Not UC...Chron's...

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imagine
Regular Member


Date Joined May 2009
Total Posts : 30
   Posted 6/12/2009 11:45 AM (GMT -6)   
I just had a colonoscopy...and the doc says the results are more consistent with Chron's. I've been indeterminate for about the eight years I've had this disease, and I'm guessing that the next diagnosis will be UC.
 
I just wish they could figure it out with 100% accuracy.
 
Anyone else have this problem?
 
(and should I change forums?)
Diagnosed 2002(?)
Currently on: alternating doses of 6mp, 8 Asacol, weekly Humira, & 1000mg Canasa nightly
Also: generic Immodium and Levbid


PSA
Regular Member


Date Joined Jan 2009
Total Posts : 498
   Posted 6/12/2009 11:51 AM (GMT -6)   
Well at times, even my biopsies have been confusing. Infact, the same set of slides tested at different labs gave conflicting results. One showed UC (just after surgery), the other one diagnosed it as "Indeterminate colitis". The third one "suspected Crohns".
45 years Male Attorney
Diagnosed UC October 1989
 
Had two stage J Pouch Surgery Nov 2005; Take Down March 2006
Complications after surgery - Incisional Hernia and Ano Fistulas
 
"There are only two ways to live your life. One is as though nothing is a miracle. The other is as though everything is a miracle: Albert Einstein
 
"What you are aware of you are in control of; what you are not aware of is in control of you."
 


imagine
Regular Member


Date Joined May 2009
Total Posts : 30
   Posted 6/12/2009 11:58 AM (GMT -6)   
I was indeterminate colitis but now my new GI is saying something different.
Diagnosed 2002(?)
Currently on: alternating doses of 6mp, 8 Asacol, weekly Humira, & 1000mg Canasa nightly
Also: generic Immodium and Levbid


Mommy pooh
Regular Member


Date Joined Apr 2008
Total Posts : 131
   Posted 6/12/2009 2:24 PM (GMT -6)   
My local GI that I see on a regular basis says UC. A specialist at a research hospital that I saw last summer looked over all my previous records and said he felt like it was more like Crohns. When I came back and told my regular GI what the other doctor said, he insisted it was UC. Who to believe? Of course I want to believe UC because in my mind it has a cure.....surgery, while Crohns doesn't.
  • 26 years old, married, Stay-at-home Mommy to 2 1/2 year old daughter and trying to get pregnant 
  • Ulcerative Colitis since Sept. 2004
    • 1st flare Sept-Nov 2004
    • 2nd flare Aug. 2007-July 08 
  • Currently taking:75mg 6MP, 4 Lialda, Allergy meds., Digestive Advantage Sustenex, Prenatal-U vitamin, and allergy shots once a month 
  • 10/6/08 Found a 1cm kidney stone in right kidney.  Had the stone blasted and passed the fragments.

 


diaper man
Regular Member


Date Joined May 2009
Total Posts : 122
   Posted 6/12/2009 4:33 PM (GMT -6)   
I just got an email today from my Doc.  Another pathologist looked at my biopsies and said they were more consistant with UC instead of Crohns. So he is going to change my med from Humira to Remicade which he said is better for UC. 
Diagnosed Crohns/Colitis Jan 2007.  Allergic to 5sa. Currently taking Humira and Hydrocortisone Canasa suppositories.  Budesonide
Colitis in last part of Colon.  Currently bleeding every bowel movement. 


Sweetie31105
Veteran Member


Date Joined Aug 2008
Total Posts : 903
   Posted 6/12/2009 5:56 PM (GMT -6)   
Diaper man, can't u just stay on the Humira? Is there any real reason for "backing up" on the meds? I know it's because of the diagnosis, but is the Humira working for you? Personally I'd stick with what's working and no changing if there is a way around the "rules."
27 year old, Married, Female.
Diagnosed with UC since March 2007

Taking Humira and Imuran since May 2007 (Currently in remission since May 2007)
Taken off Imuran 1/15/09
Only taking Humira.

