Has anyone smoked to curb UC symptoms(let's not get nasty about this please)

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Joylu
Regular Member


Date Joined Jan 2008
Total Posts : 362
   Posted 6/12/2009 7:13 AM (GMT -6)   
Has anyone started smoking again to curb UC symptoms, and it did not work?
 
How long after you started smoking again did you see relief?
 
This would be my last resort, so I do not take this as a quick fix, but I want my life back, and if everything else I try does not worlk, I would consider smoking a few cigarettes a day again to be able to live and enjoy our family functions, and walk in the park again.
 
If you feel smoking is the worst of all evil, and living your life without a colon, or in your house is a better option, that is your opinion and I respect it.  Please respect mine to consider this if all else fails.
 
Ulcerative proctitis. On Asacol 3 3x a day, and Meslamine enemas nightly.
 Now on Hydrocortisone suppositories for 2 weeks
 Doc now has me on prescription Pepcid, and Questran. Just started that 05/15, so will wait and see.
Urgency is still my biggest problem, and extreme gas.  Blood is now gone.


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 6/12/2009 7:24 AM (GMT -6)   
Joylu, this topic is discussed regularly. I'm sure if you do a search, you'll find numerous threads on the subject.
Judy
 
Moderate to severe left-sided UC diagnosed 2001.
Flared for 5 years, finally in remission with Remicade since March 2006.
Avascular necrosis in both shoulders is my "forever" gift from steroids.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. 
"My life is an ongoing medical adventure"
 
.


Joylu
Regular Member


Date Joined Jan 2008
Total Posts : 362
   Posted 6/12/2009 8:08 AM (GMT -6)   
I have been looking at this site (on your google) for days and did not find an answer to the question I am asking today.

I wouldn't have asked it if I had.

This is obviously a very important thing to me, and I need input before making my decision, (which will still be my own)


Ulcerative proctitis. On Asacol 3 3x a day, and Meslamine enemas nightly.
 Now on Hydrocortisone suppositories for 2 weeks
 Doc now has me on prescription Pepcid, and Questran. Just started that 05/15, so will wait and see.
Urgency is still my biggest problem, and extreme gas.  Blood is now gone.


Eva Lou
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Date Joined Sep 2006
Total Posts : 3442
   Posted 6/12/2009 9:07 AM (GMT -6)   
well I'll tell you, I smoke 4 cigs a day & have for quite a while. The only "help" I find re. UC is that after a particulalry painful/stressful bathroom day, the cigs give me some peace of mind. I quit smoking when I became pregnant & developed UC immediately after my daughter was born- which if anything, I feel, is linked to the wackyness that pregnancy does to the immune system- I also flared up with another auto-immune illness right after childbirth, Graves Disease, which had all but gone into remission.
I don't attribute my smoking to having anything to do with my UC- sure it helps, theoretically, but I'm still getting Remicade, still on immune suppressants, still having accidents here & there, still getting up with gas & mucous 2x a night. Sooo... take from that what you will!
diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade-10mgs/kg- since 4/07
Imuran- 150mgs/day
various probiotics
Fiber supplement
 
 
 


Lonie
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Date Joined Feb 2005
Total Posts : 6448
   Posted 6/12/2009 9:14 AM (GMT -6)   
Hey Joylu, Go above the blue control panel bar to Google Custom Search, and put in smoking UC. I tried it and several threads popped up. Hope that helps. Here's a lengthy thread for you to read:

http://www.healingwell.com/community/default.aspx?f=38&m=1488209
Carol

Remicade - will have my 29th infusion on July 8
Vitamin B-12/Biotin, Probiotics, Vitamin D-3 (2000 IU)
 
Co-Moderator for the UC Forum
 
 


Joylu
Regular Member


Date Joined Jan 2008
Total Posts : 362
   Posted 6/12/2009 11:12 AM (GMT -6)   
So far, Eva Lou is the only one who addressed my actual question. The older threads do not.
As my post stated, I looked through all the google threads HERE, and there is alot on the subject, but not what I was asking.

Thank you Eva.


