why does this Disease happen?

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Hellokitty
Veteran Member


Date Joined Mar 2009
Total Posts : 765
   Posted 6/11/2009 2:33 PM (GMT -6)   

I was just wondering why I have the colitis. I believe it could have been a virus but then it could because I had health problems since I was born. Why do you guys think that you have this?


Female 32 years old
 
Diganosed ulcerative colitis November 2007
Present medication- 1X 500mg pentasa in the morrning and 1 X250g Asacol every other evening
Diet- Tried raw food diet with 80% raw foods, found some pro's and cons. Started to add more products to keep up weight as mine did not balance. Still eating raw spinage and still am combination eating. No dairy No gluten.  
 
Other medical problems- Born with asthma- no medication taken for this.
dyslexia- found out that many people with learning difficulties also have food sensitivity


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 6/11/2009 2:39 PM (GMT -6)   
Bad luck. There's really no known cause. just like with all autoimmune diseases. There is likely some genetic component, but what exactly that is remains poorly understood. Nobody else in my family has UC, and only one other relative has an autoimmune disease (and aunt, who has RA).

I think that the hormone craziness after birth triggered my first flare, but I don't believe that it *caused* my colitis.
Status: Remission since late May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Eased for ~3 weeks in December, possibly b/c of probiotic use?
Returned in January 2009 (with a vengeance), diagnosed with pancolitis on January 30.
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa twice weekly, Culturelle probiotic, and Zoloft (25 mg).


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 6/11/2009 3:11 PM (GMT -6)   
Accutane destroyed the balance of my colon.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering. Asacol maintenance for 20+ years; used prednisone & Rowasa for flares.  Probiotics (Ultimate Flora, 50 billion), salmon oil (omega-3) when I can remember. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; eliminated wheat/gluten from my diet.
Bad flare in March, used prednisone. Humira denied, started Remicade 4/12 and doing great~ learning what normal is~ wow


saposs
Regular Member


Date Joined Nov 2008
Total Posts : 339
   Posted 6/11/2009 3:18 PM (GMT -6)   
Major depression of my life gave me this and thyroid problem .... i guess my autoimmune got triggered after this months long depression..i was upset and crying all the time.... i had been very healthy before this! Guess what... i used to cry so much those days that my eyes became bright and used to sparkle all the time... hahaha... positive side affect of excessive crying!
Right now -FLARING (after my Rubella vaccination)
Diagnosed in Jan'2009: Canasa suppositories 1000 nightly - worked for 2 months then re-flare
13 may: canasa 1000 X2 daily for 2 weeks - to start Lialda after 2 weeks if canasa double dose does not work
Lialda X2 started on 30th may.
Symptoms: Mucus, blood, constipated (not always), Lots Gas
Also gifted with Hypothyroid & have calicum deficiency family history!
Also started Probiotic from 23 Mar & fresh Turmeric root from 25 March'09- stopped both on 10th May


Zippy123
Veteran Member


Date Joined Feb 2009
Total Posts : 735
   Posted 6/11/2009 3:44 PM (GMT -6)   
That is the 5 million dollar question. My mom, and my sister have bowel problems so it runs in family some, but my other siblings don't have a problem.

The thing is at one point we didn't have this and for some reason colitis took over. Now when I think back on it, I was having some symptoms many months before, I remember I started having more urgency in the morning long before colitis reared its ugly head. My BM's were normal and no pains, but boy I had to go and could hardly hold it, I thought nothing of it. Until stressful situation came up and it started, it started with a very strong ache in my lower colon so bad I could hardly sleep. Then the real symptoms began, and its been a battle from hell ever since.

I wonder if genetics and diet work together with stress to set this off. I ate lots of carbs, I love toast and cereals. I'd eat 4 pieces of toast before bed sometimes. Chocolate oh yeah.

I read an article on plant proteins called Lectins, which I found interesting as a possible cause to autoimmune diseases. If you follow the low carb diet you eliminate most of these Lectins. Here is a link http://www.krispin.com/lectin.html#Plain%20English

I am hopeful that this stuff and other autoimmune diseases is reversible contrary to what doctors say.

