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Serenity Now
Veteran Member


Date Joined Jan 2009
Total Posts : 2153
   Posted 6/10/2009 12:42 PM (GMT -6)   
I woke up yesterday with some irritation of my right eye.  I thought maybe I got some lotion in it, so it would be flushed out before too long.  But that doesn't seem to be the case.  The white of my eye is bloodshot.  It feels like there is grit or something in my eye when I blink.  Weirdest thing is some white/milky coloured film around the upper-left rim of my iris.  Hurts a bit when I move my eye, and very sensitive to light.  In fact, a great stabbing pain when exposed to anything other than dim light.
 
Never had anything like this before, so no idea what it is.  I'm usually the type to wait and see if it goes away, but it is still here today.  I did some research on the internet and I can't tell if it is an infection or inflammation.  In any case, everything I read says go to your doctor!  Man I hate to do that, I am there so often I feel like I am going to get one of those letters telling me to leave them alone.
 
Anyway, I finally gave in and called... soonest appt I could get is Friday morning.
 
During my research I read that IBD-ers are prone to iritis/uveitis??  Anyone have experience with this?
ack, 42, Vancouver BC
 
DX: UC (Pancolitis) as of Jan2009.  Symptoms first began June 2008.
Current Meds: Ferrous Sulfate, plus various supplements
Previous Meds: Jan-Mar 2009: Asacol 800 mg (1 pill x 4 daily), stopped Mar14/09. 


BigPanda
Regular Member


Date Joined Mar 2009
Total Posts : 54
   Posted 6/10/2009 1:57 PM (GMT -6)   
Hi ack
I never had white stuff in my eyes, but I do have some (kind of a lot) red blood vessel shown on both my eyeball.
I had this for several years and never goes away.
Every morning, the red vessel seems less while at night, especially when starring my PC a lot, I found many red blood vessels.

I also asked my GI, he did not give any clear answer.I ever went to an oculist before I was diagnozed, he did not give any useful suggestion either.

Serenity Now
Veteran Member


Date Joined Jan 2009
Total Posts : 2153
   Posted 6/10/2009 2:02 PM (GMT -6)   
Well that would be frustrating, not to get any answers. Does your eye hurt at all?
ack, 42, Vancouver BC
 
DX: UC (Pancolitis) as of Jan2009.  Symptoms first began June 2008.
Current Meds: Ferrous Sulfate, plus various supplements
Previous Meds: Jan-Mar 2009: Asacol 800 mg (1 pill x 4 daily), stopped Mar14/09. 


Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2105
   Posted 6/10/2009 2:15 PM (GMT -6)   
Comes and goes occasionally. I attribute it to the UC. One eye will get bloodshot like that for several days. I'll put some drops in it just to make it feel better. Not as painful to light as you describe though.
Proctitis DX 1999, Pancolitis DX 2008
Golimumab study (100mg every 4 weeks)
L-Glutamine 5000 mg + 600 mg pyridoxal alpha-ketoglutarate
Probiotis/VitD3 5000IU+Ca/1000mg DHA


Serenity Now
Veteran Member


Date Joined Jan 2009
Total Posts : 2153
   Posted 6/10/2009 5:32 PM (GMT -6)   
Hmm. Yeah if it weren't for the pain I think I would just try to deal with it on my own.
ack, 42, Vancouver BC
 
DX: UC (Pancolitis) as of Jan2009.  Symptoms first began June 2008.
Current Meds: Ferrous Sulfate, plus various supplements
Previous Meds: Jan-Mar 2009: Asacol 800 mg (1 pill x 4 daily), stopped Mar14/09. 


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 6/10/2009 7:18 PM (GMT -6)   
Any sort of eye pain accompanied by redness should always be addressed by a doctor especially with people with IBD. You don't want to mess around if it's Uveitis or Irisitis - eye infections such as these can lead to blindness if not taken care of promptly. It's good you were able to make the appointment.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate ALL mesalamines**~Allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-had 2 series of 3, OA-Celebrex, Tylonel Arthritis and Voltaren Gel
To help Healingwell - click here: DONATE
 
 
 
 

 
 


Serenity Now
Veteran Member


Date Joined Jan 2009
Total Posts : 2153
   Posted 6/10/2009 7:22 PM (GMT -6)   
That is the kind of thing I was reading on the internet.... On the one hand I feel panicky and hope that Friday is prompt enough. On the other hand, I still feel like my doctor is going to be sick of seeing me! I wonder if I am the patient she sees most often. Sigh...
ack, 42, Vancouver BC
 
DX: UC (Pancolitis) as of Jan2009.  Symptoms first began June 2008.
Current Meds: Ferrous Sulfate, plus various supplements
Previous Meds: Jan-Mar 2009: Asacol 800 mg (1 pill x 4 daily), stopped Mar14/09. 


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 6/10/2009 7:25 PM (GMT -6)   
I worry about that too but the way I figure it is, hey I CAN'T help it! :) And neither can you. If they have an issue about seeing you too often then poop on them! You pay them so they should be HAPPY to see you. But maybe you should call them and see if it's possible to get in any sooner. It may get worse or it may not - no one knows but it wouldn't hurt to ask right?
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate ALL mesalamines**~Allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-had 2 series of 3, OA-Celebrex, Tylonel Arthritis and Voltaren Gel
To help Healingwell - click here: DONATE
 
 
 
 

 
 


Serenity Now
Veteran Member


Date Joined Jan 2009
Total Posts : 2153
   Posted 6/10/2009 8:34 PM (GMT -6)   
Poop on them, LOL! That's what I should have done to the assistant at her old office. She was clearly getting sick of seeing me... and I was in full scale flare at that time, so I could have easily done it! HAH. At least my doctor has moved to a new office, so although she's seen me a million times, this will be only the second time this assistant has seen me.

