Woe Renee, how horrific of an ordeal you've been through. It's good you were checked for c.diff..was it through a stool sample?...and are now on the road to recovery.
Hope you get to feeling better daily...but we all know it can definitely take a while for flares (especially with other bugaboos attached) to finally come under control.
I'm assuming you were checked for c.diff before the study?
It's possible one can pick it up innocently from hand to mouth from anywhere, for we truly know how many people don't wash their hands after using the bathroom...shudder!
Please keep us posted as to how you're doing,
I realise in the past that Rowasa and Canasa didn't work for you...maybe worth reconsidering once you're starting to taper the pred...
I'm wondering if pred could have allowed the c.diff to multiply?
*Heather* Status: maintenance Asacol 6 daily + Salofalk enemas every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 x2 daily); Salofalk enemas nightly for flares & taper to maintenance
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux); Effexor XR 75mg(depression); Pulmicort/Airomir (asthma)
~vitamins/minerals/supplements; Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!