Ulcerative proctitis. On Asacol 3 3x a day, and Meslamine enemas nightly.
 Now on Hydrocortisone suppositories for 2 weeks
 Doc now has me on prescription Pepcid, and Questran. Just started that 05/15, so will wait and see.
Urgency is still my biggest problem, and extreme gas.  Blood is now gone.


Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3442
   Posted 6/12/2009 12:19 PM (GMT -6)   
you're welcome! I agree with you- the thing of it is, we rehash the same old subjects over & over anyway- why not smoking? Come on, how many times has diet been the topic of threads????? Gimme a break.....

diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade-10mgs/kg- since 4/07
Imuran- 150mgs/day
various probiotics
Fiber supplement
 
 
 


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6448
   Posted 6/12/2009 12:32 PM (GMT -6)   
I'm sorry, I was just trying to help.
Carol

Remicade - will have my 29th infusion on July 8
Vitamin B-12/Biotin, Probiotics, Vitamin D-3 (2000 IU)
 
Co-Moderator for the UC Forum
 
 


Rio in Maryland
Veteran Member


Date Joined Nov 2007
Total Posts : 891
   Posted 6/12/2009 1:33 PM (GMT -6)   
I used to smoke about 10 cigs a day, and was diagnosed with UC a few months after I quit smoking.

I tried smoking again, but it did not help at all, and I then had a hard time quitting again but finally managed to get off it.

Before trying cigs I also tried nicotine patches, nicotine gum, and even chewing tobacco (snus).
Rio, 33 year old male. Diagnosed with UC in 2006
100 mg Azathioprine (stopped), 4800 mg Asacol
VSL#3 x 3 times a day, Metamucil wafers
Vitamin E enema or Asacol enema occasionally
Spinach & sunflower seed diet / Juicing spinach and carrots


sunnyisagirl
New Member


Date Joined Jun 2009
Total Posts : 10
   Posted 6/12/2009 1:35 PM (GMT -6)   
I completely sympathize with you.

I wanted to quit smoking so bad for a while, but every time I did I would get a flare-up. In fact, my first symptoms at 33 happened 3 months after I quit smoking for the first time. I would start smoking again and the flare up would go away. (PS: patches didn't work for UC suppression as well as actually smoking, in my experience, so I'm not even sure it's the nicotine that does it.)

I finally decided to quit for good (Dec 2008), knowing I was going into a major flare and I personally don't regret it, but I can understand how you feel. My UC has been up and down since I quit and I was in remission when I quit. Mayo clinic is running studies right now about the impact smoking has on UC. Check out their website.

I personally would not start again. Life was worse as a smoker than as a flaring UC sufferer, for me anyway.

Joylu
Regular Member


Date Joined Jan 2008
Total Posts : 362
   Posted 6/12/2009 1:36 PM (GMT -6)   
Absolutely no reason to apologise Lonilane. You did nothing wrong.
Ulcerative proctitis. On Asacol 3 3x a day, and Meslamine enemas nightly.
 Now on Hydrocortisone suppositories for 2 weeks
 Doc now has me on prescription Pepcid, and Questran. Just started that 05/15, so will wait and see.
Urgency is still my biggest problem, and extreme gas.  Blood is now gone.


Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3442
   Posted 6/12/2009 2:48 PM (GMT -6)   
yup, no need at all!
diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade-10mgs/kg- since 4/07
Imuran- 150mgs/day
various probiotics
Fiber supplement
 
 
 


aned
Regular Member


Date Joined Mar 2009
Total Posts : 105
   Posted 6/13/2009 9:00 AM (GMT -6)   
I am a smoker and had my first major flare a few weeks after quitting.  I started smoking again (for reasons unrelated to UC).  Every time I try to quit it definitely makes things worse.  That said, if I did not smoke, I don't think I would consider it as an option to help with UC.  It is a major struggle in my life and for me personally I would rather deal with UC than addiction.  Also, keep in mind that I still struggle with UC although I smoke.  Good luck in your decision. 