Can't take Asacol, Allergic to Remicade


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 6/12/2009 6:04 PM (GMT -6)   
I agree with sweetie. Also, I haven't heard that there's that much evidence that remicade works better...it's just that humira hasn't yet been approved for UC, at least from what I understand.
Status: Remission since late May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Eased for ~3 weeks in December, possibly b/c of probiotic use?
Returned in January 2009 (with a vengeance), diagnosed with pancolitis on January 30.
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa twice weekly, Culturelle probiotic, and Zoloft (25 mg).


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 6/12/2009 6:36 PM (GMT -6)   
Hi AM,

You are very welcome to come over to the Crohn's forum when you feel ready. We're looking forward to meeting you.

Ivy.
Co-Moderator Crohn's Forum.

New meds thread


diaper man
Regular Member


Date Joined May 2009
Total Posts : 122
   Posted 6/12/2009 7:43 PM (GMT -6)   
Sweetie and Fruitgirl thanks, but actually no Humeria has not worked. I think it has worked a little but I am not near remission. I could be worse though with out it. One good thing if it is accurate that its straight UC and not crohns, then I could be cured with surgery.
Diagnosed Crohns/Colitis Jan 2007.  Allergic to 5sa. Currently taking Humira and Hydrocortisone Canasa suppositories.  Budesonide
Colitis in last part of Colon.  Currently bleeding every bowel movement. 


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 6/12/2009 9:43 PM (GMT -6)   
AM, you can certainly post at both the UC and CD forums, especially if your crohn's is affecting your colon (crohn's colitis) as mine is, the treatments and symptoms are virtually identical to UC when CD is affecting the colon.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


imagine
Regular Member


Date Joined May 2009
Total Posts : 30
   Posted 6/12/2009 10:39 PM (GMT -6)   
Well thanks all for posting...it's just so irritating when you know somethings wrong, but they can't tell WHAT :)

I think I'll just keep thinking along with the UC diagnosis although Chron's does get scholarships...
Diagnosed 2002(?)
Currently on: alternating doses of 6mp, 8 Asacol, weekly Humira, & 1000mg Canasa nightly
Also: generic Immodium and Levbid


notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16712
   Posted 6/13/2009 9:06 AM (GMT -6)   
I still don't know what I have either. I had biopsies that came back ulcerative proctitis and the report said it was indicitive of UC. Then a year later I got biopsies during a colonoscopy and it said "inactive" colitis. My dr said there were patches of mild inflammation. I want to get the report and read it myself but I am worried I will get myself stressed about the results.
Diagnosed with mild proctitis in March 2007: Treated with Canasa (as needed)
December 08: Began treating with Asacol 400mg (9/day) + Canasa 2x/day - Anemic
May 09: Off Canasa, taking Asacol (9/day)
Back on Canasa every other night + Asacol (9/day) + Probiotics + Iron
Reducing to 6 Asacol/day + Canasa + Probiotics + Iron - So far so good!!! -SPOKE TOO SOON! Back to 9/day...


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 6/13/2009 10:13 AM (GMT -6)   
notsosickly, patches of inflammation are most definitely indicitive of crohn's, have you seen another GI for a second opinion? It must be awfully frustrating for those that cannot get a conclusive DX, my CD was easily and immediately DX, same with my mom's UC so I can't imagine how frustrating it must be to have such confusing results (I wonder if much of that is to do with a GI that isn't very good at his/her job).

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16712
   Posted 6/13/2009 12:30 PM (GMT -6)   
I think the condition of my UC or Chrons was different at the time of the biopsies. The 2nd time I was almost in remission. The first time I had one small patch of inflammation in my rectum. I definitely need to get some more answers but I can't deal with a nother colonoscopy for a while.
Diagnosed with mild proctitis in March 2007: Treated with Canasa (as needed)
December 08: Began treating with Asacol 400mg (9/day) + Canasa 2x/day - Anemic
May 09: Off Canasa, taking Asacol (9/day)
Back on Canasa every other night + Asacol (9/day) + Probiotics + Iron
Reducing to 6 Asacol/day + Canasa + Probiotics + Iron - So far so good!!! -SPOKE TOO SOON! Back to 9/day...


liljessika311
New Member


Date Joined Jun 2009
Total Posts : 3
   Posted 6/14/2009 11:30 PM (GMT -6)   
I had a similar experience. My blood work says Crohns, but my GI believes it is UC because of its location and how it looks when doing colonoscopies. I say that as long as it is managed, a label is just a label.
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