Liza D
Regular Member


Date Joined Apr 2009
Total Posts : 166
   Posted 6/11/2009 4:22 PM (GMT -6)   
I always felt like there just was something wrong with my gut. I used to always feel sick to my stomach but never as bad as with the colitis. It seems like whenever I get "healthy", Like eating well and exercising, then I would always flare. It seems like a hyper-immune system.

It also runs in my family. But I never figured out what would make me flare and what would help... who knows!
UC (Pancolitis... 90%!) December 2001
Arthritis (2003)
Upper GI Ulcer (2006)
Osteopenia (2008)
Depression/Anxiety (2002)
J-Pouch May 2009

Meds just stopped working so I took the problem out! No more colon and all kinds of excitement!


blueclassring
Regular Member


Date Joined Feb 2007
Total Posts : 385
   Posted 6/11/2009 4:41 PM (GMT -6)   
I subscribe to the bacterial overgrowth theory. Some broad spectrum antibiotics can cause colitis(pseudomembraneous colitis), that mimic our disease state. Since our small intestines can't break down complex carbs, it produces an environment where bad bacteria can multiply. Through stress into the mix and the body deteriorates.

I don't believe in the autoimmune disease theory anymore. Why would the body attack itself? I believe it is the bacteria's toxins and bacteria itself that cause the immune system to be activated.

That's why after a while prednisone stops working. It dampens the immune system, but are bodies are so fantastic that they find ways to surpass the effects of the drug. That's why you see failure after failure after new drugs are added. The body wants to rid itself of this state, but we aren't helping it.

I truly believe if you remove the offending agents(bad foods), the body can heal itself.

Again, these are just theories that explain how I feel about my disease. I don't discourage the use of pharmaceuticals since that is my career field. I just won't take them.
Pharmacist as of 6/12/2009.
Diagnosed 8/99. Suffered for almost 10 years. I am currently on the Specific Carbohydrate Diet and am nearing remission. I feel fantastic! I have lossed so many years to this disease.

MED-FREE!!!

Doc wanted to put me on 6-mp or Remicade, but I refused to take the medications! Currently on the Specific Carbohydrate Diet.  I'm in remission and life is like it always should have been.

Post Edited (blueclassring) : 6/11/2009 4:44:40 PM (GMT-6)


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 6/11/2009 4:58 PM (GMT -6)   
Bowel issues run in my family as well - my mother had Crohn's. But I never had an issue with my bowels until after the birth of my son and with a series of antibiotic treatments for bad infections.
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Meesh
Veteran Member


Date Joined May 2006
Total Posts : 619
   Posted 6/11/2009 5:34 PM (GMT -6)   
I have no family history of autoimmune disease and wasn't diagnosed till I was middle aged. But I have ALWAYS felt stress in my stomach, from the time I was little, anytime I felt guilty, stressed, anxious, any negative feelings, always manifested in stomach issues. No one really knows definitively what causes UC.
47 yr old female, dx'd UC April 27, 2006; mild arthritis in lower back, dx'd May 2008; Osteopenia dx'd 6/08 Finally achieved remission mid October 2008!!

16 Remicade infusions, current scheduled every 6 weeks: 1st: 7/21/07; most recent: 6/06/09; Current meds & supplements: Lialda, 4 tabs in the morning; Xanax as needed (rarely); Rowesa and/or Canasa; multivitamin w/folate; Culturelle; Fish oil capsules, calcium chews and/or Tums; Vitamin D;

Past meds: Prednisone 4/06-4/08; Entocourt EC; Asacol; Colazal; Venofer (iron) injections Dec '07; Imuran (extremely bad reaction 2/07); Protonix; Lexipro


potty girl
Veteran Member


Date Joined Dec 2006
Total Posts : 835
   Posted 6/11/2009 5:36 PM (GMT -6)   
I just wish somebody knew why then they could probably fix it.
Rona

synthroid .088 mg, lowpressor 50 mg x 2, cozaar 25mg x2, imdur 30 mg
nitroquick, proventol, plavix 75 mg, protonix 40 mg x 2, asacal 400mg x 9
carafate 1 gm x 4, zyrtec 10 mg, rhinocort aqua nose spray, fish oil,
potassium.