37 y/o female
non-specific colitis dx. 2007
ulcerative colits dx. 2009
diverticular disease dx. 2009
Asacol-failed
Entocort-failed
Colazal-current, but not working yet


darius
New Member


Date Joined Jun 2009
Total Posts : 5
   Posted 6/14/2009 3:24 AM (GMT -6)   
Hi, i wanted to contribute and post because right now the only symptoms i am having are extreme gas. If these are the only symptoms Joylu you're currently having as expressed in your signature.. i am sorry i cannot answer the question directly because i never tried smoking as the solution. But just wanted to say i sympathize about the urgency and gas.. for urgency like during a typical day i would run to the bathroom 15-20 times per day, now it is only 2-3 times. I still have extreme gas.. i take the metro train to work and in the morning it is especially difficult, i find myself reaching the bar in front of me from time to time and squeezing it with most of my strength to avoid expelling.


currently taking herbal aloe concentrate from herbalife, mesacol, wysoline (10mg), azoran (50mg), folvite (5 mg), shelcal (500mg), providac, and tryptomer (10mg), and fiber supplement for regularity.

currently extreme gas is only symptom, no other symptoms from UC, not even any blood, and just wanting more flavors to come up other than vanilla for lactose-free ice cream..

http://www.dariusmunshi.com

Post Edited (darius) : 6/14/2009 4:11:26 AM (GMT-6)


SDM
Regular Member


Date Joined Aug 2007
Total Posts : 62
   Posted 6/14/2009 5:49 AM (GMT -6)   
Hi Joylu.  Yes, I started smoking again (twice now) as it seems to help keep my UC in remission.  I was another of those that was first diagnosed with UC after I had quit smoking for a few months.  My most recent quit attempt was in March and I last 3 days before a flare started and I immediately went back to smoking.  Within a day, things had settled down again.  So overall, yes, smoking makes my UC symptoms much better - although I do think smoking makes the fatigue part worse. 

Sandra, age 35
Diagnosed December 2006 with UC (proctitis)

Asacol (800mg x 2)
Salofalk suppositories as needed for flares
Multivitamin
Vitamins E, C, B complex, calcium & magnesium, zinc
Omega 3/6/9 supplements (1200mg x 2)
Probiotics


kazygirl
Veteran Member


Date Joined Sep 2007
Total Posts : 955
   Posted 6/14/2009 8:14 AM (GMT -6)   
hi
yes, i got uc when i quit smoking.

then just 2 flares ago, i started smoking to stop my UC and it worked.
i worked a charm.

i had about 3-5 cigs a day. sometimes less, somedays more. that was average.

and i just quit smoking about 4-5 weeks ago and i got the worst flare ever. like the bad one i had a few years ago that lasted year and half.
i am in so much pain and bleeding non stop practically.

i quit smoking cuz we wanna have a baby.
i would totally start smoking again, but think that i shouldnt cuz baby and if i did, when i quit, i would probably just flare again.
so im giving it a miss this time and not smoking to stop UC.

im still flaring bad, but hopefully the meds will help soon.

good luck.
smoking did in fact help me get out of a flare.
steph - 33 - female - gold coast australia - UC since 2000
was in remission until i quit smoking 5 weeks ago  o.O  now im flaring like a solar flare!
waiting for blood test to see if i can start imuran
mesalazine granules 3g x1 a day (much nicer than a million tablets a day)
just finished 3 months of prednisolone (worked) and now back on 40mg a day (ick)
quercertin tablets, tumeric capsules, vitamin d3, enteric coated fish oil
pre-conception vitamins and minerals (cuz we trying to make a baby)
oxycontin for pain every 4 hours.  plastic bags in the loo from the involuntary puking.
i still eat what i want, when i want, if i feel like eating at all ... diet doesn't affect my UC.
 
 
 


Joylu
Regular Member


Date Joined Jan 2008
Total Posts : 362
   Posted 6/14/2009 8:38 AM (GMT -6)   
thank you all for your input.  You have been a great help.
Ulcerative proctitis. On Asacol 3 3x a day, and Meslamine enemas nightly.
 Now on Hydrocortisone suppositories for 2 weeks
 Doc now has me on prescription Pepcid, and Questran. Just started that 05/15, so will wait and see.
Urgency is still my biggest problem, and extreme gas.  Blood is now gone.

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