OT: Teen diagnoses her own disease

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Veteran Member

Date Joined Jul 2006
Total Posts : 672
   Posted 6/11/2009 4:19 PM (GMT -6)   
Good for her, what an illustration of how long we IBDers often suffer before getting the diagnosis...
Diagnosed with Ulcerative Colitis 6/2006 at age 26 after sudden E.R. visit
~Pancolitis (Mild to Moderate)
 ~I had Mono in 2000
On Colazal 3x3/day; Folic Acid 1mg; Calcium/Magnesium/Zinc combo
(Generic Balsalazide not as effective for me)
In remission about 2-3 months after E.R. but not back to normal!
I hate Ulcerative Colitis and can't wait till we eradicate it

Forum Moderator

Date Joined Apr 2004
Total Posts : 23551
   Posted 6/11/2009 5:00 PM (GMT -6)   
Thanks for sharing that. Goes to show you that we have to be our advocate sometimes.
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate ALL mesalamines**~Allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-had 2 series of 3, OA-Celebrex, Tylonel Arthritis and Voltaren Gel
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Elite Member

Date Joined May 2003
Total Posts : 30204
   Posted 6/11/2009 11:50 PM (GMT -6)   
As well...the integrity of the result is only as good as the person doing the pathology....Some don't see things until they're more obvious...or they just flash them by very quickly.

Awesome...wonder what field she'll be in as a profession..

*Heather* Status: maintenance Asacol 6 daily + Salofalk enemas every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 x2 daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

Veteran Member

Date Joined Feb 2009
Total Posts : 735
   Posted 6/12/2009 8:43 AM (GMT -6)   
Now if she can just find a cure :-)

Veteran Member

Date Joined Feb 2005
Total Posts : 2103
   Posted 6/12/2009 9:18 AM (GMT -6)   
Must have been nice to go to a school that could afford for you to look at your own intestinal tissue. I wish I had that opportunity when I was in AP courses.
Good for her though!
20 year old college student diagnosed in March 2005
Remission since January/April 2006->THREE YEARS!!!!!
Trying Colazal 3 750mg x2- so far so good
25mg Elavil
75mg Effexor XR for GAD
"If you don't like something, change it. If you can't change it, change your attitude."
Maya Angelou

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