qazwsx12
Regular Member


Date Joined Nov 2008
Total Posts : 63
   Posted 6/11/2009 6:29 PM (GMT -6)   
Not sure but when I developed it I was drinking massive amounts of black coffee, taking tons of caffeine, fitness supplements like ephedrine, and high stress from a new job. Sometimes I have to wonder if all those energy supplements and stress contributed to it, although I hear the stress angle has been pretty much disproved. Either way the time for surgery is drawing near :(

Sweetie31105
Veteran Member


Date Joined Aug 2008
Total Posts : 903
   Posted 6/11/2009 8:05 PM (GMT -6)   
Heriditary. My Dad had his colon removed due to his UC, but then it came back just in the rectum area. Those darn genes! wink
27 year old, Married, Female.
Diagnosed with UC since March 2007

Taking Humira and Imuran since May 2007 (Currently in remission since May 2007)
Taken off Imuran 1/15/09
Only taking Humira.

Can't take Asacol, Allergic to Remicade


PrednisoneJunkie
Regular Member


Date Joined May 2009
Total Posts : 33
   Posted 6/11/2009 8:19 PM (GMT -6)   
I used to think no one else in my family had UC, and the question of how I got the disease tortured me. Recently I found out my uncle has it and he keeps it a secret. That was really selfish of him. So on the one hand there is a genetic component, but on the other hand, I don't see how people could have had this problem and survived back before there were medications to treat it. It has to be related to modern food and bacteria as well.
27 / Male
UC Diagnosis May 2003
Survived 9 flares
Used prednisone, asacol 9/day
Alternatives: have successfully tamed 1 flare and counting without prednisone with massive doses of probiotic (along with asacol)
Diet: paleolithic (but I often cheat), non-smoker, non-drinker
Other problems: Childhood asthma


subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 6/11/2009 8:22 PM (GMT -6)   
I had a really great digestive system. I had taken antibiotics off and on for ear infections, sinus infections, and acne, but my digestive system was still rock solid--just like everyone else in my family. That was until I went to Asia and got a horrible skin inflammation. I was on antibiotics for way longer than I was supposed to be. I started drinking bubble tea, which contains HFCS. Bubble tea was the new thing, and of course I mistakenly assumed that sugar from fruit was better than sugar from cane. I was bloated, passing gas a lot, and having diarrhea. Then my divorce came, and I started eating nothing but chocolate to curb my depression. The gas, bloating, and diarrhea got worse and worse. I ignored it. I didn't think it was a big deal until one day I saw blood.

I now take probiotics, don't eat anything with HFCS, and eat chocolate only once in a blue moon. I will also add turmeric powder to many of the meals I cook and I drink Tension Tamer tea from Celestial Seasonings. I have barely any bloating and gas, and I'll only get diarrhea if I eat something wrong (usually something that I think doesn't contain HFCS, but it does.)
Joy - 47 yrs and counting; Colitis Dec 06 (also have IBS); Currently in remission

Figuring out how to reduce a flare or get into remission is a trial and error experience. Don't expect your GI to have all the answers. He was trained in making diagnoses, prescribing medications, and surgically removing the colon. He was not trained in alternative treatments. That's why they are called alternative treatments.

Lexapro (for stress), Probiotics and Vitamins, Anti-inflammatory foods, No pro-inflammatory foods when flaring, No HFCS, No foods high in fructose, No artificial sweeteners -- Fecal transplantation worked, Prednisone stopped working, Colazal stopped working, Asacol stopped working

Post Edited (subdued) : 6/11/2009 8:28:33 PM (GMT-6)


Katmom
Veteran Member


Date Joined Mar 2008
Total Posts : 1202
   Posted 6/11/2009 8:49 PM (GMT -6)   
The Million dollar question: We each blame ourselves. My daughter has the disadvantage of a maternal Uncle with a colostomy from UC, an aunt with Crohns and a grandmom with Diverticulitis. Her father and mother(me) are fine. She went on a 2 month course of antibiotics for her acne(
not Accutane, some milder stuff) over a summer, and in December found her first blood. Was that it???? Could the trigger have been so sensitive? Now, it doesn't much matter the cause, it is here.
Daughter,15 diagnosed 1-08 w/ UC .
Previous drug sampling: Asacol, Prevacid, Flagyl, Prednisone- 50mg to 0, 4 major flares '08.Hospital four x. Low residue diet,
6MP, Colazal , Cortifoam enemas,
Trying probiotics, Niferex, fish oil, Magnesium, Acupuncture.
Remicade 10mg per kilo@ 8wks, since 10-08. Still on 6mp and Colazal


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 6/11/2009 8:55 PM (GMT -6)   
The human body is not perfect, and with the combinations of genetics it's the reason why the basis of any disease is in essence the body attacking itself.

