamin daily
* 2 caps x 1500mg Fish Oil daily.
* Probiotics 1-2 daily starting 12hrs ago.
* Buscopan - Possibly 6-8 daily depending on cramping
After a call to the GI this morning, he's now advised we need to take more dramatic drugs to bring this under control. The drug he's prescribed is called "Azathioprine 50mg" Has anyone used this drug??? Or can advise where we can get more info on side effects etc etc???
We're a little hesitant to use this straight up without trying a few different things first as the GI did advise this was a long term drug to take once she started on it. As we "were" looking to start a family early next year, this seems to be putting the plans back a little and being on immuno surpresant drugs surely can't be beneficial to either falling pregnant or during pregnancy.
As for the 5 ASA drugs.... We've not been introduced to these as yet. The only one that seems to be Asacol which we have no idea where in the range of meds this sits with regards to severity. Can you tell me which are the 5 ASA's and I'll query the GI about them next visit.
Thanks for all the advise... much appreciated.