Well, she already told me the soonest was Friday morning, so I think I will just wait. It hasn't gotten any worse since it started (yesterday morning) so hopefully it's ok to wait one more day.
ack, 42, Vancouver BC
 
DX: UC (Pancolitis) as of Jan2009.  Symptoms first began June 2008.
Current Meds: Ferrous Sulfate, plus various supplements
Previous Meds: Jan-Mar 2009: Asacol 800 mg (1 pill x 4 daily), stopped Mar14/09. 


AMK77
Veteran Member


Date Joined Mar 2008
Total Posts : 678
   Posted 6/10/2009 9:03 PM (GMT -6)   
I would go to a walk in clinic. I couldn't wait until Friday.
32 yr old female
Mild Pancolitis
I've had UC since 2000 but was in remission for most of those 8 years med free
Cannot tolerate mesalamine - starting 6mp soon?


rouns
New Member


Date Joined Apr 2008
Total Posts : 9
   Posted 6/10/2009 10:44 PM (GMT -6)   
"I read that IBD-ers are prone to iritis/uveitis?? Anyone have experience with this?"

Yes!

Get to an eye doctor...ASAP. Don't rely on your GI or regular doctor for this, it is not their specialty.

Your in trouble if the floaters are showing up. Within a matter of hours, thousands of floaters were visible.

I started with irritation and redness in one eye, photosensitive, blood shot red eye ....waited for my appointment a week later, and spent the next year battling Uveitis. I went to the eye doctor for follow ups 2-3 times PER WEEK for many months. I used Pred Forte (prednisone) eye drops every 20 minutes round the clock.

Just FYI, when your exposed to so much prednisone in the eye, (they say around 2000 drops) early cataracts form, and it's true, I have cataracts.

I was so sensitive to light, I put wool blankets on my bedroom window and stayed in the dark all day.

Uveitis is serious and incredibly painful.

I now have it in both eyes, and when it flares, you can bet I'll get in to see a doctor within hours. Most eye doctors consider it an emergency. With a hx of UCD, they should get you in much sooner.

If I had gone in the same day the symptoms showed up, I would not have the vision loss I have today.

I have found that stress, lack of sleep and anything foreign (ie., shampoo) in my eye can start a flare.
Diagnosed 1978, first proctitis, left sided UC diagnosed a few years ago, and bilateral uveitis and in '09 rheumatoid arthritis

Current meds: Lialdia 4.8 mg/day, Canasa.


Born in 1957.

Post Edited (rouns) : 6/10/2009 9:50:30 PM (GMT-6)


PSA
Regular Member


Date Joined Jan 2009
Total Posts : 498
   Posted 6/11/2009 1:30 AM (GMT -6)   
It there is redness, accompanied with irritation or pain, please consult eye specialist immediately. If it is only redness, then it may not be a cause to worry. I had it a couple of times. Last time I had it was in September 2006. My doctor told me nothing to worry as it is caused because of rupture of some nerve, in case you rub your eyes really hard. He did not even give any eye drops and the redness went away after 10 days.
45 years Male Attorney
Diagnosed UC October 1989
 
Had two stage J Pouch Surgery Nov 2005; Take Down March 2006
Complications after surgery - Incisional Hernia and Ano Fistulas
 
"There are only two ways to live your life. One is as though nothing is a miracle. The other is as though everything is a miracle: Albert Einstein
 
"What you are aware of you are in control of; what you are not aware of is in control of you."
 


beta
Regular Member


Date Joined Aug 2006
Total Posts : 60
   Posted 6/11/2009 4:33 AM (GMT -6)   

Hi ACK

I had Uvitis too.  Apparently it is basically an inflamation of the eye but can be serious.  I was treated as an outpatient in the Eye & Ear hospital but they threatened to take me in if it didn't improve.

Since then I have had other problems with my eyes. High pressure & dryness.

Basically GO TO A HOSPITAL IMMEDIATELY  - and preferably a specialist one.  I don't want to scare you and my outcome was great but it does need specialist attention.

Hope all goes well

Beta

 

 


Diagnosed 1999 - Pancolitis -Currently in Remission
Imuran 100mg, 500mg Calcium,
 


Serenity Now
Veteran Member


Date Joined Jan 2009
Total Posts : 2153
   Posted 6/11/2009 10:06 AM (GMT -6)   
Hi everyone... thanks for your input! It's actually gotten a lot better today. The redness is almost gone and there is no pain so far this morning. I was even thinking of cancelling the appointment, but after reading everyone's posts I think I will still go just to be safe.

I can't go directly to an ophthalmologist (I inquired about this before I made my appointment), I have to be referred by my family physician, just like I had to be referred to my GI specialist.
ack, 42, Vancouver BC
 
DX: UC (Pancolitis) as of Jan2009.  Symptoms first began June 2008.
Current Meds: Ferrous Sulfate, plus various supplements
Previous Meds: Jan-Mar 2009: Asacol 800 mg (1 pill x 4 daily), stopped Mar14/09. 

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