Crohn's and UC have been around for over 100 yrs and whatever meds were used then I don't know but if you think about it none of the meds used now are specifically designed for IBD, they're all cross-over drugs, drugs used for cancer, arthritis ect.

There isn't one specific thing that causes IBD, it's a multitude of things. There are thousands of people walking around right now that think they are perfectly fine only to wake up tomorrow with an IBD and their lives changed forever.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


mumbles
Regular Member


Date Joined Dec 2008
Total Posts : 199
   Posted 6/11/2009 11:01 PM (GMT -6)   
It didn't start until I started taking hard antibiotics for my wisdom teeth removal. These antibiotics leave me to believe that they caused an imbalance in bacteria which led to a confused immune system that I have now. Personally, I believe UC may be from a multitude of causes just with the same, or similar, symptoms. Thats why what works for some doesn't work for all. For some it may be autoimmune caused by genetics or for others caused by intestinal gut bacteria unbalancing the reactions in the colon and causing an autoimmune response.
Asacol-12 a day
1 Culturelle
1 Canasa
5g Fish oil supplements
1 Vitamin
1 Haldi Drink
Gluten-free and lactose-free diet


ickypoo
Regular Member


Date Joined Dec 2008
Total Posts : 224
   Posted 6/12/2009 6:39 AM (GMT -6)   
While recognizing the role of things like genetics and stress, I am quite certain that prolonged exposure to antibiotics in my late teens started the ball rolling for me. From that moment onward, I have had gastro problems, culminating in UC.

Having said that, my most serious flare started after getting a flu shot. Not sure of the cause/effect relationship there, but won't be getting one of those ever again.
Diagnosed with UC in 1990.
Current Meds: Sulfasalizine (2 g), Rowasa (now and then), Folic Acid (1 mg)
Supplements: fish oil, flax oil, glucosamine, CoQ10, fiber, aloe vera juice, probiotics.
Other: Raw Milk for breakfast. Currently exploring a raw milk fast one day/week.


RH_Texas_Gal
Regular Member


Date Joined May 2009
Total Posts : 367
   Posted 6/12/2009 6:16 PM (GMT -6)   
I think mine started with a viral infection too. I had what the docs thought was mono but blood work showed a "non-specific" virus. After a few months I felt normal but less than a year later got it again ... a few months after recovering from the 2nd bout, I started getting UC symptoms, although I did not know what it was at the time. Doc said we all carry dormant viruses in our bodies and anything from a simple cold, stress, bacterial infection, etc. could "wake" the virus up ... from there it is a chain reaction. Before the virus, I had a cast iron stomach, could eat anything, never had heartburn or reflux and now have it all along with the UC ....

darius
New Member


Date Joined Jun 2009
Total Posts : 5
   Posted 6/13/2009 6:44 PM (GMT -6)   
removing stress from my life brought my violent uc under control.. getting married to beautiful wife proabably brought the happiness and hope i needed too... and then removing glutten, lactose, and salt from my diet .. but yea, you wonder why you have it in the first place.. guess just from listening to other members .. there can be many reasons depending on your life and ancestry..
currently taking herbal aloe concentrate from herbalife, mesacol, wysoline (10mg), azoran (50mg), folvite (5 mg), shelcal (500mg), providac, and tryptomer (10mg), and fiber supplement for regularity.

currently extreme gas is only symptom, no other symptoms from UC, not even any blood, and just wanting more flavors to come up other than vanilla for lactose-free ice cream..

http://www.dariusmunshi.com

Post Edited (darius) : 6/14/2009 4:13:30 AM (GMT-6)


pam222
Veteran Member


Date Joined Jun 2009
Total Posts : 985
   Posted 6/14/2009 7:43 AM (GMT -6)   
I wish I knew. I started getting symptoms within days of quitting smoking (after 10 years of smoking) and have not been in remission since (August, 2007). My grandmother also has it
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