Home from the hospital

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Regular Member

Date Joined Mar 2008
Total Posts : 113
   Posted 6/10/2009 9:32 PM (GMT -6)   
Some of you may remember me as the person doing the Colal-Pred study. The first 3-4 days into the study I saw steady improvement, then things turned really, really bad. By last Monday morning I was in excrutiating pain with bloody D and vomiting at the same time. My fever also spiked. I called my doc and they said to go to the ER.

I was hospitalized for 6 days trying to get my flare under control. AND, to top it all off, I had somehow developed C-diff in the process, so now I had the worst flare of my life, PLUS c-diff. Loads of fun, eh? I came home this past Saturday on Levaquin, Flagyl, Prednisone, Lialda, Phenergan for nausea and Vicodin for pain. It has been a LONG road to recovery. I didn't eat solid food for over 2 weeks and lost 20 lbs (I was not overweight to begin with, so I really look pretty gross now). I'm on day 3 of eating solid foods and so far, so good. Still painful D, but the gaps inbetween are getting longer and longer. I'm still not sure where I picked up the C-diff except from my Gastro's office earlier that week? I wasn't on antibiotics and I wasn't in any hospitals before that.

I share my story because I really want everyone to understand the seriousness of this disease, especially those that are new to it. Before this last flare, I was always able to pull myself out of the flare with meds, suppositories, etc. I tried to pretend that it wasn't taking over my life and it almost cost me my life! (My doc says another day or two could have been very, very dangerous). If you're unsure, always call the doc or go straight to the ER, especially if you spike a fever. It was a hard lesson for me to learn and I know there are several people on this board who have gone through the same thing.

God Bless, and thanks to everyone for all of your support. There are so many times when I've found an answer, or heard an encouraging word on this board that may not have been intended for me, but spoke to me nonetheless.
Diagnosed w/ UC in August 2007
Was in remission for almost one year (using only Lialda 4xday)
Rowasa and Canasa did not work.
Current status: In Flare since May 2009, undergoing Colal-Pred trial

4 Lialda/day maintenance, healthy diet
Starting Colal-Pred trial May 18, 2009

Elite Member

Date Joined May 2003
Total Posts : 30986
   Posted 6/11/2009 1:55 AM (GMT -6)   
Woe Renee, how horrific of an ordeal you've been through. It's good you were checked for c.diff..was it through a stool sample?...and are now on the road to recovery.

Hope you get to feeling better daily...but we all know it can definitely take a while for flares (especially with other bugaboos attached) to finally come under control.

I'm assuming you were checked for c.diff before the study?

It's possible one can pick it up innocently from hand to mouth from anywhere, for we truly know how many people don't wash their hands after using the bathroom...shudder!

Please keep us posted as to how you're doing,

I realise in the past that Rowasa and Canasa didn't work for you...maybe worth reconsidering once you're starting to taper the pred...

I'm wondering if pred could have allowed the c.diff to multiply?

*Heather* Status: maintenance Asacol 6 daily + Salofalk enemas every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 x2 daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

Elite Member

Date Joined Apr 2004
Total Posts : 23551
   Posted 6/11/2009 6:39 AM (GMT -6)   
What an ordeal you suffered thru!! I'm glad too that you are starting to turn around and I hope you continue to heal.
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate ALL mesalamines**~Allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-had 2 series of 3, OA-Celebrex, Tylonel Arthritis and Voltaren Gel
To help Healingwell - click here: DONATE


Veteran Member

Date Joined Feb 2005
Total Posts : 6448
   Posted 6/11/2009 9:38 AM (GMT -6)   
Wow Renee, you've been through the wringer. Glad they dx'd the c-diff. Quincy is right in that we can get that c-diff from just about anywhere. Glad that you reminded everyone to always seek medical help when we are not feeling right. I tend to ignore things thinking they will go away. One thing about having this illness is that I'm listening to my body more and taking quicker action when not feeling well. Glad to hear you are home and I hope you start feeling better soon.


Remicade - will have my 29th infusion on July 8
Vitamin B-12/Biotin, Probiotics, Vitamin D-3 (2000 IU)
Co-Moderator for the UC Forum

New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, September 21, 2018 10:29 AM (GMT -6)
There are a total of 3,005,420 posts in 329,225 threads.
View Active Threads

Who's Online
This forum has 161774 registered members. Please welcome our newest member, Lexi_40.
327 Guest(s), 9 Registered Member(s) are currently online.  Details
JayMot, acarined, Missouri, Saipan Paradise, ks1905, PA_grandma, halbert, Buddy Blank, (Seashell)